Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

In Pain And Feeling Depressed


hazesdaze

Recommended Posts

hazesdaze Newbie

I have been in pain for years. 3 years ago I went into the hospital with pain, they found gallstones and removed my gallbladder. After that I started having trouble with my stomach and the doctors said it was IBS and also acid reflux and I was given antacids.. Recently after nothing is helping, I saw a new doctor. He did alot of blood work and also some stool samples and he beleives I may have celiacs. I went off of gluten after he told me this (and after tests) and then to test myself, I ate a hamburger with the bun. I had diarrhea so bad after that which is confirming this for me. I also stayed sick and still feel sick 4 days later. What is going on? How long does gluten remain in your body and is there a faster way to get it out other than force vomiting? I am so scared, I cry about this because it seems that even the smallest amount of gluten is going to hurt. everything seems to have gluten. :( Help this newbie, please.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Hey there.

First, it can take while to "detox" from gluten. For some, a week. Others, longer.

The best way to get rid of gluten is no not eat it - so no more testing.

You'll probably feel better, faster if you eat whole foods - fruits, veggies, meats. Stay away from the processed foods (even gluten-free ones) for a month or so.

Digestive enzymes and probiotics may help your stomach get back on track. Make sure they are gluten-free - I use pb8 probiotics and Enzymedica digestive enzymes.

Check your cosmetics, shampoo, etc. Many of them contain gluten.

Clean your kitchen thoroughly - most replace colanders, cutting boards, scratched plastics, scratched nonstick pans, wooden spoons since all can harbor gluten. Reseason cast iron cookware, clean BBQ grates with oven cleaner or repace them. Soap and water is sufficient to remove gluten from most nonporous surfaces.

Start reading threads, ask lots of questions.

And drink lots of water and get some nutritious gluten-free food in you - that will help. Go for a short walk if you can.

BeFree Contributor

"everything seems to have gluten"

Hang in there...it seemed like that for me too at first. You'll start discovering more and more things without gluten as you get used to the diet. There are a lot of tasty and healthy foods that naturally don't have gluten (like canned tuna, popcorn, hummus...) you just have to get used to a new way of thinking and it takes some time.

This page has some good ideas for things to eat:

Open Original Shared Link

AVR1962 Collaborator

My reaction to gluten lasts 3 weeks. It gets easier within the 3 week time but I will go to any length to avoid it. It sound slike you have an answer and if it is the glutens that are causing the problem, you will get better the longer you stay away from them.

hazesdaze Newbie

Thank you everyone. I am just feeling frustrated with being sick, I feel like I am missing out on so much. I have been reading the topics here and know that I have a lot to learn. I also read that the body needs to detox and you can get worse before getting better. I think I'm driving my family crazy with how careful I am trying to be. lol

They don't grasp the seriousness of cross contamination and think I am taking it overboard. Sometime I wonder if I am going to far but then I read these threads and realize I am not.

BeFree Contributor

"They don't grasp the seriousness of cross contamination and think I am taking it overboard. Sometime I wonder if I am going to far but then I read these threads and realize I am not."

Just remember, you are the one that knows your own body, be confident in eating what feels right to you.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...