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pinkcloud

Had Egd Today, All Is Well? A Little Discouraged

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So I had my EGD today and doc said he saw no evidence of celiac and is not expecting the biopsies to come back abnormal. He found grade one esophagitis, patchy erythema of the mucosa and gastritis in stomach and normal mucosa in duodenum. There is nothing on the report about the intestines at all. He wants to do a colonoscopy but I can't imagine what that would show.

I guess I'm a little disappointed. I really hoped to find answers to this misery. Gluten would've been a much easier answer than IBS, which I can't seem to control!

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So I had my EGD today and doc said he saw no evidence of celiac and is not expecting the biopsies to come back abnormal. He found grade one esophagitis, patchy erythema of the mucosa and gastritis in stomach and normal mucosa in duodenum. There is nothing on the report about the intestines at all. He wants to do a colonoscopy but I can't imagine what that would show.

I guess I'm a little disappointed. I really hoped to find answers to this misery. Gluten would've been a much easier answer than IBS, which I can't seem to control!

Many, many people on here have reported that their doctors said the exact same thing, but when the biopsies came back, they were positive for celiac. Think about it this way, if the doctors could always SEE the damage, why would biopsies EVER be taken? When I had my EGD last month, the doctor didn't even TAKE any biopsies because he said he couldn't see damage. I found this out a full two weeks after (and had gone gluten free immediately after), so I couldn't even do bloodwork after that much time. At least your doctor did the biopsies anyway. Don't be disappointed yet until the actual results come back!

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You can now go gluten free to see if it helps as long as you have had celiac blood work done. If you haven't had the celiac panel call and request one and then go gluten free to see if it helps. False negatives on both blood and biopsy are not uncommon at all but your body knows the answer.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Goodness it is hard to have hopes for an answer only to seemingly chase your tail once again but this doesn't mean you can't go gluten-free and that could be what you need to get your health back. I spent 7 months having numerous tests done without any resolve. Once I went gluten-free, I had my answer no matter whether it was celiac or not. Do what is best for you.


Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

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