Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Can This Be Celiac?


Big Bob

Recommended Posts

Big Bob Newbie

I have been having frequent bowel movements, soft stool, diareaha, and everything in between. I have had excess gas and bloating, belching for years. I was diagnosed with acid reflux 4 yrs ago. I had my gallbladder removed 3 years ago and that's when most of the symptoms started. 2 days after surgery I had dermatitis on my face. I now get itchy bumps, blisters on my arms (mildly, not severe), I get bad pains in my right arm, shoulder(upper and back) Itchy bumps on my skull and back of neck in the hairline. I have had loose stool since the surgery but in the last 3 weeks it has turned into a nightmare going anywhere from 7 to 12 times a day. It stated the morning after I had eaten a meal of french fries doused in malt vinegar, pork bbq sandwitch, and a large wheat ale. I went to the doctor and he said it was a virus,ok then I went back after 10 days and he said it was still a stomach virus but did order blood and stool tests. I haven't gotten the results yet but while doing a google search on my symptoms I came across this thing called celeac sprue. I have researched the symptoms and found that even my leg pains could come from this. I will bring it to my docs attention. So what do YOU think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I have been having frequent bowel movements, soft stool, diareaha, and everything in between. I have had excess gas and bloating, belching for years. I was diagnosed with acid reflux 4 yrs ago. I had my gallbladder removed 3 years ago and that's when most of the symptoms started. 2 days after surgery I had dermatitis on my face. I now get itchy bumps, blisters on my arms (mildly, not severe), I get bad pains in my right arm, shoulder(upper and back) Itchy bumps on my skull and back of neck in the hairline. I have had loose stool since the surgery but in the last 3 weeks it has turned into a nightmare going anywhere from 7 to 12 times a day. It stated the morning after I had eaten a meal of french fries doused in malt vinegar, pork bbq sandwitch, and a large wheat ale. I went to the doctor and he said it was a virus,ok then I went back after 10 days and he said it was still a stomach virus but did order blood and stool tests. I haven't gotten the results yet but while doing a google search on my symptoms I came across this thing called celeac sprue. I have researched the symptoms and found that even my leg pains could come from this. I will bring it to my docs attention. So what do YOU think?

I think you have some of the symptoms for sure. Best wishes on getting well!

Big Bob Newbie

I think you have some of the symptoms for sure. Best wishes on getting well!

Yes I think so too. Thanks for the Well Wishes!

squirmingitch Veteran

I think it's quite likely that you have celiac disease also. At the very least maybe non celiac gluten intolerance.

If you want to get tested then DO NOT stop eating gluten until ALL testing is done including an endoscopy with biopsies.

GFinDC Veteran

Hi BBob,

Sounds like it could be celiac to me. There are quite a few threads on this forum by people who had their gall bladders removed thinking that was the problem. But it wasn't. Having a gall bladder removed does cause it's own set of problems with digestion, and the time to adjust to not having a gall bladder can vary . But several months to a year is what I have read.

The celiac antibody tests are a simple blood draw that they send off to a lb for analysis. If those are positive the doc may want to do an endoscopy but that is optional IMHO.

To get fairly reliable results though you need to keep eating gluten until the tests are completed. Unfortunately the results are not 100% accurate, especially when it comes to negative results. It's best to go ahead and try the gluten-free diet for a several months regardless of what the test results say. You may find your body responds positively in a few weeks. But the gall bladder removal could skew the results. People here have reported diahrea after a gall bladder removal until their systems adjust.

Big Bob Newbie

Hi BBob,

Sounds like it could be celiac to me. There are quite a few threads on this forum by people who had their gall bladders removed thinking that was the problem. But it wasn't. Having a gall bladder removed does cause it's own set of problems with digestion, and the time to adjust to not having a gall bladder can vary . But several months to a year is what I have read.

The celiac antibody tests are a simple blood draw that they send off to a lb for analysis. If those are positive the doc may want to do an endoscopy but that is optional IMHO.

To get fairly reliable results though you need to keep eating gluten until the tests are completed. Unfortunately the results are not 100% accurate, especially when it comes to negative results. It's best to go ahead and try the gluten-free diet for a several months regardless of what the test results say. You may find your body responds positively in a few weeks. But the gall bladder removal could skew the results. People here have reported diahrea after a gall bladder removal until their systems adjust.

Thanks for the input. I have tried to do the gluten free for the past 2 days so I guess I better start eating it again if I'm going to be tested. I would think that my digestive system would be getting better since it will be 3 yrs in Oct. since my surgery but it's getting worse instead.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...