Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Still Trying To Figure Out What Is Going On


Mama of 6

Recommended Posts

Mama of 6 Rookie

I am still trying to figure out what is going on. I am going to put it all in a nutshell, if you have seen my other posts I am sorry as it will repeat a little of the same info.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I am still trying to figure out what is going on. I am going to put it all in a nutshell, if you have seen my other posts I am sorry as it will repeat a little of the same info.

Did you go to the Doctor?

Link to comment
Share on other sites
Mama of 6 Rookie

I am still trying to figure out what is going on. I am going to put it all in a nutshell, if you have seen my other posts I am sorry as it will repeat a little of the same info.

[/quote Ugh...pushed the wrong button. Sorry for the double posting. So all of my symptoms starting after the birht of my 4th baby it was a normal bith and no complications. At six weeks post partum I starting haveing fibromyalgia symptoms and was sent to a rheumatologist then to a fibromyalgia clinic all telling me I have fibro. For some reason I have always felt like I don't have it but thats what the tests pointed to since every test (whic has been a ton) has came out normal. When I heard of the gluten intolerance I thought fore sure that was me. So I went and got testing which came out negative and went on a gluten free diet. It helped tramendously the first few days then horrible symptoms for a few weeks. Now I have what seems like flare ups of the same symptoms but gluten free seems to be helping. I also had my vitamen B12, feratin,and thyroid checked because I get horrible numbness in my feet ( thats how I know the leg pain will start) It was all normal. I have so many symptoms yet so many tests that point to nothing. I have a couple of questions? Is anyone else going through anything that is similar? do you think the liquid multi vitamens would affect the test?

Link to comment
Share on other sites
1974girl Enthusiast

I have wondered about you! You are the one with the swollen lymph nodes and the nightsweats right? If so..did you go get that checked out? I have been thinking of you and hoping you checked back in.

Link to comment
Share on other sites
beachbirdie Contributor

I am still trying to figure out what is going on. I am going to put it all in a nutshell, if you have seen my other posts I am sorry as it will repeat a little of the same info.

Ugh...pushed the wrong button. Sorry for the double posting. So all of my symptoms starting after the birht of my 4th baby it was a normal bith and no complications. At six weeks post partum I starting haveing fibromyalgia symptoms and was sent to a rheumatologist then to a fibromyalgia clinic all telling me I have fibro. For some reason I have always felt like I don't have it but thats what the tests pointed to since every test (whic has been a ton) has came out normal. When I heard of the gluten intolerance I thought fore sure that was me. So I went and got testing which came out negative and went on a gluten free diet. It helped tramendously the first few days then horrible symptoms for a few weeks. Now I have what seems like flare ups of the same symptoms but gluten free seems to be helping. I also had my vitamen B12, feratin,and thyroid checked because I get horrible numbness in my feet ( thats how I know the leg pain will start) It was all normal. I have so many symptoms yet so many tests that point to nothing. I have a couple of questions? Is anyone else going through anything that is similar? do you think the liquid multi vitamens would affect the test?

I'm guessing your doctor tested for lupus, rheumatoid arthritis, other autoimmune conditions? Do you have results of any tests he did? Certainly with the difficulty you were having, something is going on. And I don't believe in fibromyalgia as a diagnosis, just like IBS. It's something I think they say because they don't know what's really going on.

Link to comment
Share on other sites
Mama of 6 Rookie

Thank you for your reply both of you. I did get the lymph nodes checked and dr said come back in 6 weeks if there not gone. He doesnt think it is serious because my ears are plugged of and on. I have also been checked for rheumatoid arthritis, lupis and just about everything else. This week I am doing ok from being on the gluten diet, I am haveing very minimal pain. However my feet still go numb. At this point I am just going to stay on the gluten free diet.

Link to comment
Share on other sites
frieze Community Regular

Have you been tested for diabetes? not just a fasting glucose, but a 3-5 hour glucose tolerance test, with insulin levels?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mama of 6 Rookie

Have you been tested for diabetes? not just a fasting glucose, but a 3-5 hour glucose tolerance test, with insulin levels?

I haven't been tested for diabetes, I had no clue it could cause similar symptoms. I will talk to the dr. Thanks to all of you who have replied. I would be way more frusterated without you all.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,093
    • Most Online (within 30 mins)
      7,748

    Eva Ann
    Newest Member
    Eva Ann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...