Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Did I Have Too Much Dairy?


LauraB0927

Recommended Posts

LauraB0927 Apprentice

I never had an issue with dairy before my diagnosis (May 2012) and I used to drink milk like it was water and going out of style...but I cut out a good portion of dairy and now only limit my diary intake to a Weight Watchers low fat cheese stick and a cup of yogurt daily. Since I never had issues with those and always felt fine, I tried the Trader Joe's Strawberry Kefir yesterday (a very small amount, maybe 1/4 of a cup, just to see if I liked it). About an hour later, I was curled up on the floor with excruciating pains in my intestine area and had D for the rest of the night. I've NEVER felt that kind of pain before and the only thing I changed in my diet yesterday was drinking the Kefir. My GI system is still feeling a bit sensitive today...

I can tolerate milk in cooking, like when I make home made gluten free corn muffins or other recipes. I can also eat gluten free cheese pizzas without any problem at all. I know that we can become lactose intolerant, but I was totally thrown off guard by this. Here's my stupid question - was that way too much dairy/lactose for me? I'm assuming there is a higher level of lactose in the Kefir, but has anyone else had this issue? Will taking Lactaid pills help with this? I want to make sure I am getting my calcium and probiotics and was also hoping that the Kefir could be a filling afternoon snack combined with some fruit, as I'm trying to lose some more weight. Any suggestions would be much appreciated!!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dws Contributor

I never had an issue with dairy before my diagnosis (May 2012) and I used to drink milk like it was water and going out of style...but I cut out a good portion of dairy and now only limit my diary intake to a Weight Watchers low fat cheese stick and a cup of yogurt daily. Since I never had issues with those and always felt fine, I tried the Trader Joe's Strawberry Kefir yesterday (a very small amount, maybe 1/4 of a cup, just to see if I liked it). About an hour later, I was curled up on the floor with excruciating pains in my intestine area and had D for the rest of the night. I've NEVER felt that kind of pain before and the only thing I changed in my diet yesterday was drinking the Kefir. My GI system is still feeling a bit sensitive today...

I can tolerate milk in cooking, like when I make home made gluten free corn muffins or other recipes. I can also eat gluten free cheese pizzas without any problem at all. I know that we can become lactose intolerant, but I was totally thrown off guard by this. Here's my stupid question - was that way too much dairy/lactose for me? I'm assuming there is a higher level of lactose in the Kefir, but has anyone else had this issue? Will taking Lactaid pills help with this? I want to make sure I am getting my calcium and probiotics and was also hoping that the Kefir could be a filling afternoon snack combined with some fruit, as I'm trying to lose some more weight. Any suggestions would be much appreciated!!! :)

I'm not sure what's up with the kefir for you. Like yogurt, it has less lactose than milk and is advertised as having less lactose than yogurt. It does tend to be loaded with super high levels of probiotics, so maybe those upset your system. Maybe too much of a good thing. Probiotics make my stomach hurt.

LauraB0927 Apprentice

I'm not sure what's up with the kefir for you. Like yogurt, it has less lactose than milk and is advertised as having less lactose than yogurt. It does tend to be loaded with super high levels of probiotics, so maybe those upset your system. Maybe too much of a good thing. Probiotics make my stomach hurt.

Thank you so much for that advice! After reading your post, I made a call to my nutritionist (who is wonderful) and explained the situation to her and she seems to think it's the cultures too and said that some Celiacs cant tolerate the high amounts in the Kefir. I'll stay away from it for a long time (I dont want to experience anything like that again) and then see if I can work it in slowly. Thanks again!

dws Contributor

Thank you so much for that advice! After reading your post, I made a call to my nutritionist (who is wonderful) and explained the situation to her and she seems to think it's the cultures too and said that some Celiacs cant tolerate the high amounts in the Kefir. I'll stay away from it for a long time (I dont want to experience anything like that again) and then see if I can work it in slowly. Thanks again!

You're lucky you have a good nutritionist who is familiar with celiac. Wish I could find one.

IrishHeart Veteran

I agree ---and I would recommend avoiding kefir when newly diagnosed IMHO.

It's really hard on a damaged gut, despite the healing nature of it. I figured it would be a FAB idea for me, too.... but, nope.

( your story brought back a "fond" memory. :rolleyes: It lasted about 3 minutes in me before causing terrible cramping and it took about 10 more minutes before finding "the way back out"--any which way it could....and it wasn't pretty :lol: )

I have not touched it since and likely, I never will again.

I take probiotics in powder form and that works fine for me.

Glad you have a good celiac-savvy nutritionist!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    2. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    3. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    4. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

    5. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,187
    • Most Online (within 30 mins)
      10,442

    Dennis E. Schertz
    Newest Member
    Dennis E. Schertz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
    • trents
      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high.  Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity). 
×
×
  • Create New...