Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

B12 And Celiac Blood Test Help?

Celiac Mindwarp

Recommended Posts

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Got loads of blood results, mostly ok I think but I am a bit unsure about, any help much appreciated.

My celiac result says:

Anti-transglutaminase level =Negative

Celiac disease unlikely unless IgA deficient/on a gluten free diet.

No other figures, values etc given. I have been wheat free 9 years and only lasted 3 weeks on gluten challenge.

B12 261 ng/L

I know this is considered normal in UK, but read elsewhere it would be regarded as a bit low.

My haemoglobin is 14.3 g/dL, so fine.

For B12 I had only been gluten-free a week and had just spent a month on atkins with good quality multivitamin.

Any clues what any of this might mean, if anything, would be great...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Unless you had been eating lots of barley and rye, one would expect a negative tTG after nine years on a gluten free diet.

It has been a while since I dealt with B12 ranges so can't comment. However, I am confused. When was the B12 run that you had only been gluten free for a week? Was that after a three-week gluten challenge. Three weeks is generally not accepted as being long enough for a gluten challenge where two months is normally considered to be the minimum. And if you had been gluten free for nine years prior, three weeks would not be long enough to lower B12 levels much (assuming that reading is normal).

shadowicewolf Proficient
shadowicewolf
Posted

was the 3 weeks before the blood test? If so you might not have been on it long enough (especially like mushroom said).

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted
  • Author

1 week challenge before the B12 test - my doctor didn't ,,,know the minimum recommend here is 6 weeks.

I had celiac test done at the same time but the lab lost it.

So when I retested for celiac only, in total I did 3 weeks gluten challenge, 10 days gluten free, 5 days gluten challenge (so gluten on 26 out of 36 days).

We were aiming for 6 weeks but I got too sick after 3. I did the extra 5 days in a desperate bid to do something after the lab lost my 1st results. I almost ended up in ER, so stopped then.

Sorry to be so confusing

I didn't really expect anything other than negative, but was surprised to see no figures or ranges for celiac.

I had no baseline for B12, so was wondering more generally about what is normal - reading around this seemed to be the low side of normal. Just wondered if it might be significant in terms of being a celiac symptom.

Though wheat free a long time I have eaten rye barley and oats, and odd bits of wheat, plus any cross contamination.

nvsmom Community Regular
nvsmom
Posted

Do you take a sublingual tablet? I think they work better than a normal vitamin you would swallow. After being gluten-free just a week or so, my B12 tested well above the normal range (I think it was 890 and the reference range's upper limit was 750) even with very positive celiac blood tests. I actually cut back my B12's after I was diagnosed. LOL

Your challenge could have damaged the area where you absorb B12, or you might need to take more B12's or a different type/brand.

If you don't take sublinguals (disolved under the tongue), you might want to try them. It could help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...