Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Dr Has Results

smpalesh

By smpalesh
in Doctors

Recommended Posts

smpalesh Explorer
smpalesh
Posted

I am so irritated right now. I had blood work done Friday morning. I am having lots of symptoms of celiac but also could be other things so they ran a bunch of blood work. I get a phone call this morning the dr got my blood test results and would like to see me. So I'm thinking they've found something, not necessarily celiac but something. Normally when its just anemia or something they just tell me over the phone. So I'm thinking, yay the blood test results are back, maybe I can get some answers. Nope, the dr can't fit me into his schedule until October 11! I am so upset! I told the receptionist that that was a really long wait and that I am very sick and she said (in a snide tone) well the results aren't urgent. They wouldn't consider celiac urgent so I am still thinking its a possibility but who knows. I am going to go insane waiting 9 more days to find out the rests of the blood tests. Then something even weirder - the dr wants me to repeat some of the blood work. I won't know until I get the requisition whether that includes the celiac testing or not. But why would a dr want to repeat bloodwork that was just done 4 days ago? I just feel so sick and I can't believe I have to wait 9 days just to see blood test results.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kittty Contributor
kittty
Posted

Can you ask them to make a photocopy of the blood work results and let you pick them up in reception? Or better yet, could they email them to you? In most states you don't have to wait and get the news from the doctor.

GottaSki Mentor
GottaSki
Posted

I am so sorry - that is just wrong. I'd call back and ask for a return phone call from the doctor or minimally his nurse - sometimes the nurse can fit you in for a earlier appointment - dismiss the receptionist if she gives you attitude - simply be clear you need to talk with the doctor or his nurse - if she tries to dismiss you, tell her you have new pain that can not wait nine days for a conversation with the doctor. Demand to be told your results over the phone or to be seen sooner. Minimally you should be told what bloodwork needs to be re-done and why.

Has he ordered the new tests? If so, you can find out at the lab exactly what was ordered - he may have ordered additional tests, not just re-dos.

Medical testing limbo is the worse and is not necessary in this case.

Let us know how it goes.

Hang in there!!!!

Roda Rising Star
Roda
Posted

Can you ask them to make a photocopy of the blood work results and let you pick them up in reception? Or better yet, could they email them to you? In most states you don't have to wait and get the news from the doctor.

Yep, you can do what kitty suggested. If you didn't have the blood work done at the doctor's office, like at a hospital or outpatient facility, you could go and sign a release and pick up a copy of your blood work in medical records. I do this all the time to take to other doctors and for my personal file.

smpalesh Explorer
smpalesh
Posted
  • Author

Okay, my husband went and got a copy of the blood work but the celiac test result isn't on there??? Does this mean it wasn't back yet or something? He just did the tTG test. I paid $65 dollars so they darn well better have done it. Okay so for the blood test results that came back here is what is circled as being off: (I'm in Canada so some of the numbers might be different than what the US numbers would be)

Hemoglobin: 99 (normal is 120-160)

Hematocrit: 0.32 (normal is 0.35-0.45)

MCV (Mean Corpuscular Volume): 69.0 (normal is 80.0-100.0)

MCH (Mean Corpuscular Hemoglobin): 21.4 (normal is 27.5-33.0)

RDW (RBC Distribution Width): 16.1 (normal is 11.5-14.5)

Neutrophils: 8.3 (normal is 2.0-7.5)

Lymphocytes: 3.8 (normal is 1.0-3.5)

Eosinophils: 0.7 (normal is 0.0-0.5)

Ferritin: <5 (normal is 10-291)

Everything else was normal. I don't know if any of the above results point to anything (except obviously anemia). The only new test they are ordering is HB Electrophoresis, something to do with the red blood cells. I also bought a thermometer and my temp has been consistently hovering around 99.5 all day and I feel the same as I have felt for 3 weeks so I am assuming that I have had a low-grade fever the whole time.

frieze Community Regular
frieze
Posted

Okay, my husband went and got a copy of the blood work but the celiac test result isn't on there??? Does this mean it wasn't back yet or something? He just did the tTG test. I paid $65 dollars so they darn well better have done it. Okay so for the blood test results that came back here is what is circled as being off: (I'm in Canada so some of the numbers might be different than what the US numbers would be)

Hemoglobin: 99 (normal is 120-160)

Hematocrit: 0.32 (normal is 0.35-0.45)

MCV (Mean Corpuscular Volume): 69.0 (normal is 80.0-100.0)

MCH (Mean Corpuscular Hemoglobin): 21.4 (normal is 27.5-33.0)

RDW (RBC Distribution Width): 16.1 (normal is 11.5-14.5)

Neutrophils: 8.3 (normal is 2.0-7.5)

Lymphocytes: 3.8 (normal is 1.0-3.5)

Eosinophils: 0.7 (normal is 0.0-0.5)

Ferritin: <5 (normal is 10-291)

Everything else was normal. I don't know if any of the above results point to anything (except obviously anemia). The only new test they are ordering is HB Electrophoresis, something to do with the red blood cells. I also bought a thermometer and my temp has been consistently hovering around 99.5 all day and I feel the same as I have felt for 3 weeks so I am assuming that I have had a low-grade fever the whole time.

anemia and perhaps infection. The RDW means RBCs are being released before they are quite mature, probably in reaction to your anemia, but are you bleeding anywhere? The MCV being lowish, I am thinking iron def anemia rather than B12.

If your WBCs weren't "off", I would have been willing to discount the Temp, after all 98.6 is only a mean. If you can tolerate Acetominophin, you could try a couple of doses and recheck your temp. Good luck.

kittty Contributor
kittty
Posted

They may have needed to send the celiac test to a different lab, which is why it's taking longer.

Your blood results are very similar to what mine were pre-gluten free. I also had low MCV and MCH, high RDW and high white blood cell counts. I don't know if that's typical with celiacs, or if it's just a coincidence.

Even though I've been gluten free for about six months the neutrophil count is still really high, which can be an indication of celiac-related inflammation being repaired.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...