Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Blood Tests Negative

ChrisMathis

Recommended Posts

ChrisMathis Newbie
ChrisMathis
Posted

Well got my blood work back from Doctor and the panel was negative. I don't have the exact numbers except for IgA which was 189mg/dl. The others just said negative. Am I right in thinking that it is still possible to have negative results on blood tests but positive biopsy? I haven't scheduled an endoscopy as of yet but I'm due for a check on my Barrett's soon so will ask my GE to biopsy for Celiac's at the same time.

I'm a little ticked off as my husband went to the Dr for his own problem and they started talking about me and the Dr sort of suggested in a roundabout way that my problems could be depression related!! Dr didn't breach any code of ethics etc but still it ticked me off because I didn't get my Barrett's, Hashimoto's, 6 miscarriages, Diverticulosis, or my vitamin D level of 4 just because I'm depressed if anything I'm a little depressed because I'm not getting answers!!

Sorry for the rant.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Yes, you can have negative blood results and positive biopsy.

The advice is to carry on eating gluten until the endoscopy is done.

Doesn't sound like depression was the cause of that lot.

Sorry to hear things have been so tough.

I had recurrent miscarriage, but am now blessed with 2 kids. I wouldn't wish that loss on anyone.

I am waiting for my biopsy results, had it yesterday. Good luck with yours.

And hey, this is a great place to rant x

ChrisMathis Newbie
ChrisMathis
Posted
  • Author

Yes, you can have negative blood results and positive biopsy.

The advice is to carry on eating gluten until the endoscopy is done.

Doesn't sound like depression was the cause of that lot.

Sorry to hear things have been so tough.

I had recurrent miscarriage, but am now blessed with 2 kids. I wouldn't wish that loss on anyone.

I am waiting for my biopsy results, had it yesterday. Good luck with yours.

And hey, this is a great place to rant x

I'm glad you were finally able to have two successful pregnancies :)

Yes I plan on continuing to eat gluten until the biopsy even though a huge part of me just wants to go gluten free right now!

Did you have any blood work done and if so what were the results if you don't mind me asking? I hope you don't have to wait too long for the biopsy results. I know with my Barrett's it only took about a week.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Bloods were just one test, and no scale, just negative. Sadly, I hadn't found the forum then and didn't know what to ask for.

I didn't manage to do the whole gluten challenge, made me to ill. I dont expect the biopsy to help really, so I am having to self diagnose based on history and response to gluten free diet. 2 weeks to wait for results here.

It's worth hanging in if you can.

I did suffer from stress, anxiety and depression, especially after the miscarriages, and did get some professional support to help me through. They said it wasn't surprising I was stressed with everything going on.

kittty Contributor
kittty
Posted

Dr sort of suggested in a roundabout way that my problems could be depression related!!

If we all had a nickle for every time we heard that...

mushroom Proficient
mushroom
Posted

If we all had a nickle for every time we heard that...

They never seem to recognize that there is a damned good reason for most of this depression. Depression is normal if your life is depressing :ph34r:

shadowicewolf Proficient
shadowicewolf
Posted

I, like you, had a positive TTG IGA but with a negative biopsy and a positive genetic test (i have both? lol). That and with the positive reaction to the diet, yes, i do have it (even though my doctor just says "intolerence" >.>).

I had to do the biopsy 4 weeks after i went gluten free O.O

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ChrisMathis Newbie
ChrisMathis
Posted
  • Author

I, like you, had a positive TTG IGA but with a negative biopsy and a positive genetic test (i have both? lol). That and with the positive reaction to the diet, yes, i do have it (even though my doctor just says "intolerence" >.>).

I had to do the biopsy 4 weeks after i went gluten free O.O

My tTG IgA was negative my IgA level was 189 mg/dl I don't know the difference between those two. I wish they'd give numbers instead of just negative for all the tests and actually have the numbers in corresponding columns! It would make it so much easier to read.

I firmly believe that we know our bodies better than any Doctor and I know for sure that whenever I have a lighter gluten day as in if we eat rice as opposed to bulgur I have less problems with bloating, cramping etc. I will go gluten free regardless of what the biopsy reveals once I have it. I may have the genetic test done just to see if I carry the gene. I seem to remember when I went through some fertility treatments 10 years ago that we had HLA testing done and I'm pretty sure I remember DQ8 but of course I can't find the paperwork and the clinic was bought out and all my files have gone into storage and can't be accessed.

mushroom Proficient
mushroom
Posted

Your IgA level of 189 would be your total serum IgA, a test which is run as a control to make sure that your body produces normal amounts of IgA. The value of 189 would seem to put you squarely in the normal range. :)

ChrisMathis Newbie
ChrisMathis
Posted
  • Author

Your IgA level of 189 would be your total serum IgA, a test which is run as a control to make sure that your body produces normal amounts of IgA. The value of 189 would seem to put you squarely in the normal range. :)

Thanks you. Normal is good. :)

frieze Community Regular
frieze
Posted

Well got my blood work back from Doctor and the panel was negative. I don't have the exact numbers except for IgA which was 189mg/dl. The others just said negative. Am I right in thinking that it is still possible to have negative results on blood tests but positive biopsy? I haven't scheduled an endoscopy as of yet but I'm due for a check on my Barrett's soon so will ask my GE to biopsy for Celiac's at the same time.

I'm a little ticked off as my husband went to the Dr for his own problem and they started talking about me and the Dr sort of suggested in a roundabout way that my problems could be depression related!! Dr didn't breach any code of ethics etc but still it ticked me off because I didn't get my Barrett's, Hashimoto's, 6 miscarriages, Diverticulosis, or my vitamin D level of 4 just because I'm depressed if anything I'm a little depressed because I'm not getting answers!!

Sorry for the rant.

Unless you have given your doctor SIGNED consent to share info with your husband, the doctor has committed a HIPAA violation. This is a very big nono. could cost the doc big$ in fines. If you wish to continue with this doc, you need to set firm limits and clear expectations.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...