Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Salicylate Sensitive Celiacs


tailz

Recommended Posts

tailz Apprentice

I found this link that takes some of the guesswork out of screening vitamins for salicylates. Be careful though with glutens and other trigger ingredients.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Tailz, don't use the info on that site. It's all about using guaifenesin, which is supposed to fix fibromyalgia (as long as you take it indefinitely), and claims that salicylates block it's effectiveness. Guaifenesin, in my own experience (and I used it for nearly two years), is utterly useless for fibro. Cutting out the gluten and salicylates is the REAL treatment.

A lot of the advice on salicylates is just PLAIN WRONG. Period. ALL teas, other than chamomile tea, are bad. ESPECIALLY natural ingredients are terrible (but the other ones, like mint flavouring, are awful, too). Topical salicylates, like the ones in toothpaste, shampoo and soap are no good, either.

Guaifenesin DOES thin mucus, that's why it is in cough medicines. It has it's uses. But I found that while I cut out all salicylates and bread (as it tells you to do at the beginning) 'it was working great' (yeah, right). Once I started eating some bread again, I was really sick again. So, I stopped using it.

Now I just cut out the lectins (gluten being one of them) and the salicylates, and the pain and the digestive problems are gone. NO guaifenesin needed.

So, since in this site the underlying reasoning for eliminating salicylates is faulty, why would you trust the rest of the information? The problem is, that there is some truth mixed with lies. It would be hard to distinguish the two, and find the useful information here.

I just read that they encourage using TUMS for your calcium. What an awful idea! NOBODY should EVER take antacids as a calcium supplement. That's about the worst way of getting calcium (besides the fact that Tums aren't proven gluten-free). That advice alone would tell me that whoever is giving the advice on this site is not to be trusted.

Also, they say if the salicylates are part of the inactive ingredients, they are fine. Actually, they are NOT fine. Also, they say that flax seed oil is okay. It is not. In fact, the only oil that is okay is cold pressed sunflower oil.

So, their info on which vitamins are safe and which are not is useless. Don't follow it, in fact, forget about this website.

Please, just get your info from the one on salicylates I link to, this lady really, really knows what she is talking about, and has done her 'homework'. Also, buy her 'Salicylate Handbook' (on C D), it has invaluable information, and is very reasonably priced (she really hardly makes any money on it, she just doesn't want to lose money).

Following her guidelines and advice has helped me more than you can imagine.

And no, (in case anybody thinks I am somehow connected to this lady) I am NOT helping her promote her site and her Salicylate Handbook, I don't know her personally, she is in England, and I am in Canada.

Edit: Oops, I forgot that when you put the c and the d together, it always shows up as celiac disease. I was saying the salicylate handbook was on C D, but it said that it was on celiac disease, because I didn't separate the letters. I hope I didn't cause any confusion.

  • 4 years later...
stef-the-kicking-cuty Enthusiast

Now my question is, is there a website or post somewhere like a list that lists most of the Salicylate free foods you can have? I'm using myself as a guinea pig right now and I think, I'm on to something. No insurance for doctors, but want to try this diet as an exclusion diet and see what happens.

Thanks for all the info!

eatmeat4good Enthusiast
Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    2. - Joseph01 replied to bethmon's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      We Keep Getting Glutened With Vegetable Oil

    3. - ThomasA55 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Iron loss and potential celiac.

    4. - Aretaeus Cappadocia replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

    5. - knitty kitty replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Edy's and Dreyer's ice cream

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
    • ThomasA55
      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
×
×
  • Create New...