Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

An observation about psyllium husk


newtonfree

Recommended Posts

newtonfree Explorer

During my journey toward my diagnosis with celiac disease, I stumbled upon psyllium husk fiber as an IBS treatment due to a study that found significant improvement in IBS symptoms on a high-dose regimen (with high enough water intake to go along with it).

I started taking 3 tablespoons daily, split up into two doses, with 750 mL of water each time, dissolving it directly before drinking.

And man, was it ever gross to choke down. Like thick mucus. I had to use ice-cold water, mix it like mad with a spoon and chug it in a race against the clock before it got so thick that drinking through a straw became unfeasible. After drinking, there would be thick, mucilous psyllium caked onto the glass that was annoying and gross to clean off (it would get stuck to the kitchen sponge and I'd have to work to clean it off of that after working to clean it off the glass!). But the frequency of my bowel movements dropped, and my abdominal cramping got significantly better, which made it all worthwhile.

When I was diagnosed with celiac disease, I learned that many psyllium husk powders use wheat flour as an anti-caking agent. I found the Pure-lé brand, advertised as gluten-free, to be highly recommended on this very forum, and ordered some. My previous brand had been Yogti, which didn't disclose any wheat, but also suspiciously didn't claim to be gluten-free anywhere.

But until it could arrive, I wasn't sure what to do. I realized I had a bag of "Now!" brand psyllium husk that was much more coarsely ground, with recognizable husks. I figured, "Well, that would be less likely to have hidden flour than the fine powder!"

So I used that for three days while waiting for the Pure-lé psyllium to arrive.

My friends, that was a big mistake. I got glutened by it, for absolute certain. My DH flared extremely painfully and progressively, and I didn't realize why until I switched to the Pure-lé psyllium upon its arrival and everything settled right back down without changing anything else in my GFD.

After mixing up literally my first glass of the Pure-lé, I knew that both previous brands had contained flour. I think the "Now!" one simply contained more.

Mixing the same quantity (by weight on my kitchen scale) into the same size glass, I initially thought something was wrong with my new psyllium. It just kinda swirled around in the water. I took a sip, and felt the distinct little grains of psyllium powder, instead of the thick gel I was used to. I even let it sit for 5 minutes, then 10. And, to be sure, it thickened up over time. But nothing like any of my previous brands. Even at 10 minutes, it was thick...ish...but not mucilaginous, and I didnt feel like it was hard to drink through a straw.

Then it hit me. "You've cooked with flour  before, doofus. Why do you mix flour into sauces like gravy? To thicken them."

I am absolutely positive that the difference between these three brands came down to flour. This psyllium even rinses and washes right off the glass with minimal effort, and doesn't leave a mucus-like goop on my kitchen sponge.

And then more things hit me. How frequently psyllium is touted as the "magic ingredient" in gluten-free baking. How many people on this forum and elsewhere debate which commercial gluten-free breads they felt glutened by. How much more thick and gummy the non-gluten-free-labeled psyllium had been. I think some people might accidentally be baking wheat flour into their recipes and then raving about how much more bread-like their recipe turned out when they added psyllium.

That's not to say that I'd never trust psyllium in a baked good again - but I'd only trust it if the bakery is actually testing their ingredients and final product for gluten.

All I know is that I tried three different brands of psyllium before this, and all three left that thick, gummy layer at the top of my glass that were a nightmare to clean off, and that none of them tested for or guaranteed that they were gluten-free, while the brand that did guarantee its gluten-free status (and was raved about by celiacs online) has an utterly different texture.

I also can't help but wonder if, when proponents of things like the anti-inflammatory diet claim it's a bad idea to use psyllium, the experiences and data on which they're basing their opinions might be coming from commercial psyllium sources that put wheat into it. The difference in my bowel movements and DH since switching to the gluten-free psyllium are night and day. They're the first truly normal-looking/normal-feeling ones I've had in years, to the point where I'm wondering if I even need to be taking it at all anymore. It started as a treatment for symptoms of IBS when I was an undiagnosed celiac. Then it continued as treatment for symptoms that persisted after I "cut out wheat" (ha, ha).

But I was just drinking wheat flour, then saying, "man, I really need to stay on this psyllium for all these symptoms I'm still having."

I thought I had cut out wheat "for its fructan content" 6 months before my celiac disease diagnosis, and that I had eliminated all labeled and hidden gluten after my diagnosis. But the reality is that, until I switched psyllium brands, I don't think I was even free of macroscopic amounts of wheat. I think I was drinking wheat smoothies twice a day.

Just wanted to put that story out there in case it helps anyone, and to see if anyone else might have noticed something similar. Did you find another brand of (labeled, tested, and/or independently confirmed) gluten-free psyllium, and notice how much less goopy it was than  unlabeled brands?

This didn't feel like gluten cross-contamination, the stark texture and symptom difference made it feel like a significant percentage of the powder is literally flour. The second I showed my glass of Pure-lé psyllium to my wife, she was shocked, too. She knows the gummy mess the old brands left behind because it was so gross that she'd refuse to touch it if I left it in the sink without washing it myself. She said, "My love, you've been drinking wheat. Today is the first day of your actual gluten-free diet."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I had a similar experience recently with curcumin, and bought a package that had a "may contain wheat" on it by accident. Luckily I had a Nima Sensor and was able to test it, and sure enough, it had wheat in it. I was able to find one that was gluten-free, but psyllium can also be contaminated, as you discovered. Many gluten-free companies now incorporate  psyllium powder in their breads, including one of our sponsors here--Little Northern Bakehouse. I agree that there are many benefits to including it in your diet.

Scott Adams Grand Master

Technically speaking, in the USA there is a labelling regulation that requires foods to include a warning for the top 8 allergens whenever there is any chance of contamination, for example at a mill, or during the manufacturing process. My guess is that there may be a loophole because psyllium is sold as a supplement, rather than a food, but this requirement should also be required for supplements as well, but currently it isn't.

newtonfree Explorer
4 hours ago, Scott Adams said:

Technically speaking, in the USA there is a labelling regulation that requires foods to include a warning for the top 8 allergens whenever there is any chance of contamination, for example at a mill, or during the manufacturing process. My guess is that there may be a loophole because psyllium is sold as a supplement, rather than a food, but this requirement should also be required for supplements as well, but currently it isn't.

That's an interesting point.

Also, I live in Canada - so I have no idea what regulations a package of pure psyllium husk falls under. Considering the fact that you find psyllium-based products like Metamucil in pharmacies and not in the "baking" section of the grocery store here has me wondering if psyllium isn't even subject to food regulations here at all.

Since switching to the verified gluten-free brand, my symptoms are greatly improved. Perhaps I'll have to get a Nima sensor or gluten test kit so that I can avoid these pitfalls in future.

  • 2 years later...
transplantwest Newbie

Psyllium can't sit for more than a minute in the water or it is like drinking sludge. Swallowed fairly soon means it's more like an flavorless undermixed protein smoothie. Chlorophyll ( or two tbsp) really helps the taste, makes it minty. Taking Psyllium and Chlorophyll separately rather than together at first helps determine if there's intolerance to either. Also starting the Psyllium in small doses, starting with 1/2 to 1 teaspoon to tolerate the fiber change. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

    2. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    3. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,196
    • Most Online (within 30 mins)
      10,442

    Spider2026
    Newest Member
    Spider2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...