• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Rice Vinegar
0

11 posts in this topic

I have been avoiding sushi since my celiac diagnosis because I heard they put rice vinegar in the rice, and that the rice vinegar can sometimes contain gluten. It seems on these forums, however, that sushi is safe to eat as long as there is not crab, tempura, or other gluten ingredients in the rolls. Can you please offer your advice? I love sushi and it would be a good food to eat out with friends!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I don't want to take the wind out of your sails regarding eating something you really enjoy, but here is my view. I also love Sushi, and I also desperately miss some of the foods I used to have that are gluten-free, but prepared at a non-gluten-free facility or restaurant. I know most servers/cooks/chefs have good intentions, but unless you really know the importance of being gluten-free (and the potential impact of not being gluten-free), there is too high a risk of cc. Think of the sushi chef's preparation area and the number of other rolls he has prepared on that sushi board, or rolled in that bamboo mat, or cut with that sushi knife, or touched with those hands. He may think that 'there is no gluten-containing substance in the roll, and all I did was touch the other roll to put in on a plate before making this gluten-free one. It can't be that big a deal!' Even that unsuspecting server whose hands handled a customer's tea cup (which has a bit of dried sticky "sushi finger prints" on it), who's hands had just been on a tempura roll. And now that server had just used her fingers to stop your roll from almost falling off the plate before serving it to you (and you didn't see this happen).

I could go on, as I'm sure could most celiac victims minds. Maybe I am overly paranoid because I am relatively new to all this (now 3 months on gluten-free diet). As has been stated in other posts, we all have to choose our level of comfort (and the degree of our reaction when we do consume gluten) when it comes to risk-taking, and for me I'd rather give up certain foods and eating food out than risk making my situation worse. Perhaps when I finally start to feel better I will change my view, but I doubt it. When I go out with friends, I will buy a drink, such as juice, that comes in a can or bottle, and bring my own food or eat before-hand.

0

Share this post


Link to post
Share on other sites

I've not had a problem with sushi as long as I avoid things with sauces (like eel), tempura breading, and imitation seafoods, or things that might be flavored with soy like egg nigiri. If in doubt I avoid it, which means I end up ordering only things like veggie rolls or simple fish rolls/nigiri (and man, I wish the eel wasn't always sauced because that was my favorite pre-gluten-free). I bring my own wheat-free soy sauce as well. But like the above poster said, each of us has to determine his or her own comfort level. I enjoy eating out once in a while, and sushi is one of the few things I don't make at home so I'm willing to take a bit of risk. So far it's paid off in my favor. If you can go to a small place at an off time and talk to the waitstaff and/or chef to explain your needs and ask about ingredients, your chances of having a safe meal are much greater.

0

Share this post


Link to post
Share on other sites

I've not had a problem with sushi as long as I avoid things with sauces (like eel), tempura breading, and imitation seafoods, or things that might be flavored with soy like egg nigiri. If in doubt I avoid it, which means I end up ordering only things like veggie rolls or simple fish rolls/nigiri (and man, I wish the eel wasn't always sauced because that was my favorite pre-gluten-free). I bring my own wheat-free soy sauce as well. But like the above poster said, each of us has to determine his or her own comfort level. I enjoy eating out once in a while, and sushi is one of the few things I don't make at home so I'm willing to take a bit of risk. So far it's paid off in my favor. If you can go to a small place at an off time and talk to the waitstaff and/or chef to explain your needs and ask about ingredients, your chances of having a safe meal are much greater.

Eeel is my favorite too.

You CAN ask your server to make a fresh batch of eel without the sauce.

It's been done for me before.

And it's all been okay :)

That being said, I rarely eat out and when I do it's usually Indian because I know it's completely safe except for the breads (unless it's the lentil and rice dosas)

~Allison

0

Share this post


Link to post
Share on other sites

Thanks for you advice. I am only 3 months in too and have already had some cc side effects that have made me a bit paranoid and over-cautious. That being said, I don't want celiac to control my life, so sushi does seem like a good eating out option as long as we are careful. My goal is to be as safe as possible, but at 25 years old I still want to go out with friends and enjoy a bite. So thank you!

0

Share this post


Link to post
Share on other sites
Ads by Google:


I'm just curious about the answer to the original question - is rice vinegar in sushi safe? Or do you ask every time which vinegar they use and check the label? The rice vinegars I've seen in shops were all flavored, not pure. :(

0

Share this post


Link to post
Share on other sites

I'm just curious about the answer to the original question - is rice vinegar in sushi safe? Or do you ask every time which vinegar they use and check the label? The rice vinegars I've seen in shops were all flavored, not pure. :(

I just did a quick Google search and apparently this topic has come up before: http://www.celiac.com/gluten-free/topic/10529-rice-vinegar/

0

Share this post


Link to post
Share on other sites

Rice vinegar itself is safe. Any sort of flavored rice vinegar is well, flavored. Do you know the specific flavoring they used?

0

Share this post


Link to post
Share on other sites

Find a sushi place you trust, and rely on it. Sushi is a safe go-out food for me, because we have a place we know and like. If you stick with the better restaurants, that specialize in sushi, you shouldn't have contamination issues, because, afaik, no GOOD sushi chef, worth the cost of their knife, is going to use contaminated cutting boards for different rolls. But, maybe I've only watched the sushi-snob sushi chefs. ;)

0

Share this post


Link to post
Share on other sites

Sushi and sashimi are the types of restaurants I love to go to because I am so safe eating there. I have not yet had any problems. I pretty much stay to the sashimi (just the raw fish or the sushi that has the raw fish over sticky rice). I can't eat the sesame seeds and the fake crab is a no no. My faves are salmon, red snapper, mackeral, tuna and the salmon roe.. Mmmmmm..

We have a restaurant here in North Dallas that has very yummy sushi and sashimi and all the regular chicken types of dishes that my husband loves. We are both satisfied!

0

Share this post


Link to post
Share on other sites

Seasoned rice vinegar or sushi vinegar is just a mix of rice vinegar, sugar, and salt. It saves a step when you're making sushi rice if you can find one with an amount of sugar and salt you like. No gluten.

I do great eating sushi, as long as I can convince them to leave the stupid fake crab meat out of my food! I've sent back rolls I ordered that were decorated with shreds of fake crab on top. I avoid unagi or other cooked things because of soy sauce and I recently learned here that roe that can be marinated with soy sauce.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,422
    • Total Posts
      930,478
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Love reading this story as it is rare (I think) to find someone else with the swallowing issues!  Hate that this is your experience however!   My daughter also has the swallowing issues and it got so severe (we had no idea about Celiac) that she had to do intensive therapy to learn how to swallow again.  It got better but never resolved.  Once she went gluten-free it got way better though a recent exposure to oats caused it to flare up again.  Do you mind me asking - Has your swallowing issues 100% resolved being gluten-free?  Does it ever actually go away and stay away or will it always pop up from time to time?
    • I will say what everyone else says and get tested again with the endoscope and biopsy to confirm, you will need to be on gluten for 12 weeks for blood test 2 weeks for endoscope at least a slice of bead a day.  The thing about celiac is many symptoms can be quite minor, hell even before I had my MAJOR symptoms show I had some of the other issues show up in my every day life and I just thought it was normal.  Regardless if you keep eating gluten with celiac disease it will slowly eat away at your body internally til it does become a problem. Celiac is a autoimmune disease that reacts to the gluten proteins, and has misdirected attacks on your own body internally by mistake trying to kill the gluten. Now the damage can lead to all kinds of other auto immune diseases, random allergies, food intolerance, and even cancer.   I suggest if you do have it, stay on the gluten-free diet, your just basically changing brands there are many gluten-free food versions of everything now days. Be thankful you got this early, I developed issues with dairy, corn, peanuts, and a whole list of others along with another autoimmune disease Ulcerative Colitis that makes it so I can not eat sugars or carbs or my intestines swell.  Getting on a gluten-free diet before your damage progresses will not only keep you healthier for longer, and let you live a pretty normal life but also save you from this pain and very limited diet if the damage progresses too much. As to your fatigue, you changed over to gluten-free diet, you stopped eating a bunch of the Fortified foods, and depending on the route you took of either whole foods ore more processed foods. You could be eating to many empty carbs, starches, and not enough nutrients. OR if you took the whole foods approach you be lacking in your daily calorie intake or not the right ratio of nutrients. You might have to supplement a few of them.
    • REALLY odd call out here, I am attending a anime convention called A-Fest in Dallas come August, I need someone to split the room with it who is gluten-free. I take extra precautions, I COOK all the food, bring only CERTIFIED foods into the room, The room will be Gluten Free, Corn Free, Dairy Free, Peanut Free. I am trying to find someone to split the room cost with, that would be safe to be around I CAN NOT AFFORD to get sick at one of these things, it is one of my few joys left in life and get very paranoid around them. So I need someone who is also gluten-free to make sure the room stays safe (YES I have done with with a non celiac with the rules down and well stuff happens so not chancing it). Room split is food coverage comes to $400 if it is just two people.  4 day convention, I will arrange a meal plan around your diet as long as it is free of my allergens. I will also provide various snacks, baked goods, and even stuff to take home with you.   https://animefest.org/ ^Convention info.
    • Hi Jennifer, This thread might have some information that would help you.   Your doctors are pretty lame IMHO.  Perhaps you can find a celiac group in your area that has local meetings for support.  They might also suggest a different doctor who knows how to treat celiac patients.  
    • All the above posts are full of good advice. What I'd like to add is, if you have coeliac disease and continue to eat gluten, you run the risk of other autoimmune diseases in the future as well as osteoporosis, malnutrition and even cancer, so even if you had no symptoms at the beginning, and may also not have any symptoms if you eat gluten (not all coeliacs do), the damage is still being done to your gut and the rest of your body, so please be aware of this.
  • Upcoming Events