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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED Bj's Restaurant & Brewhouse
pricklypear1971 replied to MsMarginalized's topic in Gluten-Free Restaurants
Our experiences have always been good. Only once have they been slow, and messed up my order. Luckily it was obvious - sauce all over my salmon and rice. I've eaten there probably 50 times since going gluten-free. I know every location is different, though. -
ARCHIVED New To celiac disease/gluten-free Diet - Hungry!
pricklypear1971 replied to kris10h's topic in Coping with Celiac Disease
I know what you mean. I beg him to make it!!!! -
ARCHIVED gluten-free Hamburger Bun Idea- Think Outside The Bun!
pricklypear1971 replied to LauraTX's topic in Gluten-Free Recipes & Cooking Tips
. I called mine a vicious SOB and tossed it . I admire your success! -
ARCHIVED New To celiac disease/gluten-free Diet - Hungry!
pricklypear1971 replied to kris10h's topic in Coping with Celiac Disease
When my husband does it he adds raw beaten eggs to the steaming hot rice. The hot rice (in the cooker) cooks the egg, and the grains coat evenly. You can buy a sushi press and make mini nuggets, or hand shape into balls, too. And that Bijou dude is yummy. I'd cook with him any day. -
ARCHIVED New To celiac disease/gluten-free Diet - Hungry!
pricklypear1971 replied to kris10h's topic in Coping with Celiac Disease
My husband makes that Hawaiian style - spam instead if bacon . Yum yum! -
ARCHIVED Newbie Feeling Desperate. How Long Before I See Improvement?
pricklypear1971 replied to BeckyB.'s topic in Dermatitis Herpetiformis
I know this is not what you want to hear - because I've been where you are at and it's misery - but everyone is different. Learning gluten-free is a process. So, at two weeks you're probably still getting some gluten, if from nowhere else cc... So, keep working at it. I advise trying low iodine up front, because in my experience it was the trigger that... -
ARCHIVED Food Sensitivity Tied To Hypoglycemia?
pricklypear1971 replied to pghkid33's topic in Related Issues & Disorders
Look what I found. A study about t3/rt3 and insulin resistance. Open Original Shared Link And this is interesting reading about insukin resistance, hypoglycemia, and mentions food allergies. Open Original Shared Link -
ARCHIVED Gurgles, Neck Pain, Headache Ugghh
pricklypear1971 replied to answerseeker's topic in Coping with Celiac Disease
Well, bladder and kidney issues can definitely make you sick and miserable. I hope they figure it out soon, and you feel better. -
ARCHIVED Can We Talk About Iodine?
pricklypear1971 replied to Blaze422's topic in Dermatitis Herpetiformis
I understand your point and had a similar experience with my derm. He suspected dh but when I couldn't cite food reactions he put it aside. He did tell me it was autoimmune (without a doubt), and I would only resolve it by getting to the root of the autoimmunity. When I told him I was going to see an nd who specialized in autoimmune/thyroid because nd's are... -
ARCHIVED I Said I'd Lose The Gluten...not My Appetite!
pricklypear1971 replied to tonalynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You know, I think it's a stage. I've been there. Food, cooking, finding a new great hole-in-the-wall used to e fun. And I was GOOD AT IT. Gluten changed all of that. Suddenly, I couldn't bake my old recipes with predictability and food adventures were focused around not poisoning myself. It's a punch. Eventually, you find your feet again... -
ARCHIVED Celiac Without Many Digestvie Issues?
pricklypear1971 replied to mom2allison's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I never had obvious go symptoms I related to what I are. They were random and far apart - weeks, months. I always thought I was prone to stomach viruses. I had oddball stuff that in retrospect, now makes sense. Anyway, I'm responding to let you low they are not thoroughly screening for Celiac OR thyroid (the TSH and free t4 are thyroid tests). The danger...- 28 replies
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ARCHIVED Can We Talk About Iodine?
pricklypear1971 replied to Blaze422's topic in Dermatitis Herpetiformis
When I first read about dh there was an article about dh and iodine on a reputable Celiac site.... The man had been gluten-free and on dapsone for a year, and had to lower /monitor iodine as well or he'd break out. So, I think your doctor is slightly ill informed on the nuances of dh. I wish i had a link to that for you but I don't.... Anyway, the iodine... -
ARCHIVED Gurgles, Neck Pain, Headache Ugghh
pricklypear1971 replied to answerseeker's topic in Coping with Celiac Disease
I agree, don't just go with the first treatment your doc tosses out. Start with the least invasive approaches, my advice. If they do a laparoscopy they'll probably try to remove what they can during the procedure. -
ARCHIVED gluten-free Hamburger Bun Idea- Think Outside The Bun!
pricklypear1971 replied to LauraTX's topic in Gluten-Free Recipes & Cooking Tips
You are the smart one. Stick to that one. -
ARCHIVED Gurgles, Neck Pain, Headache Ugghh
pricklypear1971 replied to answerseeker's topic in Coping with Celiac Disease
In my experience, yes it could. The endometrial tissue can grow outside the uterus. They find it in odd places. Women have said they'd take childbirth over Endo. And quite frankly, reflecting on three days of labor....I see similarities. -
ARCHIVED Can We Talk About Iodine?
pricklypear1971 replied to Blaze422's topic in Dermatitis Herpetiformis
Clear, painless skin is exhilarating. It's amazing how it just disappears. -
ARCHIVED Gurgles, Neck Pain, Headache Ugghh
pricklypear1971 replied to answerseeker's topic in Coping with Celiac Disease
Not very efficiently, unless things have changed. The best defense seems to be to suppress estrogen-so, bcp's or progesterone cream. They do have procedures to remove adhesions, but I think they generally grow back. I think it depends on degree, location and individual response. You need a laparoscopy to dx it, most times. I certainly hope you don... -
ARCHIVED gluten-free Hamburger Bun Idea- Think Outside The Bun!
pricklypear1971 replied to LauraTX's topic in Gluten-Free Recipes & Cooking Tips
I mentioned another mandoline once and my husband yelled at me in public. Told everyone in the store I chopped the tip of my finger off and ruined his golf game. He had told me, at first sight, that I'd chop my finger off and I told him I wouldn't, if course.... I'm worse than Lucy...I'm a Stooge. -
ARCHIVED Can We Talk About Iodine?
pricklypear1971 replied to Blaze422's topic in Dermatitis Herpetiformis
Low sal and low iodine and gluten free made me a very irritable girl. I DREAMED of shrimp. You could have tortured me with shrimp. First time I aye two and didn't itch I was high as a kite. I am extremely thankful now that when I break out the rash is minuscule (it may cover some geography but the lesions are so tiny you'd think they're goosebumps) I... -
ARCHIVED Gurgles, Neck Pain, Headache Ugghh
pricklypear1971 replied to answerseeker's topic in Coping with Celiac Disease
Do they think you have an infection or are they just not saying? -
ARCHIVED Gurgles, Neck Pain, Headache Ugghh
pricklypear1971 replied to answerseeker's topic in Coping with Celiac Disease
When I was in extreme pain from the supposed Endo, I'd tense my body up. It was so painful, I just wanted to scream. And it wasn't isolated to any one time of the month....and I was left spent and totally exhausted after an episode. I was stuck between being hungry and wanting to vomit sometimes. I just wanted someone to knock me the hell out. -
ARCHIVED Cold And Flu Season - What's Your Remedy?
pricklypear1971 replied to pricklypear1971's topic in Gluten-Free Foods, Products, Shopping & Medications
I discovered Umcka this year. Pretty sure it worked.... Best bet is still the Neti Pot and sleep and Tylenol, for me. -
ARCHIVED Advil Liqui-Gels Contain Gluten!
pricklypear1971 replied to zeeclass6's topic in Gluten-Free Foods, Products, Shopping & Medications
Do does Costco, I believe - gluten-free ibuprofen. I'm out, but pretty sure it says gluten-free. Kroger brand says gluten-free. Ask Bartfull about corn free options. -
ARCHIVED Venting About Lazy In-Laws
pricklypear1971 replied to ljgs's topic in Parents, Friends and Loved Ones of Celiacs
My parents try to help me be gluten-free....they'll buy stuff but I tell them to buy just x,y, z and I'll buy the rest. It's so hard to tell my mom which brands to buy when regionally they're so different. Anyway, first year was ok there. Second year, I got long slow cc from crumbs in drawers, dishwasher, etc. Next year I'll have to be much more careful... -
ARCHIVED Food Sensitivity Tied To Hypoglycemia?
pricklypear1971 replied to pghkid33's topic in Related Issues & Disorders
Thyroid is tied to anxiety, as well as celiac. It can also cause stomach upset.... I don't think anyone ever WANTS a colonoscopy .