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pricklypear1971

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Latest Celiac Disease News & Research:

Everything posted by pricklypear1971

  1. pricklypear1971
    Karen, I do have labs. They even came from certified mainstream labs. I have a few witchy labs, too.... They're cross verified with mainstream labs. I don't have to prove a thing to you.
  2. pricklypear1971
    Thal can go the other way. You can have high rbc, low almost everything else and good or high iron. If a doc runs a "basic" cbc s/he may assume you are anemic, when you really are overloaded or fine on iron. My son is fine, my husband is overloaded. Life just got interesting around here.
  3. pricklypear1971
    I don't care what it's called. You can call it When Pigs Fly Up Your Butt. Whatever. I worry about cause and effect for my treatment. My experience runs along the lines of a hypo thyroid/underperforming endocrine system state changing to a steroid induced hyper adrenal state - my symptoms were Cushings-esque, coupled with unaddressed and untreated Celiac...
  4. pricklypear1971
    Did they test thyroglobulin or TPOAb? Thyroglobulin is not used to dx Hashis.... Open Original Shared Link The TPOab is used to dx Hashis Hypothyroidism. Open Original Shared Link You need to understand if they ran the correct thyroid antibody test. You can have inflammation from ANY autoimmune disease. Since you know you are hypothyroid, I'd pursue...
  5. pricklypear1971
    MD's don't say 'adrenal fatigue', they say something like 'temporary overstimulation' or 'not functioning as well as it could, but nothing to worry about'. Or 'temporary side effect of x med or condition'. Then they shove another med down your throat or say "everything looks normal, go see a shrink". I will not argue that some alternative docs are wack...
  6. pricklypear1971
    Karen, I assure you that many of us, especially with thyroid conditions, have overtaxed adrenals. I didn't believe it either....but I'll be damned, the support stuff I do and the supplaments I take DO make a difference. Now, do they make a difference because "stuff" is off - hormones, glucose, thyroid, etc. Yes. But while you work on those things (and sometimes...
  7. pricklypear1971
    If you are diagnosed with dh, you have been diagnosed with celiac disease. If your stomach gets upset from eating spicy foods - peppers - you may gave a capsicum intolerance.
  8. pricklypear1971
    I take oral dhea - a very low dose. Much lower than most supplament strengths you see at health found stores. I use progesterone cream half the month. I take adrenal cortex - two big pills. Timing depends on how my cortisol runs...when it peaks. One of the biggest factors for better adrenal performance for me is a minimum level of t3, along with a good...
  9. pricklypear1971
    You can take liquid d3, which may be more easily absorbed if you have low stomach acid or celiac.
  10. pricklypear1971
    You can order tests online (they send you the order, you go to lab for draw)...same labs doctors use. You pay cash but it's an option. Yeah. New doctor.
  11. pricklypear1971
    TSH is useless for thyroid diagnosis and treatment , apparently, in your case. You need free t3, free t4, reverse t3 labs. And run ALL thyroid antibodies, again. How are your vitamin levels? If you are low in iron, b's, d3, selenium, chromium your thyroid may be underperforming because of deficiencies. Deficiencies go with celiac and thyroid....they say...
  12. pricklypear1971
    Avocados: guacamole, etc. Bake with nut flours and coconut.
  13. pricklypear1971
    Try the Van's cheese cracker. Look like Cheezits-taste like goldfish.
  14. pricklypear1971
    Cytomel is synthetic t3, Levothyroxine is synthetic t4. And yes, some people need quite a bit if t3 if they don't convert t4.
  15. pricklypear1971
    I have issues raising my iron, also. I didn't know this, but tea and coffee (without milk) can interfere with iron absorption when ingested within an hour or so around a meal/supplament. I started taking my iron last thing at night (stomach is almost always empty) with a small amount of oj or lemonade. I hope it's helping. Oddly enough, I am getting...
  16. pricklypear1971
    He wouldn't be the first to get whammied by pet food. I'd put the pets on gluten-free food.
  17. pricklypear1971
    I found Maseca at a store here...I see a "gluten free food" label on it but not a certification or line declaration. Did you call them? Anyway, I'm happy to hear others are having success with it. I don't cook my tortillas on cast iron - I have this huge flat skillet that is perfect for tortillas and pancakes and such. I think it's anodized?? I agree nonstick...
  18. pricklypear1971
    If the house of gluten-free except for takeout pizza, etcetera you should look into if people are bringing in gluten foods on the sly. My son does it (did it?). He'll shove half eaten bags on gluteny pretzels on his backpack (backpack goes on kitchen table, homework and crumbs pulled out together) or bring gluteny candy in the house and dump wrappers all...
  19. pricklypear1971
    It's so refreshing and reassuring to find yet another physician so poorly informed about Celiac Disease, NCGS, and the spectrum of autoimmune inflammatory diseases that can be helped by eating gluten-free. Especially interesting coming from a cardiologist. You'd think he'd read some research on heart disease, inflammation, and the effects of diet on inflammation...
  20. pricklypear1971
    Vitamin deficiencies would be consistent across both celiac and Hashis/hypothyroidism. You need proper amounts of iron, d, b's, selenium, chromium to utilize thyroid meds and/or convert thyroid hormones.
  21. pricklypear1971
    Yes, a dishwasher (or dishwater, depending on what, how) can gluten you. We have very hard water and a relatively new dishwasher. We struggle to keep the buildup out - and a good coating of gluteny delivery pizza (no cooking in my house) got me via the dishwasher. As I've become more sensitive I've learned I can't put gluteny dishes in the dishwasher that...
  22. pricklypear1971
    They classify MS as an autoimmune disease. I wonder if the meds used will affect Celiac testing. As an example, steroid use can cause false negatives in celiac testing. As NoGkutenCooties stated above, NCGS is an explanation - and there aren't any tests other than a gluten-free trial. I guess the questions is - why does your doctor think this? Have you...
  23. pricklypear1971
    Too bad they didn't make gluten-free thin mints. No one out there has a version...everybody has chocolate chip.
  24. pricklypear1971
    I've found all locations are different. One I ate at regularly is awesome. No touching spoons to tortillas, always change out everything, pull new bins....never been cc'd. Another is okay...I think they could handle the spoons to tortillas better but I've never been got. A third one - holy Jesus. Bean (on flour tortilla) juice dripping back into the bean...
  25. pricklypear1971
    If you want thin-mints...try an almond or coconut based one. I *think* Elana's pantry has a recipe. I've been too chicken to try (I have mint flavoring issues) but I may since I've had luck recently with an organic mint extract. I'll probably get violent d, but what the hell.
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