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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    Your doctor is a thyroid idiot. Your body converts inactive t4 to the active t3. If you don't have t4 to make t3, or if the process is broken...you have a thyroid problem. TSH is a measure if pituitary feedback. This link will explain the basics of why it generally sucks as a diagnostic tool. Yeah, there's quite a bit to raise your eyebrows about STTM...
  2. pricklypear1971
    Spend the $ on a good, quality mandolins with a stable base and NEVER use your fingers to hold the item you're slicing. Yeah. Sliced the tip of my finger off cause I'm an idiot. They glued it back (wanted to stitch it but I said nasty mean things). Took years for the nerves to feel semi normal.
  3. pricklypear1971
    Ten years ago, Endo was referred to do frequently as an autoimmune disease. Now, I read they don't know if it's ai or not. So, who knows. But it sucks. They think I have it. Was set up for the scan, etc. by a fertility doc for dx but I finally got pregnant....and pregnancy seemed to put mine into remission.....so, I've treaded with care and aside from...
  4. pricklypear1971
    You should probably read the thyca.org low iodine guidelines. The guidelines are for people undergoing thyroid radiation therapy, who must follow a two week low iodine diet. The guidelines are pretty good. Open Original Shared Link The silk milk contains sea salt - which will have varying degrees of iodine. You may call to ensure it isn't iodized...
  5. pricklypear1971
    One thing I'd try to find out is if the kids wash up before/after eating. AND, how do they clean surfaces? Is it a bleach solution/water (which probably does zero to remove gluten) or is it soap/water (which will)? It's a tough situation, and I understand your concern. Personally, if they institute a wash hands before/after policy and no snacks dragged...
  6. pricklypear1971
    I had been clear almost 2 months, then went iodine crazy at thanksgiving the first year (about 5 months gluten-free, 2 months LI). New breakout. Not as bad, but bad enough to not eat leftovers and go LI for a week. Again. Iodine makes the gluten antibodies angry - makes the rash flare. I don't know the scientific interaction. Gluten antibodies cause dh...
  7. pricklypear1971
    And as a tip, I've noticed quite a few Kirkland pharmacy products are labeled to say if they are gluten free. So, if it doesn't....good hint it isn't.
  8. pricklypear1971
    I'd have a typical two week flare. Meaning it flared up and went down within two weeks. Seaweed, asparagus and potatoes got me. Geez, the seaweed....
  9. pricklypear1971
    TSH is diagnostically meaningless in most cases. Run free t3/t4 and reverse t3 as well as antibodies. You need to get rid if cross contamination in your house and kitchen.
  10. pricklypear1971
    Look, autoimmune diseases are the great unequalizers. They tax your whole body. Yes, very good chance your hormones are less than optimal. Yes, you can take hormones. What you need to look at are nutritional deficiencies, key hormone levels, and adrenal health. Improve those and your hormones may self regulate. I use natural progesterone cream - it...
  11. pricklypear1971
    Excellent news!
  12. pricklypear1971
    For me, it made the rash flare. It didn't increase gluten antibodies, but it made the rash angry... Iodine was like water on a grease fire. Not all salt is iodized. If you are interested in testing iodine I'd try something direct - like a bite of seaweed. Or, a bit of iodized salt in a dish. Or, research the salty foods that make you itch and find out...
  13. pricklypear1971
    For those of you suffering from mast cell skin issues, this cream may help. Open Original Shared Link I used it on my dh and it helped just a bit, at certain points, but sounds like it should help you more.
  14. pricklypear1971
    Yes. Someone else posted here within the last six months with an eerily similar story. Search and you may find it. But the bigger picture is why this is happening. You need to read about how to manage hypoglycemia and see what works for you. On top of that, I advise having your thyroid screened for autoimmune thyroid disease paying particular attention...
  15. pricklypear1971
    Try it and see? Everyone reacts so differently.... Alcohol is one if those things they say to drop for healing, so whatever that's worth. During healing I had my legendary wine tasting fiasco, so I voluntarily took myself off for quite a few months. Had no desire to repeat that experience, plus the thought just turned me green. And gut permeability seems...
  16. pricklypear1971
    There are some ready-made, raw corn tortillas in stores, here. Not every store carries them. I bought them once, and we only ate a few (have no idea why...). They were good but we just don't eat them regularly enough in volume to go through the effort. I do think they marked them gluten-free. Next time I see them I'll write down the brand.
  17. pricklypear1971
    Look, I agree you need to clean up your kitchen. Put your foot down. Seriously. Cleaning up your food and kitchen is a heck of a lot easier than zillions of tests and continued pain and complications from gluten exposure. Second, get ahold if your thyroid tests. Are they running just TSH or did they run free t3/freet4? I know you have other ai involvement...
  18. pricklypear1971
    It does take time to figure out YOUR reactions. And then they can change... I have a rule that once means watch it, twice is probably gluten, and a third time I don't want to duplicate. But it's difficult to be able to narrow down and isolate one food....especially in the beginning. If you keep reacting to random foods you may benefit from an elimination...
  19. pricklypear1971
    Well, it seems you doubt your dx. If you've been eating gluten for three years while on dapsone you could go in for Celiac antibody testing. You could also try a dh punch biopsy, if you haven't been on steroids. I have no idea if dapsone affects biopsy results...you'd have to ask your derm. One week off gluten probably won't change things, but I probably...
  20. pricklypear1971
    Just try to chop the fresh fruit super-finely and drain it very well. Try increasing baking time and thoroughly cool before eating. Most gluten-free baked goods need to "set" as they cool, I've found.
  21. pricklypear1971
    You can get a decent rise out of some recipes without gums if you use fresh buttermilk. I do pancakes and cornbread without it. Though, using Jules flour makes awesome cornbread.... I ironically had hideous luck with jules flour and my old gluteny pancake recipe (using buttermilk). I think the buttermilk was too much of a thickener...next time I...
  22. pricklypear1971
    gluten-free baking is odd, because so much depends on your flour blend. The fresh, juicy mango may be too wet for that flour mix or recipe. Try dried mango, drained (for an hour+) mango, or baking longer or at a higher temperature.
  23. pricklypear1971
    We've all done it. Sorry. It sucks. Hope you feel better soon!
  24. pricklypear1971
    Prepackaged sushi, a Subway sandwich, delivery pizza....my guys think it's worth the soap/water/paper towel Gluten Police. Anything else - gluteny hamburger buns for homemade burgers (so whole kitchen and dining room can get cc'd, as well as condiments etc.) they have decided not worth it. Evidently I'm mean. I'm meaner if I glutened, though. You...
  25. pricklypear1971
    I didn't mean to imply you're being medically cruel to your daughter...they (medical community) thought celiac was a childhood disease that kids outgrow....and some docs (rare) still think that, and tell their patients the same. Anyway, my take on gluten in the house is that if you have it there will inevitably be contamination issues. I allow a few processed...
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