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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED One Advantage Of Celiac, No Need To Shave Legs
pricklypear1971 replied to 1desperateladysaved's topic in Related Issues & Disorders
If I take my one zillion vitamins I have lots of leg hair. If I don't, less leg hair. Then again, I've never been short on leg hair.... -
ARCHIVED Need Help With Tests Results Please
pricklypear1971 replied to powerofpositivethinking's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Okay, I tried to read the whole thread but admit skimming. Did you ever get a thorough thyroid panel? Because the only free t3 I saw was below the mid-mark, which can indicate you do have a thyroid issue (I don't give a flying flip what your doctor said). Part of that can be cause/effect of d3. Complicated. But did you ever get antibodies and free t3/freet... -
ARCHIVED Titer Test And Celiac Disease Ige Response
pricklypear1971 replied to Celiac Ninja's topic in Related Issues & Disorders
Have you tried contacting the University of Chicago Celiac Center via email with your questions? They may be able to point you to an expert who has death with this. -
ARCHIVED Bulk Bins And Gluten Cc
pricklypear1971 replied to spirit-walk's topic in Coping with Celiac Disease
No way I'd buy out of a bin. I get quite a few from Trader Joes. Lots of people order from Nuts.com. -
ARCHIVED Diagnosis
pricklypear1971 replied to racheltom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It sounds like your doctor is on the right track wanting to do an endoscopy. As far as bloodwork goes, if she has low levels of iga and is iga deficient that's an indicator of Celiac disease. Igg versions of the tests should be run. If she's "low positive" on iga celiac tests that's also an indicator or celiac disease. I'm not sure which one you meant... -
ARCHIVED Newbie Questions About Whisky
pricklypear1971 replied to KCG91's topic in Gluten-Free Foods, Products, Shopping & Medications
Some distilled liquors from glutenous grains used to give me headaches. Now, not so much. Cheap brandy still kills me. I generally stick with non glutenous derived, better quality liquor and drink them straight up. Bourbon (the exception - Woodford Reserve, Bulleit), vodka (Tito's, Ciroq, etc.), tequila, rum. Wine is fine, as is gluten-free beer. English... -
ARCHIVED Hip Pain At 23..help
pricklypear1971 replied to Laurenskii's topic in Related Issues & Disorders
I'm one that feels better after a glutening if I exercise. It's like it burns it out or something. Anyway, sometimes gkuten can cause muscle cramps and hip flexors can cramp up. After I was gluten-free a while, and started working out, my hip pain went away. I think because I was moving and stretching. You may also have soft tissue issues thanks to autoimmunity... -
ARCHIVED Is Gas-X Safe/
pricklypear1971 replied to CynthiaSt's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Okay, in what form are you eating nuts and seeds? Butters/spreads? Have you tried almond milk? Also, you can make almond or rice milk at home (and I assume control the added sugar). Have you tried almond or coconut flours? A few bites of a basic scone or muffin (flour, soda, sweetener - fruit?, egg) is fibrous and high protein. I swear flours are easier... -
ARCHIVED Hazelnut Flour Vs Almond Flour
pricklypear1971 replied to squirmingitch's topic in Gluten-Free Recipes & Cooking Tips
I have no idea, but what you need to be concerned about is the grind on top of mixing them. If one is coarse and the other fine...that can be an issue. I don't know how those flours absorb liquids/fats differently or brown. You can try it, just don't get discouraged if it doesn't work. -
ARCHIVED Is Gas-X Safe/
pricklypear1971 replied to CynthiaSt's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When you eat veggies, do you cook them down? I mean cook them for hours? Like in a gumbo or stew or crockpot? I'd also seperate veggies and fruits into classes - leafy greens, cruciferous, night shades and try them by category. That can clue you in to class intolerances. There is a list of gluten free medications: Open Original Shared Link -
ARCHIVED One Year In With Celiac 8-Yo Daughter. Feeling So Sad.
pricklypear1971 replied to ViennaGirl's topic in Coping with Celiac Disease
You're right. It is a PITA to always have to plan and cook and pack. It's like having a permanent baby with you (gluten-free being the baby). It dies get easier because you learn more restaurants, get more comfortable, etc. but yeah, sometimes it completely annoying and boring. The payback is the lack of illness, of which we sometimes must remind... -
ARCHIVED Creating A Gluten Free Kitchen
pricklypear1971 replied to c.anne's topic in Gluten-Free Recipes & Cooking Tips
I'm pretty sure this is covered on the newbie 101 thread along with other valuable tidbits. -
ARCHIVED Aricept For Celiac-Induced Neuro Symptoms?
pricklypear1971 replied to Integrous's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have they run vitamin panels on you? Even "low normal" levels can cause deficiency symptoms. Look for a well rounded, basic LIQUID multivitamin. You may be extremely surprised how much it helps. Also, if you're deficient in a particular vitamin/mineral you'll probably need higher doses to replenish stores. Again, liquid if possible. I'm sure IH will chime... -
23 And My Body Is Decomposing
pricklypear1971 replied to BlahSoDepressing's topic in Dermatitis Herpetiformis
I understand. I really hate them, too. My body did NOT like them. I really don't know anything about eczema, except it IS an autoimmune disease. Here's a link about eczema and celiac http://celiacdisease.about.com/od/commoncomplicationsofcd/a/Can-Eating-Gluten-Free-Help-With-Your-Eczema-Treatment.htm Just out of curiosity, you may try this cream. http... -
ARCHIVED Is It Safe To Drink Green Tea?
pricklypear1971 replied to CynthiaSt's topic in Related Issues & Disorders
Everyone has different things that set you off. I never moderated my caffeine. I admit it. I don't overdo it, generally so whatever I want I eat/drink. Sleep/gluten/stress/nutrients/eating on time were (are) bigger issues for me. You can probably find decaf green tea. -
ARCHIVED Favorite gluten-free Cracker?
pricklypear1971 replied to Rosiesallergies's topic in Gluten-Free Foods, Products, Shopping & Medications
I know. The van's cheese crackers taste like goldfish and the gluten-free goldfish taste like Cheetos. Funny. -
ARCHIVED Heartburn That Looks/feels Like Heartattack
pricklypear1971 replied to surviormom's topic in Coping with Celiac Disease
It sounds like when you get up and move around it helps. When I've had stuff like that happen, moving helps move the built up gas around....which feels better. It can be incredibly painful and surprising. -
ARCHIVED How Do You Deal With The "haters"?
pricklypear1971 replied to Glittersmith's topic in Coping with Celiac Disease
I admit, I've felt particularly angry before, and did a good job of convincing someone she had Celiac Disease. Because she'd just DIE without bread. It was like talking about the monster in the closet to a kid. Cruel, but I did it. I admit it. She'd move on to another problem soon...I don't worry about it. Gave her something to talk about. One of those... -
ARCHIVED Favorite gluten-free Cracker?
pricklypear1971 replied to Rosiesallergies's topic in Gluten-Free Foods, Products, Shopping & Medications
Mary's Gone Crackers? Pretty good. I love the Van's cheese cracker - tastes like goldfish!!!! Hubs and kid (ge's) eat them. Crunch master Italian cheese is pretty good. I like the Diamond Almond crackers - sea salt. Found a "water cracker" at whole foods that was wonderfully flat and crunchy for cheeses. Of course, cant remember the name... -
ARCHIVED Looking For Feedback On A New Gluten Free Product Idea
pricklypear1971 replied to NewUser's topic in Gluten-Free Foods, Products, Shopping & Medications
Put it together as a travel pack. It can pack down to a mailable box (one of the USPS boxes) or reduced ups shipping. Put other things in it we need when traveling. -
ARCHIVED Anybody Else Have Fruity Pebbles Issues?
pricklypear1971 replied to KristinIrwin's topic in Gluten-Free Foods, Products, Shopping & Medications
I buy them for my son (not gluten-free) and all I can tell you is the things are like glue. There may not be gluten in them, but wow they're sticky. Like scraping glue off a bowl. Don't let them dry in the bowl (or soak it to loosen). He also eats cocoa pebbles (gluten-free). Not as sticky, milder glue? -
ARCHIVED Skin Biopsy For Dh
pricklypear1971 replied to answerseeker's topic in Dermatitis Herpetiformis
NO!!! The biopsy needs to done while she's eating gluten (now), and when she isn't on steroid creams/oral med (if she is...). The biopsy is a punch biopsy taken next to a lesion. It is dyed and the lab tech looks for an iga pattern - iga is the antibody celiacs produce in response to gluten. So gluten is necessary for an accurate biopsy and accurate bloodwork... -
ARCHIVED Shakes/supplements To Gain Weight
pricklypear1971 replied to Christine0125's topic in Parents, Friends and Loved Ones of Celiacs
I suggest Elana's Pantry blog and cookbooks.