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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    I've been reading this thread, determined not to get embroiled (other than my original response)... But I do feel the need to add this. The odds that a pill (or shot or whatever) will be developed that "fixes everything" involved in Celiac disease or autoimmune diseases (that's a big pot of diseases right there) is pretty slim. Not impossible, just pretty...
  2. pricklypear1971
    Are you baking from a mix or recipe? In the beginning I found mixes easier and I learned a lot by trying different ones. Also, I found gluten-free bread bakes better in small loaf pans - instead of one big loaf I made 3-4. It rises better and improved texture, IMO. I'm one of those that opted for less bread, to be honest. I just couldn't get along...
  3. pricklypear1971
    Everything you've described can be caused by both food intolerances or an autoimmune disease. Celiac is both... Hypothyroidism will cause bathroom issues as well, leading to hemerroids. Hyperthyroidism could also cause issues, I am not as familiar with them as I am not hyper. In short, get your labs. If the right ones haven't been done, get them.
  4. pricklypear1971
    Okay, I must honestly say I'd never eat that..... I assume something us added to it to make it gelatinous? If so I wouldn't use that. You want one ingredient when you test. Powdered wheat gluten or flour, that's my advice.
  5. pricklypear1971
    If the hot dogs (that say they are gluten-free??) tasted off, perhaps they were? Was the date ok? Had they been stored at the wrong temp at the store, etc.? Did anyone else get sick? Sorry you're sick, it's truly awful to be that ill. Probiotics, digestive enzymes when/if you eat, and your favorite safe foods and liqiids...that's my advice. If its food...
  6. pricklypear1971
    I have no freaking idea what that is or if you're serious, but if you are serious...you can buy powdered vital wheat gluten at most grocery stores. Or just use wheat flour...
  7. pricklypear1971
    Go buy some barley, cook it and eat it. Wait a few days. Go buy some wheat gluten and choke it down or shove it in a pill casing. Wait a few days. Ditto for rye flour. Done.
  8. pricklypear1971
    I am not familiar with the effects of Celiac disease on menopause; however, I am quite familiar with the negative effects autoimmune disease has on the hormonal and adrenal systems. As my ND explains it, autoimmune diseases stress the body (thus the adrenals). Since the adrenals do part if the hormone balancing before menopause (and almost all after), supporting...
  9. pricklypear1971
    First, pack your own food - a complete meal that's just enough for you. Start shopping for a lunch kit you like - little containers, ice pack, etc. Second, I wouldn't trust the meat in that situation. Too much opportunity for spoons/forks to cc IF it isn't already cc'd at the restaurant or seasoned with gluten. Third, if you have your own food you will...
  10. pricklypear1971
    You know, many people have reactions to certain beers (usually grouped by manufacturer or yeast strain) and don't have gluten issues. My husband can drink Stella and swell up, get a headache....drink Smithwick's and all is great with the world. Not saying it isn't worth experimenting with, but if its isolated to beer you may try playing with yeast/additives...
  11. pricklypear1971
    I have joint popping. My massage therapist (who is very good) told me I have loose ligaments and tight tendons and am hyper mobile. In short, autoimmune disease attacks the soft tissues, causing damage. It's easy to strain a ligament/tendon. I've done it. She says the popping is when a ligament (or is it tendon) has a problem passing through an opening...
  12. pricklypear1971
    Those tests are repetitive. Try this link for info about constructing a full panel: Open Original Shared Link I'd put one together that includes free t3/t4, total t3/t4, antibodies, and tsh. You also need to test your iron (ferritin and saturation Open Original Shared Link), d, b's. some would include calcium and magnesium. Here's a link about ordering...
  13. pricklypear1971
    Okay, like squirmy said, breathe. First, lack of nutrients could be causing the poor hair growth. That said, I reco a thorough thyroid work up including antibodies. You are autoimmune and thyroid is an obvious thing to watch. Second, as squirmy said, you may not flare like this for two years. I have flared but they are a FRACTION of what they were - quite...
  14. pricklypear1971
    Okay, back up. I didn't say treating Celiac can lead to cancer. What I said is there's a post somewhere on this forum from a cancer patient whose oncologist told her that increased nutrition benefits the cancer cells as well as the rest of the patient. I did reply to the reply, above, but the forum ate it... You can't selectively activate Celiac....
  15. pricklypear1971
    Okay, I swear somewhere on here in a comment from someone who had cancer, that a doctor told the patient there was a negative side to treated Celiac re: cancer, and it had to do with nutrition boosting the cancer growth. No, I'll never find it - it was 2 years ago...search away.
  16. pricklypear1971
    My primary site was under my arms, around my arm pits - at it's worst it almost covered my pits but generally it was like a reverse bullseye. I got it on my neck, face, abdomen, a bit on my arms and legs, and it started down my butt crack - that was a truly surreal experience, let me tell ya. As far as iodine goes milk and butter were never big triggers...
  17. pricklypear1971
    I've had good luck with Wilton products. I haven't purchased piping since going gluten-free, but I've used their fondant and colorings. They are made in a shared facility, but most things are...
  18. pricklypear1971
    I wish the testing rate was as high for patients with ANY autoimmune disease, as it is for T1D.
  19. pricklypear1971
    That's hilarious. I *think* I've tried Betty Crocker??? I did recently try KA gluten-free brownies and they were pretty dang good for a box mix.
  20. pricklypear1971
    I'm sorry. Anything to break the cycle...exercise, a massage, a drink...??? I hate it when a gluten symptom like that happens...something so weird and unpredictable and disruptive. Ugh.
  21. pricklypear1971
    Oh wow. Yeah. What Squirmy said. Your rash could be my rash. Squirmy has seen the pics. My advice is to continue to gluten-free - you'll get better as you go. Definitely add the low iodine to it for a few weeks - see what happens. Ensure your supplements don't have iodine added (seaweed, carrageenan, etc).. It's late and I've got a whiny kid. Ask more...
  22. pricklypear1971
    We were in FL and I hoped to find a gluten-free Dunkin'..but no luck. I guess they are still rollin' 'em out. Too bad hubs isn't headed to Boston. Dangit!
  23. pricklypear1971
    That's great news, that you've found a doctor to work with. I had what they thought was a yeast rash on my chest after mastitis. I was on multiple rounds of diflucan to no resolution...rash went away immediately when my milk dried up (9 months). Obviously, a hormonal element to it. I've wondered many times the rash was related to gluten. I have had...
  24. pricklypear1971
    I would contact the University of Chicago Celiac Center. They are known for their online communication and resources.
  25. pricklypear1971
    You can't ever assume something is gluten free. This is the sucky thing about eating gluten-free: spontenaity goes out the window. You will compile a list of safe junk foods after a while - snickers, sodas, etc. but don't EVER assume something is gluten-free. You must always KNOW. If you can't read the ingredients or get confirmation do NOT put it in your...
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