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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    Ligament/soft tissue issues are a side effect of autoimmune disease, according to my doctor. I take a skew of supplaments, but her perspective is addressing autoimmune response is the best fix/stopper. For me, that means my effing thyroid (in addition to Celiac). I am under strict orders not to exercise more than every other day, and my massage therapist...
  2. pricklypear1971
    I think it comes down to flour blend and technique. I made some using Jules' flour and it was by far the best. That said - it will never be gluteny French bread. I just don't try, don't worry about it. I prefer to eat/bake other breads that are different so I don't try to compare. I have a strange attachment to Chebe rolls.
  3. pricklypear1971
    No, gluten is the culprit. Stress is an exacibator. I know the two are almost impossible to seperate (especially in the beginning)...but it's true. I know it's hard to have faith (so to speak) that the dh will eventually clear, but if it's dh and you follow a gluten-free diet (modified to avoid anything else you're intolerant to) it will eventually go away...
  4. pricklypear1971
    To echo what Nikki said.... My son (11), who is not celiac (but may be one day) and may be ncgi, went with me to a gluten-free restaurant. He was totally psyched that he could eat anything in there and it was gluten-free and safe. What he REALLY liked, that I had no clue was an issue is that he could SHARE with me - that he wouldn't contaminate me or...
  5. pricklypear1971
    Squirmy is right, you can't rush healing. But you can screw it up - stay out of the bleach. Look, I know how desperate and adrift you feel. We all do. We've been there. But the best advice is to keep it simple. I ignored sage advice and tried too many things at once...and that was bad because a body under stress can only handle so much - even a good...
  6. pricklypear1971
    From what I've read about activated charcoal it binds everything...which is why some people use it after a glutening to relieve symptoms. I doubt it's a good idea to take it on a regular basis if you already have nutrient absorption issues. I understand you're trying to relieve distress, but from what I've read, charcoal probably isn't a long term solution...
  7. pricklypear1971
    I found I needed to keep mine well moisturized. If they dried out, they'd crack and bleed. That said, my rash created a blanket effect...and individual sores may vary. I used Vanicream and Vaseline. I also packed clean washcloths under my arms at night during the weeping hours (my blisters would swell and pop nightly), then pack ice packs on them after...
  8. pricklypear1971
    OMG yes. Me. My autoimmune stuff cycles. One reason I never correlated it with what I ate. Yes, full antibody panels NOW. Make sure they do celiac biopsies, not just a look.
  9. pricklypear1971
    There are celiac support groups, specifically for kids. You could both use the resources. Open Original Shared Link
  10. pricklypear1971
    Ditto what Squirmy said. And when I first started reading about dh, I read about a man who was on it for over a year and had breakouts regularly, even with gluten-free, LI, etc. Sometimes dh is a tough nut to crack. My experience was that iodine had a particular frenzying effect, as did anything that "set me off" - some sals, some histamines....what I would...
  11. pricklypear1971
    I have dishwasher issues. I didn't in the beginning, but I get a slow cc effect - takes a few weeks. My solution, since there's very little gluten in my house, is to hand wash those few gluten items with soap and disposable towel...then stick in dishwasher. I also have hard water, and we are constantly cleaning residue from out of the dishwasher...
  12. pricklypear1971
    Sorry to tell you this, but you were not adequately tested for thyroid disease. Your doctor did not run free t3 or reverse t3. T3 is made from converting t4...but if your thyroid isn't working properly, well, chances are it won't be converting properly. So, next time add free t3, and reverse t3. If reverse t3 is high, that's another sign your body isn't utilizing...
  13. pricklypear1971
    TH, I'm glad you've identified the problem. Phew, long road.
  14. pricklypear1971
    I'm sorry this is happening. When you say sub clinical hypo...are you being treated with thyroid meds t3/t4 ? Many, many symptoms if thyroid disease overlap with Celiac. And, if they are only using your TSH to dx your thyroid, free t3/t4 tests may reveal more. I would find a good thyroid doc to address these issues along with celiac disease. I would also...
  15. pricklypear1971
    I use TJ's cocoa and have used it for years. No problem. My glass bakeware was in pretty good condition, and I didn't have much. I kept most of my metal bakeware and since I line pans for gluten-free cooking (so they won't stick) I continu to use them. I did break down and buy a new bundt pan, and springform pans. No lining there and they were pitiful...
  16. pricklypear1971
    I've found (if gluten is eaten and dishes are involved) I have to wash with soap/water/disposable towel THEN put in dishwasher. Dishwasher glutened me. Yes, we run that cleaner stuff through it.
  17. pricklypear1971
    When my dh started it wasn't bilateral and it didn't itch. It also looked like scabies, especially when treated with steroids. The first few breakouts weren't very itchy (I'd say 3-4), but they escalated. I was using a minuscule amount of steroid cream - less than what covered a qtip - and it affected the rash. Your mileage and effect may vary. Iodine...
  18. pricklypear1971
    Hey Abby, sorry I wasn't around. If you need me just pm me! Glad things are getting better. Dh is a weird combo of "one day at a time" and "reassess in two weeks". And sometimes it takes others telling you it looks better, or you act differently. It's all so hard to wrap your brain around. It is "a thing" to rebuild your life after gluten/dh. Really....
  19. pricklypear1971
    I've had mild, lingering weird stuff for two weeks. I'm just 'off' - stomach a bit off, headaches, gas, now vertigo, allergies. I never got one big hit but a low level for two weeks. Ugh. Everyone is different. Cross your fingers.
  20. pricklypear1971
    Oh, you don't have to order it! They provide it free, online, as far as I know. Open Original Shared Link I saw results with a few days, BUT THAT WAS JUST ME. I would say any improvement is a good sign.
  21. pricklypear1971
    Non iodized salt is fine. Iodized salt is out. Read the box and see if they add it. Some people are fine with sea salt, others not. Most sea salt is low in iodine...but I think it depends on where they source it. Some sea salts put the trace mineral content on the box, like Real Salt (which is low). Be careful if salty processed foods like chips. I believe...
  22. pricklypear1971
    I didn't try dapsone - by the time we figured out the gluten/rash thing I also figured out the iodine thing...and mine has been in remission. I'm also allergic to sulfa drugs... Do ensure your Doc does regular bloodwork to monitor your reaction to dapsone. Some people do have reactions.
  23. pricklypear1971
    If you are still starving after eating you may have a low glucose issue (which is common with ai and adrenal issues). Try this. Next time you're still starving (after eating a full, healthy meal) eat about 6-12 ghiradelli semi sweet chips (yes, they're gluten-free but maybe not DF, and not sf). If you can't eat ghiradelli try Enjoy Life. Of you respond...
  24. pricklypear1971
    I had the same thought this season. Didn't notice a reaction. So good so far?
  25. pricklypear1971
    I was not reactive to glutenings, and I'm still not (knock on wood). I started healing immediately after going li. In two weeks my skin was healed - no new spots and scabs had fallen off. When I'd get too much iodine, post healing...like at thanksgiving, it took 2 or so days to flare. Iodine is cumulative for me. I get a flare from flu or cold viruses...
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