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trents

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Everything posted by trents

  1. trents
    Yes, you would need to resume eating gluten for 6-8 weeks before the test. The equivalent of two slices of wheat bread daily. Those are the Mayo Clinic guidelines. The serum antibody testing is designed to detect inflammation markers produced by the ingestion of gluten. If you haven't been ingesting gluten for a long period of time the inflammation will have...
  2. trents
    If this is Palm Beach, FL I would think there is a large enough population base in the general area to make it a reasonable undertaking. There have to be many other celiacs in her age group. How old is she?
  3. trents
    Not really. It could just mean that you caught it early (if indeed it is celiac disease) or for whatever reason your body isn't producing a strong inflammatory response to gluten. If it turns out you do have celiac disease I think you might have something else going on at the same time causing the RUQ pain. The GI doc doing the scoping will look for other...
  4. trents
    Do you see any relationship between the periods of URQ stomach pain and what you eat? Have you had an upper GI to check for things like peptic ulcers? URQ is also the general area where the gallbladder is located. Have you had an utlrascan or a hidascan for gallbladder disease? By the way, an upper GI (endoscopy) is what they use to check for the...
  5. trents
    I'm guessing there was just a mistake made by the physician looking at the results. Still, you have two elevated antibody levels, one iga and one igg, that would point to celiac disease. Why were these tests run? What symptoms do you have?
  6. trents
    Routine testing for celiac disease of children entering school is being done in Italy and perhaps other European countries. The problem with that is that you can develop celiac disease at any stage of life. So testing school-aged children will still miss a lot of people. The other problem with it is that children's immune systems are immature so there may...
  7. trents
    Perhaps the camp will lead to fruitful contacts. Does she live far from you? Is there a possibility that her parents could start a local support group for her age group?
  8. trents
    Do you mean your government eliminated lithium?
  9. trents
    It means you may have another autoimmune disorder or it could be just an atypical immune response and you do have celiac disease. We do sometimes get posters on this forum who do have celiac disease who show negative tTG-IGA values. Are these values for yourself or someone else? This pattern is more often seen in young children whose immune systems are...
  10. trents
    Not a problem. We all do that. Making sense grammatically and syntactically is more important than spelling and you don't have a problem with that. Some on the forum have a hard time putting together coherent sentences. I guess we can just chalk it up to gluten-induced brain fog.
  11. trents
    Welcome to the forum, KitRivers! The Mayo Clinic pretest gluten challenge guidelines are as follows: For the serum antibody testing, consume an amount of gluten daily equivalent to two slices of wheat bread for 6-8 weeks. For the endoscopy/biopsy, the same amount of gluten for 2 weeks. IMO, being gluten free fro a couple of days prior...
  12. trents
    There are a number of theories seeking to explain the rise in gluten-related diseases, if indeed there has been an increase in the last several decades. It could be the case that the incidence is not any higher than it ever has been but rather, we have just gotten better at diagnosing it. But for all intents and purposes we believe it is on the increase which...
  13. trents
    Welcome to the forum, Moulinrouge82! Just be aware that if you ever want to have anymore testing done for celiac disease you would need to go back on gluten for 2 weeks (endoscopy/biopsy) or 6-8 weeks for an antibody test in order for the testing to be valid. Have you considered also that you may have NCGS (Non Celiac Gluten Sensitivity)? It has many...
  14. trents
    Bilirubin is elevated. But what about AST and ALT? Your red counts are elevated but what about the shape and size of the red blood cells (MVP and something else I can't remember). Sometimes the marrow makes more red blood cells to compensate for them not having the right shape or size, i.e., they aren't healthy.
  15. trents
    As you say, the celiac antibody tests results are pending. If positive, the would explain a lot of what you are experiencing. There is also the possibility of NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not damage the small bowel villi. There is no test for NCGS. Celiac disease must first be ruled...
  16. trents
    Are you on any vitamin and mineral supplements? Have you investigated any possible vitamin/mineral deficiencies that can result from taking an SSRI? Many prescription meds interfere with metabolism of certain nutrients.
  17. trents
    Actually, I believe there are summer camps for celiac kids in some places.
  18. trents
    I note the burping you mention. Have you considered SIBO? Also, the anemia. Have you been checked for pernicious anemia which revolves around the inability to assimilate B12? What medications are you on?
  19. trents
    But the fact that you aren't feeling better signals something else is going on. You may have an additional food intolerance. Have you had a CBC and a CMP lately?
  20. trents
    Thanks. See that now. I wish they would put stuff like that at the top instead of in the fine print at the bottom.
  21. trents
    That's a good find. Thanks, Annie! I couldn't find a date on the article or the study, however.
  22. trents
    We "breed" animals. People marry and have children. I think some of the statistics showing differing celiac rates among different racial groups may have a diagnostic base to it rather than a genetic base. People of European decent generally live in places where they have better access to good healthcare resources. For instance, it seems to me we are...
  23. trents
    Thanks for the update and do keep us posted.
  24. trents
    Not sure I would say that it "causes" other food sensitivities but it may be associated with other food sensitivities in the sense of any and all of them being related to immune system dysfunction. I know people who have NCGS but also cannot handle dairy. And keep in mind that not all dairy sensitivities are due to the lactose in milk. For some people, it...
  25. trents
    Welcome to the forum, iwant2believ! Have you considered the possibility of having NCGS (Non Celiac Gluten Sensitivity)? Many of the same symptoms as celiac disease but since it does produce antibodies or damage the villi. There is no test for NCGS so celiac diseae must first be ruled out. It is 10-12x more common than celiac disease. Some experts consider...
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