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trents

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Everything posted by trents

  1. trents
    The theory about the wheat paste used to seal the barrels being a cause of gluten reactions has largely been discredited I believe. Someone posted about that very recently but I don't have any links. It's more likely your reaction from drinking wine is due to something else as per what knitty kitty posted. Edit: I have trouble with wine, red or white...
  2. trents
    You may also have an intolerance to rice period, apart from the arsenic. Have you had the ALCAT food allergy testing done?
  3. trents
    Typo, I'm sure. Poster meant to type "severe."
  4. trents
    Although the statistics Sabaarya quote are accurate, there is one important one that was left out in regard to answering your question about whether or not you can pass on celiac disease to your children. Sabaarya stats deal with the likelyhood of having celiac disease based on the general population. But if you yourself have active celiac disease the chances...
  5. trents
    I think "Certified Gluten Free" has stricter standards like maybe 10ppm.
  6. trents
    I could not misrepresent the truth like that myself. If you start dealing with it that way you will just encourage the other person to make more unsafe food for you for which you will have to keep lying. IMO it's better to be honest up front and say, "Thanks, but I can't eat it. I do appreciate your thoughtfulness but I've been made ill by eating things...
  7. trents
    But what if the gifter later asks you how you liked it?
  8. trents
    When I look up what claudins and i-FABP are they both seem to play a role in epithelial junction integrity. Yet, the conclusion is that, "The team's assessment showed no differences in serum levels of gut integrity and permeability markers." This is confusing to me. What am I missing?
  9. trents
    One of the things we all learn, usually trough negative experience over time, is that you can't trust the good intentions of those who want to make food for us but don't have to deal with the phenomenon of celiac disease themselves. Those with experience are either celiacs themselves or are in the position of having to regularly cook for someone who is. You...
  10. trents
    Welcome to the forum, celiac00! It is possible that the person who made the gluten free cake inadvertently included gluten somehow in the gluten free cake. Is the person who made the cake someone who is an "experienced" celiac? They may have used ingredients that do not list wheat, barley or rye but may have come in contact with those ingredients during...
  11. trents
    Yes, kissing someone just after they have eaten something with gluten can be problematic for some celiacs. It depends on how sensitive they are. Would he be open to using mouthwash after eating?
  12. trents
    Okay, well it seems like you have your answer. You seem to have either celiac disease or NCGS. As the recommended pretest gluten challenge, the Mayo Clinic says the daily consumption of an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks leading up to the blood draw for the antibody testing and two weeks leading up to the endoscopy/biopsy...
  13. trents
    Welcome to the forum, newto! Sourdough bread is not gluten free. Some celiacs have reported they do not react to sourdough or at least not as much but it is largely anecdotal. Both abdominal pain and headaches are very common reactions to gluten and to those with NCGS (Non Celiac Gluten Sensitivity). And your symptoms may be due to something else not...
  14. trents
    Well, if you want to get tested for celiac disease realize you would need to be consuming an amount of gluten daily equivalent to 2 pieces of wheat toast for 6-8 weeks before an antibody test and for 2 weeks before an endoscopy with biopsy or the tests will not likely be valid. Are you recovered from Covid yet?
  15. trents
    I'm guessing you'll feel better in another 10-14 days. Have you been officially diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)? From your username I am guessing you do not consume animal based proteins. There are just some nutrients you can't get very well from plants. My biggest concern would be B12. Are you taking any...
  16. trents
    Thanks for more detail. It sounds like you certainly are needing to juggle a number of health concerns in your family. The EOE may be an indicator of a more general immune system issue than celiac disease alone. The EOE might be addressed by steroids as well. Children's immune systems are in the process of maturing and we get reports on this forum from people...
  17. trents
    Sounds good. Thanks for your sensitivity about thread hijacking.
  18. trents
    Welcome to the forum, Ava! You do not mention how old your son is. Has the diagnosis of celiac disease been confirmed with a biopsy? There are some other things besides celiac disease that can cause elevated tTG-IGA. It is a good test but not 100% specific. I would ask that you reconsider the steroid treatment. Sometimes if you break the feedback...
  19. trents
    Beaver, what's keeping you from being tested for celiac disease? It is common for people with celiac disease to develop intolerances to other foods in addition to those containing wheat, barley and rye over time. It's due to the "leaky gut" caused by damage the small bowel villi which allows larger than normal protein fractions from the food we eat to enter...
  20. trents
    But are you certain this is DH?
  21. trents
    I don't have any ideas as to the "why" of what's happening to you. But if I understand your chronology correctly this all started 5 months ago when you reintroduced gluten for testing purposes. So it seems like that triggered some sort of refractory process. But here is what I would recommend looking into with your physician: a course of prednisone or...
  22. trents
    Welcome to the forum, Kelly! If the antibody count from your blood work is strongly positive your physician may forego a biopsy and declare you to have celiac disease. The centerpiece of the antibody testing is the tTG-IGA but other antibody tests can be run. If you are comfortable with it you can post the values on the forum if you want our opinions...
  23. trents
    Megan, do you think you might have something called dermatitis herpetiformis which is a rash whose only known cause is celiac disease? Even though your brother and father don't have celiac disease it is possible you do. Have you ever been tested and if so, how long ago? celiac disease can have onset at any time of life. And it is possible you are getting...
  24. trents
    Yes, you can. Do some research in the kinds of calcium supplements that will make the calcium the easiest to absorb. And don't over do it be cause some calcium supplements will lower the acid level in your stomach too much and inhibit the digestion of your food.
  25. trents
    knittykitty, the article in the link you site addresses B12 deficiency but does not specify B12 deficiency caused by pernicious anemia, unless I missed something. But this one does and says basically the same thing and indicates as little as 1000 μg is effective: https://pubmed.ncbi.nlm.nih.gov/27602354/ Once again, thank you for the ...
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