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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Gluten is a specific protein found only in wheat, barley and rye. It goes by no other name. There are somewhat similar proteins found in other cereal grains but technically speaking, they are not gluten. https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/rice/ "Yes, all rice (in its natural form) is gluten-free. This includes brown rice...
  2. trents
    The gluten containing grains are wheat (in its several varieties), barley and rye. Strictly speaking, rice does not contain gluten and neither do oats, though I have heard of "oat gluten" used informally. About 10% of celiacs react to the oat protein avenalin like they do gluten. Lots of people with celiac disease (e.g., those who can't tolerate gluten) don...
  3. trents
    Too bad the physician didn't include a total IGA score along with the tTG-IGA. If total IGA is low it can give artificially low scores in individual antibody scores. Do you have access to any biopsy results/Marsh scores? I'm not clear on whether or not you have ever had the endoscopy/biopsy for celiac done.
  4. trents
    You only have a few minutes to perform an edit. Try creating a brand new post and then immediately try the three dots looking for the Edit function. The edit time window was recently reduced by our administrator because spammers were abusing the edit function.
  5. trents
    If you click on the three dots at the upper right corner of one of the posts you have already made you will see a choice to "Edit." Click on that and it will give you attachment tools at the bottom of the edit window.
  6. trents
    Yes, damage to the villi can be patchy and missed by inexperienced doctors doing the biopsies. Numerous samples need to be taken from various areas of the duodenem.
  7. trents
    There is not just one antibody test that can be run. The most common is the tTG-IGA and the only one many physicians will order. Do you have or can you get a copy of the results that will specify what antibody test or tests were actually run? Do you have online access to your medical records? We would also need the reference ranges. Scores without reference...
  8. trents
  9. trents
    When's the last time you had a follow-up antibody test or biopsy?
  10. trents
    What about SIBO?
  11. trents
    It's so frustrating when you have to work around all these food issues. Gluten, histamines, oxalates, dairy, oats and what did I leave out? Seems like every food that is nutritious has some downside in it for some people.
  12. trents
    Probably due to cross contamination from being cooked on the same grills or in the same vats as breaded food items.
  13. trents
    It is not rare for celiac disease to start at 70 years of age. You can develop it at any time but it does sound like in your particular case you may have developed it earlier.
  14. trents
    Thomasm5, you mention you have cut down on meat consumption as an economy measure so I'm not sure you can afford supplements. Many celiacs develop B-vitamin and D deficiencies. And vitamin D is instrumental in bone health so there may be a tie in there with the calcium deficiency. If you can afford it I certainly would suggest you start taking a high potency...
  15. trents
    Thomasm5, have you had a followup antibody test or endoscopy/biopsy since being diagnosed to check for compliance and healing of the villi? It's time for one. Studies show that most people who believe they are on a gluten free diet are actually on a lower gluten diet. This is especially true for those still eating out. Also, are you still consuming...
  16. trents
    Michele2977, I just could not follow your logic in what further testing you were recommending in your advice to OP.
  17. trents
    A full celiac panel would include not only IGA tests but an IGG test, the latter being helpful when total IGA is low: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But, OP states total IGA is not low.
  18. trents
    This might help: A dietician may be of help. Particularly one who is a celiac and has had to deal with the gluten free eating learning curve personally. It took my wife and I a year or two to develop that "sixth sense" of what to avoid because of being something that might have gluten hidden in it. Unfortunately, some of the learning curve necessarily...
  19. trents
    Most likely, you are getting some gluten in your food somewhere. Manufactured food products are always subject to formulation changes and your pantry needs to be rechecked. Every time you purchase mainstream processed food items the ingredient label needs to be checked. Don't assume that what was once gluten free is still gluten free. Also, are you still...
  20. trents
    "Bilirubin is a brown and yellow fluid that’s a byproduct of the essential process of the breakdown of red blood cells (RBCs). This substance is a major component of bile, an important digestive fluid that’s cleaned from the blood by the liver. If the liver is damaged, bilirubin may leak into the bloodstream, which can lead to jaundice, characterized by ...
  21. trents
    No, they don't. Normally, the first step in checking for celiac disease is to take a blood sample and have it checked for antibodies that are associated with celiac disease. There is still a lot of ignorance in the medical community as a whole concerning celiac disease. Simply put, it just isn't yet on the radar of many physicians. I would go to your...
  22. trents
    Michele2977, OP states in her original post that total IGA was not low.
  23. trents
    What kind of specialist do you speak of? I would think medical doctors inquiring about mental health in connection with celiac disease would be very rare. Most medical doctors have a hard time connecting the dots with regard physical medical disorders when it comes to celiac disease.
  24. trents
    You mention elevated bilirubin. One of the known health risks associated with celiac disease is hepatitis. About 18% of celiacs will have elevated liver enzymes. In fact, that is what led to my celiac diagnosis about 20 years ago. I had chronically elevated liver enzymes (ALT, AST) which was idiopathic. I had very minor GI symptoms and was almost a "silent...
  25. trents
    Lyns5201, welcome to the forum! I have not heard of proteinuria be connected with celiac disease but we are discovering new health issues connected with celiac disease all the time. Have you been diagnosed with celiac disease?
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