Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,478

  • Joined

  • Last visited

  • Days Won

    514

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Try one bite. Try other kinds of meat. Try turkey. Do you do dairy? Eggs and dairy would have many of the same nutrients as meat. What about yogurt and probiotics. You likely need to build your gut microbes back up so that you have more of the bacteria that work in meat protein. Digestive enzyme supplements might also help.
  2. trents
    With the meat start with very small portions and increase the amount very slowly. What about eggs?
  3. trents
    https://celiac.org/about-celiac-disease/related-conditions/dermatitis-herpetiformis/
  4. trents
    You ask: "But what caused him to be close to death? Is the cause related to Celiac or just a general deterioration due to normal ageing?" Congestive heart failure mainly it seems. He is in his late 80's now. He was one of ten children. Seven of his brothers and sisters are or did live into their late 80s and mid 90's. Of the two that didn't, one died in mid...
  5. trents
    Dairy can be a problem in two ways. Lactose intolerance is one. Lactose intolerance is the inability to break down the sugar in milk, lactose. But there can also be an intolerance to the milk protein casein, which can cause villi blunting in some individuals, as does celiac disease. I mentioned pernicious anemia because I understood you to say you had...
  6. trents
    Welcome to the forum, SirMakem! Can you get more specific information about what blood test returned a value of 128? My guess would be that is the tTG-IGA score as that is the most common test run when checking for celiac disease. You never come out and say it but may we assume you were diagnosed with celiac disease? The "itchy back" may be due to dermatitis...
  7. trents
    If you live near a Costco, they have an excellent gluten free B-complex from their Nature Made line. You needn't worry about overdosing on B vitamins since they are water soluble. Your pee will turn yellow from the B2 (riboflavin). That is normal and harmless.
  8. trents
    Lauren, does this happen regularly after eating pears or is this the only time you have experienced the tingling after eating a non gluten food item? One thought I have is that you may have developed an intolerance or an allergy to pear protein. Also, there is a heap of natural sugar in a pear. Fructose intolerance?
  9. trents
    Oh, this is so sad! But why am I not surprised at the inadequacy of the state's understanding of celiac disease and gluten issues and their failure of handling this effectively?
  10. trents
    Would you explain in more detail what you mean by that?
  11. trents
    You asked, "Now the more we progress into the gluten free diet the less likely he is to get a positive result if I have understood it correctly?" This is true. Have you considered getting genetic testing done for you and for your son to check for the celiac gene? Have one or both genes does not guarantee someone will develop active celiac disease but...
  12. trents
    LauraL, the only suggestion I have for you is to call the facility and talk to the kitchen manager. Ask them if there is any provision for feeding clients with gluten-related health disorders. Try to get a feel for if they even understand what that is about. If it is apparent they do not, then simplify it for them as much as you can by asking them to not...
  13. trents
    https://www.cureceliacdisease.org/faq/what-is-an-ema-blood-test/ The EMA is very specific for celiac disease but it can miss those who do have celiac disease because it is not very sensitive. I think I read somewhere that it is also very expensive so not ordered real often.
  14. trents
    Welcome to the forum Josh! I doubt if anyone can answer your question off the top of their head. Your best bet would be to call the dispensing pharmacy and find out who the manufacturer is. They may also have a phone number and/or email for the manufacturer. Then you would need to contact the manufacturer directly. The manufacturer should be able to...
  15. trents
    Welcome to the forum, Lornaq! You say, "but wondered if anyone knew what I might actually have a biopsy . . . " Not sure what you are asking here. Is there a typo? Are you asking us if we think your physician will order a biopsy or if the results of the blood antibody tests would warrant such? The "what" in your question is unexpected. You say,...
  16. trents
    I think you misunderstood what is meant by "the gluten challenge." It is in fact adding regular amounts of gluten back into the diet weeks before the testing in order to prevent invalidating the tests. We use the term most often when we know someone has already started eating gluten free prior to testing.
  17. trents
    Welcome to the forum, Maimoudaki! First, your putting him on a gluten free diet two weeks before the blood antibody test may have compromised the test. The antibody tests are designed to measure inflammation markers in the blood characteristic of celiac disease. If you remove gluten, the inflammation subsides and the markers for it begin to disappear...
  18. trents
    I am glad you have had a positive experience on the forum to this point. One more thing I want to add and that is there is some thought out there that NCGS may be a precursor to celiac disease for some. That's where the genetic testing might be helpful. If your daughter has either or both of the genes for celiac disease there may be good chance that her antibody...
  19. trents
    Most physicians will not order a full celiac panel to begin with because of the expense. Many physicians will order only the tTG-IGA to begin with and maybe a total IGA along with it. If the tTG-IGA is negative despite obvious symptoms being experienced by the patient and or the total IGA is low then they may order a full celiac panel and even a biopsy. ...
  20. trents
    One thing to keep in mind is that there is a lot of general ignorance about celiac disease in the medical community. Even among some GI docs if they are older and been out of med school for a long time. Those of us in the celiac community have come to realize we need to arm ourselves with knowledge and be assertive if needed testing is to get done. If docs...
  21. trents
    I do not have a clear recommendation for you with regard to the biopsy. If she is asymptomatic you might just wait another year and get antibody testing done again. If she has symptoms and is in distress I would either trial a gluten free diet or move forward with the biopsy.
  22. trents
    Her IGA is in the middle of the normal range: IgAYour Value124 mg/dLStandard Range35 - 250 mg/dL. It is not low. If total IGA is low it can create a downward skew of individual IGA values, i.e, can result in false negatives. That is one case scenario when doing IGG testing can be helpful. It can catch celiac in those cases. It is not uncommon for children...
  23. trents
    I'm not sure what he meant by a "celiac algorithm" but he did order some IGA testing. The centerpiece of the IGA testing is the tTG-IGA which is considered the best combination of sensitivity and specificity. That test was positive according to the what you posted in your original post. The value was 28 and the high end of normal was 15. There are some other...
  24. trents
    It has been said that for some people even an amount of gluten equivalent to a quarter of a grain of rice can produce a reaction.
  25. trents
    Do you get them when you get cross contamination?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.