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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Good information that may prove to be helpful to others who still have gluten type reactions but are stumped as to where the sources might be since they are otherwise diligent. "Neurotypical adults"?
  2. trents
    Yes, RMJ is spot on. People adjust to a new reality over time and it becomes the norm. Your future in-laws seem to be sensitive, quality people. But be prepared for the fact that not everyone in your social circle will react so graciously. So, it's a good idea to think ahead of some scenarios that might develop and to be prepared with a gracious response...
  3. trents
    The tTG-IGA is the most important test, combining good sensitivity with good specificity for celiac disease. It is considered to be the centerpiece test of the celiac antibody panel. The number aren't dramatically high but any positive in that test points to celiac disease.
  4. trents
    Yes, as Scott said, hosting your fiance's family would be a goodwill gesture and would eliminate the hassle for them. You might even consider cooking some non-gluten dishes just for them if you can do so safely.
  5. trents
    I think you mistyped. It’s Franz, not Fratz. It’s my favorite. Canyon House is good too but their loaf bread slices are diminuitive.
  6. trents
    I would not bother with a colonoscopy unless you are having additional bowel problems from what you described in your original post. The "rushing to the toilet" could easily be explained by celiac disease. It concerns me that your doctor said "perfectly healthy people can have these results." I do not think that is true. I would consider connecting with another...
  7. trents
    It is difficult to tell from the numbers you supplied if your results are strongly positive because you did not supply reference ranges. Reference ranges vary from lab to lab. Therefore, an endoscopy with biopsy would be appropriate. The endoscopy/biopsy is considered the gold standard of celiac diagnosis. In the UK if your tTG-IGA score is 10x normal many...
  8. trents
    Your dad is incorrect. The mucous in your stool is from the small bowel lining being damaged by inflammation in that area caused by the gluten and is a normal result of celiacs being "glutened".
  9. trents
    With a tTG-IGA of 50 the odds are definitely in favor of you having celiac disease. We have had many forum posters with much lower scores than that get diagnosed with celiac disease. That particular test is pretty specific for celiac disease. About 18% of celiacs have elevated liver enzymes. I was one of them and it was what eventually led to my celiac...
  10. trents
    Though your sister's symptoms are minimal when she eats gluten, that doesn't mean she isn't experiencing damage to the villi of her small bowel. Someone needs to point that out to her because she is risking serious health problems down the road.
  11. trents
    You may have NCGS (Non Celiac Gluten Sensitivity). Many of the symptoms are the same as with celiac disease but no damage is done to the lining of the small intestine. That's why the antibody tests for celiac disease will be negative. Even so, a word of caution is in order. Some experts believe that NCGS is a precursor to celiac disease so in time it might...
  12. trents
    Lauren, welcome to the forum! Before you do anything more, can you be more specific about the "2 celiac markers." Do you have access online to your autoimmune indicator test results. Before we can advise you we need to know the specific tests that the physician is referring to with elevated celiac markers. Can you post them for us? Headaches and diarrhea...
  13. trents
    In the UK many doctors will wave the endoscopy/biopsy with tTG-IGA numbers 10x in excess of normal. Not necessarily so in the states. I would continue normal amounts of gluten consumption until you can discuss this with your physician.
  14. trents
    Welcome to the forum, Heal2Recove! The nature of celiac disease is it is an autoimmune disorder whereby whenever you consume gluten it triggers an inflammatory process in the small bowel that damages the lining (the "villi") of the small bowel. Your immune system is mistakenly identifying gluten as an invader. Over time the constant inflammation...
  15. trents
    Well, you're too young for onset of dementia so that is not a worry. You probably need to consider taking a gluten free high potency B-complex and zinc. B vitamins are important for neurological health. How much D are you on and what kind of D? D3 is the most assimilable. Make sure all your vitamins and minerals are gluten free.
  16. trents
    ollie, I would bring it up with your GI but what you describe is not unusual for those with celiac disease and still consuming gluten. Neurological problems and "brain fog" are common. How much longer do you need to doing the gluten challenge? When will your testing be complete? May we ask how old you are? Are you taking any vitamin and mineral supplements...
  17. trents
    Christ, did the doctor doing the endoscopy also do a biopsy of the small bowel and send the biopsy off for analysis or was this just a visual inspection?
  18. trents
    Welcome to the forum, bugg! What about buying your own cookware and utensils, cleaning paraphernalia, etc and keeping those sequestered in a footlocker or something? There is also a product called GliadinX which is designed to neutralize small amounts of gluten such as you get from cross contamination. GliadinX is one of our sponsors here. Some...
  19. trents
    If one meal of liver boosts your energy levels noticeably, I would think that points to some glaring vitamin deficiency being met temporarily. It often takes two years for the villi to heal completely once you go on a gluten free diet. But if you are truly eating gluten free, pains should subside rather quickly. I'm betting you are still getting gluten...
  20. trents
    It's good to get some answers, isn't it.
  21. trents
    Definitely. Your next step should be to ask your physician to order a full celiac panel which would include the tTG-IGA test plus the "other tests" described in this article: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Print it out and take it with you. Many physicians are pretty ignorant about celiac disease.
  22. trents
    NCGS should not produce positive antibodies, however, would it?
  23. trents
    Matt, I do not put much stock in food allergy/intolerance testing. There typically are many false negatives and positives which is to say the results often do not match up well with real life symptomology. It would likely be more helpful to just eliminate corn from your diet for a few weeks and see if you don't fare better. Then reintroduce it and see if...
  24. trents
    Sometimes there's more there than meets the eye. Unfortunately, there are times when GI docs doing scopes neglect to take a biopsy and tell patients, "The villi looked normal to me."
  25. trents
    We get it at Costco.
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