Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,306

  • Joined

  • Last visited

  • Days Won

    492

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    200 IU of D3? Did you mean to type 2000 IU?
  2. trents
    More than likely you have celiac disease with the high tTG-IGA score and more than likely your biopsy will be positive. The original biopsy was negative years ago, probably because you were in the early stages of celiac disease or possibly the damage was patchy and enough samples were not taken. The other possibility is that you have NCGS (Non Celiac Gluten...
  3. trents
    Are you following a strict gluten free diet?
  4. trents
    Zinc is the number 1 deficiency in celiac disease. I thought it was B12.
  5. trents
    There are foods that are naturally high in histamines but you should also realize that all pickled foods are high in histamines and so are canned foods. Essentially any food that is preserved and sits in storage will increase in histamines with time. Just for your information as I'm not thinking this is your problem.
  6. trents
    Have you been tested for DH or celiac disease and have you been confirmed to have either by formal diagnosis?
  7. trents
    Could be dermatitis herpetiformis ("DH") which is a classic expression of celiac disease and which has no other known cause.
  8. trents
    This occurred to me as well when HectorConvector stated he only ate white, low fat meat and when the list of foods that followed that did not include fats or oils. Made me wonder if there was a deficiency of some fat soluble vitamin or vitamins. We have been sold a false narrative for many years by dietary science by being urged to eat a low fat high carb...
  9. trents
    Have you had a follow-up endoscopy/biopsy to check for healing of the villi? Have you heard of refractory celiac disease?
  10. trents
    Humans don't have the ability to digest cellulose. This is not the result of changes in the gut biome caused by antibiotics.
  11. trents
    How quickly could you get an appointment scheduled with your PCP? If you could see him the first part of next week and he was willing to do a blood draw and order a celiac panel it would expedite things by about 1 week. Then the GI doc you are seeing on Dec. 1 might decide to move ahead with the endoscopy/biopsy for confirmation. Hang in there and don't let...
  12. trents
    Jacky Bender, welcome to the forum! Currently, there are no tests to diagnose celiac disease that will give valid results if someone has already begun the gluten free lifestyle. Having said that, a positive diagnosis of DH is definite proof that you have celiac disease. There are no other medical conditions that cause DH besides celiac disease...
  13. trents
    The first thing to realize is that neither celiac disease or NCGS (Non Celiac Gluten Sensitivity) are allergic reactions. Celiac Disease is an autoimmune condition. It engages an entirely different immune system pathway than do allergies. So, allergy testing will not be helpful. Likewise, NCGS is not an allergy. Currently, there are no tests to directly diagnose...
  14. trents
    I think thyroid hormones work like blood pressure. Depending on the day and the time of day and probably a number of other factors, there can be considerable variance in results from different samples. It would probably be more helpful to get thyroid hormones tested several times over time at the same time of day. I know that this is not very practical. Given...
  15. trents
    Welcome to the forum GarbrielReita! We do know that celiac disease has neurological manifestations for some people. This is not at all uncommon. The fact that when you began to eliminate gluten from your diet there was some improvement does point to a problem with gluten. Your next step needs to be to get tested for celiac disease. The first...
  16. trents
    That is an area of the body prone to arthritis where the clavicles attach to the sternum. There is kind of a pseudo joint there. Does the pain coincide with getting glutened?
  17. trents
    Are you asking about this in relation to celiac disease?
  18. trents
    Sammie, the 50 score is not very meaningful unless we have reference ranges (what is normal and what is high) to gauge it by. Different labs use different reference ranges.
  19. trents
    I often takes two weeks to recover from a glutening espisode.
  20. trents
    Your doctor failed to order the most important antibody test for celiac disease, the tTG-IGA which is the centerpiece of the celiac antibody panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ You should be on regular amounts of gluten (defined as daily consumption of gluten in the equivalent of two slices of wheat bread...
  21. trents
    ^What Ravenwoodglass said.^ Years ago researchers identified two genes that are associated with celiac disease. Recently, they identified a possible third one. And who knows if there are still more than that? The human genome contains many interrelated parts and to assign one or two genes as responsible for this or that may be too reductionistic sometimes...
  22. trents
    D3 can be toxic at high doses since it is a fat soluble vitamin. Magnesium has a laxative effect for me at fairly moderate doses, like "milk of magnesia." Zinc can also be toxic at high doses and even at lower doses can impair iron and copper assimilation. I take very modest amounts of both every other day.
  23. trents
    The expense of supplements is certainly a valid concern for some. But when this is not an issue, I would rather spend a little extra to make certain I was getting good coverage. In the past year there was an NIH research article that showed there may never be complete healing of the small bowel lining even on a strict gluten free diet. When they examined...
  24. trents
    Welcome to the forum Anxiety4lyfe! It is not all that uncommon for the antibody bloodwork to be negative while the biopsy is positive. The biopsy is the diagnostic gold standard for celiac disease. So, I'm baffled that your doctor would declare that you do not have celiac disease. There are a few fairly rare non celiac explanations for blunted villi...
  25. trents
    Elizabeth Butler, what's wrong with taking mega doses of B-vitamins like you would find in the typical caplet B-complex supplement? They are water soluble. You pee out the excess.
×
×
  • Create New...