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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Let's be careful with mental health labels. We don't really know any of these people personally and have only gotten a snapshot of their behavior in a limited context. We all have some narcissism in us.
  2. trents
    Here's another option: https://www.imaware.health/at-home-blood-test/celiac-disease-screening I agree with your assessment that a positive home screening test in hand when going to the doctor for an official lab screen might make him/her more agreeable to ordering the lab work. But is there any reason to suspect the doctor would not be open to it without...
  3. trents
    Welcome to the forum, Belinda! Not all the blood tests are highly sensitive. The most commonly used blood antibody test is the tTG-IGA. It combines good specificity with good sensitivity. Some of the other tests may be more specific for Celiac disease but less sensitive. Here is an overview of antibody tests that can be run for Celiac disease: https...
  4. trents
    In addition to beginning a D3 regimen of at least 5000IU Daily I would recommend a gluten free high potency B-complex daily. Costco's Nature Made is a good choice. Wheatwacked is right about celiac disease typically generation vitamin and mineral deficiencies due to the damage done to the small bowel villi. Vitamin and mineral deficiencies can play havoc...
  5. trents
    Sqiishtophe, welcome to the forum! What is it that you are afraid your family doctor won't believe you about? Having celiac disease? Being sincere about regretting your health negligence? And you may know this, but some mental health issues typically manifest themselves in young adulthood.
  6. trents
    I agree with Wheatwacked in his thought about trying prednisone or something similar to get the immune system under control and potentially break the cycle.
  7. trents
    You are ignoring the likelihood of cross contamination. If those burger patties are cooked on the same grill as pancakes, breaded fish or chicken patties, etc. and handled with the same spatulas and utensils then they will pickup some gluten. It might not be enough to cause you a celiac reaction (a noticeable one, anyway) but for more sensitive celiacs it...
  8. trents
    Yes, celiac disease is an autoimmune disorder. People with celiac disease have a statistically higher incidence of RA and thyroid disease and other autoimmune disorders. Keep in mind that it typically takes many years for people to get diagnosed with celiac disease and many of those were "silent" celiacs for a period of years until the villi damage became...
  9. trents
    My bad. I had forgotten what the context was and that your previous testing was done while on gluten. I should have gone back and read the original post. I think I got this thread confused with another one.
  10. trents
    You're welcome. Both the blood antibody tests and the endoscopy/biopsy are designed to detect inflammation in and damage to the small bowel villi. If you withdraw gluten from your diet before testing is complete, healing would begin if you have celiac disease and the testing would be compromised. Amazingly, many doctors seem not to know this and neglect to...
  11. trents
    Magnesium sulfate is Epson salt which from antiquity has been used as a laxative.
  12. trents
    Sheri, don't start a gluten-free diet effort before all testing for celiac disease is complete. Otherwise, you will invalidate the tests.
  13. trents
    Donna-1, many of us have experienced that same kind of treatment from friends and relatives. I would suggest you check for celiac support groups in your area. You need to feel you are not alone and it may also open up some new and more supportive friendships.
  14. trents
    Whoa! Your doctor told you to go gluten free for 4 weeks before a follow-up appointment in 6 months? Did he mean four weeks immediately before the appointment and blood work? If that is what he meant that is absolutely wrong advice. The blood work tests for antibodies produced by inflammation in the small bowel when consuming gluten. If you remove the agent...
  15. trents
    I resonate with the melatonin mistake. I did that one too. They put gluten in things you never suspect.
  16. trents
    Kate33 has a good suggestion about getting your wife retested (blood antibody test should be sufficient) but I would wait awhile as she was only diagnosed 6 weeks ago. Retesting would help determine if she is still getting gluten from somewhere on a regular basis.
  17. trents
    Yes, but anything that goes into the blood stream will make to the gut tissues via the vascular system.
  18. trents
    Scott, I think she has already had the biopsy and it was negative: "My EGD from a few months ago (done before celiac blood panel) was negative for Celiac."
  19. trents
    Is her TPN gluten free?
  20. trents
    Welcome to the forum GNC! You are in a tough situation and I don't have any big ideas for you. Your doctor revealed his ignorance about celiac disease by saying, "That doesn't happen to older people!" Celiac disease can manifest itself at any stage of life and we have plenty on this forum in the geriatric crowd who will attest to that. But, I'm...
  21. trents
    If going gluten-free has reduced the amount of fiber you were consuming, via "whole grain" wheat-containing products, then yes. Also, gluten-free products are not fortified with vitamins as are their equivalent wheat flour products. I would suggest adding a magnesium supplement and a B-complex. Make sure they are gluten free. Costco's Nature Made brand is...
  22. trents
    Welcome to the forum, kjsimpson27! The tTG-IGA is the centerpiece of antibody blood work for celiac disease and it is negative. The endoscopy/biopsy, which is the gold standard for diagnosing celiac disease, was also negative. The symptoms you describe are common to both celiac disease and NCGS (Non Celiac Gluten Sensitivity) which is 10x as common...
  23. trents
    You would just have to answer that question through personal experience as different people will have different degrees of sensitivity. The safe answer is total abstinence.
  24. trents
    That I am aware of, high WBC is not a typical symptom associated with celiac disease. But your other symptoms are classic for either celiac disease or NCGS (Non Celiac Gluten Sensitivity) which is 10x more common than celiac disease. There is no diagnostic test for NCGS. celiac disease must first be ruled out. Sounds like you need to be tested for celiac...
  25. trents
    Welcome to the forum, LumpLady! I don't know about the lumps but the other symptoms you describe are certainly classic ones for either celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS but it has many of the same symptoms as celiac disease and is 10x more common. Celiac disease must first be ruled out. Do you notice these...
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