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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, LifewithCorgi! Some questions: Are you on hormone replacement therapy for the Hashimotos? Are you on any vitamin and mineral supplements? I would also recommend you stay away from processed foods. There are just too many ways gluten can be hidden but not show up on ingredient labels. I would suggest sticking with...
  2. trents
    23andme is genetic testing.
  3. trents
    Makes sense but if the doc does decide to go for an endoscopy/biopsy I hope for your sake he schedules it as soon as possible following the blood antibody results. That way you don't have to torture yourself twice with the pretest gluten challenge.
  4. trents
    Hang in there! The Mayo Clinic pretest gluten challenge is the amount of gluten equivalent to two slices of wheat bread daily for 6-8 weeks and for the endoscopy/biopsy 2 weeks. Be aware the doc may want to not only do the blood antibody test but also the endoscopy/biopsy for confirmation.
  5. trents
    Welcome to the forum, Universal G. 1. We do reports from time to time that some with celiac disease or Non Celiac Gluten Sensitivity (NCGS) are able to tolerate ancient wheat varieties such as spelt. We do not know if this is actually safe or if it is just a matter of a lesser, muted reaction that is not discernible. We do not recommend spelt because...
  6. trents
    Two things about Scott's recommendation here: 1. Millet is a type of wild rice. Not sure if it would cause the same allergy issues that regular rice does. The company Scott linked sells some bread products without millet. Just beware of the millet issue. 2. Spendy! And then add shipping unless you live close by their bakery.
  7. trents
    Not necessarily. Do you think you might have dermatitis herpetiformis (DH)? It is classic sign of having celiac disease. With some people, celiac disease manifests itself as DH instead of gut issues. And some have both, I think.
  8. trents
    DH has a characteristic appearance with little blisters I think. See if you can google it and get a good picture to compare it to the rash you have.
  9. trents
    Hi Charlie and welcome to the forum! Can you talk to your mother and ask her to start separating your food from your brother's food? Or maybe putting a mark on your food or putting it in special containers that look different? Do you think your mother takes your celiac disease seriously? Does she understand how important it is for you to avoid gluten...
  10. trents
    Coach, welcome to the forum! You will be hard pressed to find ready made gluten free bread without rice. I see some recipes for baking your own, however. You just might need to start doing that. Here's one made from buckwheat flour. Buckwheat, despite what it sounds like, is not related to wheat: https://www.thespruceeats.com/gluten-free-buckwheat-bread...
  11. trents
    It would be interesting to know if the increased rate of NAFLD is actually caused by the gluten free diet or simply coincidental; a condition preexisting at the time of the celiac diagnosis that progresses over time and independently of a gluten free diet. It's too bad there isn't a control group consisting of those with diagnosed celiac disease who did not...
  12. trents
    PammaDawn, are you still eating out?
  13. trents
    Wheatwhacked, why do you believe Elvis had celiac? Karen Carpenter I can see. But Elvis?
  14. trents
    Love your user name!
  15. trents
    Welcome to the forum, Alison11! What you describe has also been my experience but over the years as I have experienced more complete healing in my small bowel villi, the problem with raw veggies you describe has significantly lessened. I can now eat raw veggies in limited quantities without issue. Some raw veggies like broccoli and cauliflower have bothered...
  16. trents
    Welcome to the forum, PammaDawn! As you indicate, you are already aware that celiacs often develop other food sensitivities. Chief among them are dairy and oats. Soy and eggs are also common food sensitivity villains. Some medications such as NSAIDs can also damage the SB villi. And any med or supplement that contains wheat starch as a filler would be...
  17. trents
    Jill Sherman, did you mean DH rather than HD?
  18. trents
    Titulartee, welcome to the forum! A positive tTG-IGA makes it very likely you have celiac disease, especially if you have GI symptoms appropriate to celiac disease. Unless the damage to the small bowel villi is in an advanced state it would be difficult, I believe, to recognize it with the scope alone. That's why they send it out to a lab for microscopic...
  19. trents
    Gfsharon, Sorry, I misunderstood the intent of your post. I took your post to mean since Red Apple isn't on the gluten-free cosmetics list here at celiac.com, they must not be gluten free. It seems like they should be added as the list is always a work in progress.
  20. trents
    Agree.
  21. trents
    What medicines are you on? Some medications are actually counterproductive to healing of the villi. Are you on a PPI or an NSAID? Also, are you still eating oats or dairy? About 10% of people with celiac disease react to the protein avenin in oats like the do gluten in wheat, barley and rye. Also, studies show that some people experience villi blunting...
  22. trents
    What do you mean by "not enough support in place?" A colonoscopy is not the correct test for diagnosing celiac disease. A colonoscopy is used to scope the lower bowel. Celiac disease damages the lining of the upper (small) bowel so an endoscopy with biopsy is used to diagnose celiac disease. About 10% of celiacs react to the protein "avenin" in...
  23. trents
    Ideally, you should reschedule your endoscopy and go back on gluten until the new test date rolls around. I'm afraid you have been off gluten long enough now that the results of the endoscopy/biopsy will be compromised. It may be negative and this will just confuse the situation since you have one type of test that is positive and another that is negative...
  24. trents
    They are not testing you for gluten. They are testing you for the damage to your small bowel lining from the inflammation caused by eating gluten. So, you don't want the inflammation to subside by going gluten free. How long have you been gluten free?
  25. trents
    Many doctors don't know enough about celiac disease to know to advise them to keep eating regular amounts of gluten until testing is complete. If you go off gluten for a significant amount of time before testing then healing begins to happen and the testing is compromised. Testing is designed to measure the damage done by the inflammation gluten causes to...
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