Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,481

  • Joined

  • Last visited

  • Days Won

    515

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    As your doctor indicated, a follow-up endoscopy/biopsy would be needed to see if a gluten-free diet is helping the villous atrophy. But the challenge will be the learning curve of truly achieving a gluten-free diet. And I would not get another endoscope done sooner than 6 months out. It can take up to two years of gluten-free eating to experience complete...
  2. trents
    If I may summarize what you seem to be trying to say, it is that switching to a gluten-free diet can cause other unexpected problems such as nutrient deficiencies or heavy metal toxicities. I have not heard before of issues with nickel but there have always been concerns about arsenic toxicity when switching to gluten-free eating because of all the rice-based...
  3. trents
    Also, PPI's and H2 blockers have been associated with Celiac disease in a causal sense: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3947159/
  4. trents
    Welcome to the fourm, Loulou! You certainly have enough symptoms that are commonly found in the celiac community that a serum antibody test is warranted. I would request this from the physician. Here is an overview of celiac antibody serum testing: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Many physicians will only...
  5. trents
    I think you may have mistyped. It's SIBO not SIBA. Small Intestine Bacterial Overgrowth. Thanks for the additional information, especially about the endoscopy and biopsy. Makes much more sense now. There are some other conditions and meds that can cause villous atrophy: https://www.verywellhealth.com/villous-atrophy-562583 It might be necessary...
  6. trents
    Sue Bee, who diagnosed you with celiac disease and on what basis? Your blood antibody values were negative and you say you have no symptoms. Did you have an endoscopy with biopsy to confirm celiac disease? This just doesn't make sense given the information you share. Is there more to it? You need to realize that have the genes for celiac disease does...
  7. trents
    You did not say which specific antibody test was done. tTG-IGA? Only the lab who did the analysis can answer your question for certain as different labs use different reference ranges for those rating categories but my guess would be a weak positive. Don't begin a gluten free diet yet as your physician may want to arrange for an endoscopy with biopsy to confirm...
  8. trents
    There is something called NCGS (Non Celiac Gluten Sensitivity) for which there currently is no test. A diagnosis of NCGS is arrived at by first eliminating Celiac Disease, for which there are two kinds of tests. Celiac Disease damages the villi that line the small bowel which leads to nutrient deficiencies since the villi are where nutrients are absorbed...
  9. trents
    Yes, that's what I am saying. And it's okay to be anxious. A very normal response, especially when a myriad of other rather serious health conditions have not yet been ruled out. And I think people also dread the implications of finding out they have celiac disease, realizing that it will call for some serious life-style changes and will alter their social...
  10. trents
    CRP is kind of a Swiss army knife for detecting inflammation but I have never heard of it being used for diagnostic purposes with regard to celiac disease. It is often used to detect rheumatoid processes. It's really important to keep eating normal amounts of gluten until all testing is done, including a biopsy should that be ordered. A lot of doctors...
  11. trents
    https://www.cleaneatingkitchen.com/how-to-reintroduce-meat-vegan/ LJ, note the reference to betaine HCL. This might really help.
  12. trents
    Your doctor may have ordered the CRP to check for other inflammatory processes but I have not ever heard of it being used for celiac disease diagnosis. Many of the symptoms you describe are very common to celiac disease as is the low Vitamin D levels. Nutrient malabsorbtion is caused by the damage to the small bowel villi. The villi are the nutrient...
  13. trents
    CRP (C-Reactive Protein) is an inflammatory marker that can be used to detect some kinds of inflammation/injury in the body but it is not one that is used for the inflammation of the small bowel lining found in celiac disease. CRP is not an appropriate lab test for diagnosing celiac disease whereas the tTG-IGA is and yours is high. What are your real-life...
  14. trents
    CRG? Do you mean CRP?
  15. trents
    Blood tests for vitamin deficiencies are not always helpful since they do not necessarily indicate how much of a vitamin is actually being taken into the tissues. Also, supplementing with some vitamins can mask deficiencies of others, such as folate supplementation masking B12 deficiency. Keep in mind also that the B vitamins are water soluble so there is...
  16. trents
    I'm not sure a 5 year old would take to chili with beans.
  17. trents
    Some of the symptoms you describe could be associated with celiac disease, particularly the bowel movement textures and the brain fog/lethargy. The recommendation of the Mayo Clinic for the pretest gluten challenge is the daily consumption of an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks prior to the antibody blood test and the...
  18. trents
    Looks like your son has a serum protein component that is low (globulin). This can be related to kidney disease. Bun/creatinine ratio is high. Bun and creatinine also have to do with kidney function. Has your physician discussed this with you? As far as celiac disease goes, he does have one antibody marker that is high, Gliadin AB Deamid. This test is...
  19. trents
    Here is some information: https://worldmedicinefoundation.com/health-news/widely-used-meat-glue-food-additive-may-cause-celiac-disease/
  20. trents
    Please understand that I am not definitively saying that meat glue is your problem. I'm just suggesting it could be based on what you shared. Meat glue is principally used in processed meats where shaping and molding of the product are involved, i.e., where the meat scraps are "pressed" into a shape for packaging. It would not be found in fresh meats such...
  21. trents
    "Gluten Free" just means that there is no more than 20ppm of gluten in the product per serving. Some celiacs still react to that amount of gluten. Also, there could be some other ingredient besides gluten in this product that you are reacting to.
  22. trents
    You mention that pepperoni and cold meat give you problems. You might want to look up "meat glue" and the problems it causes for some celiacs. The meat glue in processed meats is very similar to gluten.
  23. trents
    Welcome to the forum, Sheilatejeda! How old is your son? And would you be willing to post the complete results of the antibody testing that was done on your son? Were there any IGA tests run, particularrly a tTG-IGA test? What was the specific IGG test that was run? You say his globulin level came back lower than the first test. Do you refer to...
  24. trents
    smith123, do you have either celiac disease or non celiac gluten sensitivity (NCGS)? Just trying to figure out why you are posting in a forum for gluten-related health issues?
  25. trents
    ron123, do you have either celiac disease or non celiac gluten sensitivity (NCGS)? Just trying to figure out why you are posting in a forum dealing with gluten-related health issues.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.