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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    In your long narrative from your fist post you indicated you were still having neurological symptoms (brain stuff) after going back on gluten. Many celiacs do not experience digestive symptoms. We call them "silent" celiacs. It is a misconception that celiac disease will necessarily cause digestive distress. Many of the symptoms you describe, including...
  2. trents
    Your narrative makes me wonder if when you first went off gluten you were experiencing "gluten withdrawal." Many people on this forum report that experience for the first few weeks after cutting out gluten.
  3. trents
    I know nothing about calprotectin. Your mention of it is the first time I have even heard of it. So, I looked it up and it is a fecal test that can help distinguish between IBS and IBD. Yes, damage to the villi in duodenum can be patchy and can be missed if the doctor performing the biopsy is not experienced with celiac disease and fails to take samples...
  4. trents
    The malabsorption caused by celiac disease is due to the damage it causes the villi that line the small bowel. But you say you have had an endoscopy and biopsy of the small bowel (duodenum) lining and it did not show damage.
  5. trents
    Have you considered NCGS (Non Celiac Gluten Sensitivity)? Shares many of the symptoms with celiac disease but will not throw antibodies or show small bowel mucosal damage. And what about other food intolerances besides to those containing gluten?
  6. trents
    Bridgette's hair loss is likely caused by vitamin/mineral deficiencies. Celiac disease damages the villi that line the small bowel. It's the area where nutrients are absorbed from the food we eat. It often takes up to two years for the villi to heal completely once a serious gluten free diet is begun. Also, it is common for celiacs to develop other autoimmune...
  7. trents
    Welcome to the forum, Brian100! Some suggestions: 1. Avoid processed food as much as possible, even gluten-free ones. The alternative flours used in gluten-free food products are not fortified with vitamins as are their wheat counterparts. And hen you must eat processed gluten-free food, choose those that are "Certified Gluten Free" rather that just...
  8. trents
    No, not as of yet. The only remedy is total removal of gluten from the diet.
  9. trents
    So, what happened with that? Is there a therapy to correct it? Is it still a problem?
  10. trents
    Yes, you can post pictures. The attachment tool is under "edit" in the three horizontal dots upper right corner just above each post window. Choose edit from the menu and then you have access to the attachment tool. You have only 15 minutes to edit a post once it is submitted so if you want to add a picture after that then make a new post. How were you...
  11. trents
    I have never heard of B6 toxicity. Generally, people with celiac disease are low in B vitamins. Looked up B6 toxicity, there is such a a thing but it is always caused by extreme over dosage in supplementation and does not have other etiologies: "All cases of vitamin B6 toxicity are from supratherapeutic dosing, either iatrogenic or laypersons self...
  12. trents
    If adding a surcharge is declared illegal then eateries will just start eliminating gluten-free menu options. But the question of whether or not celiac disease constitutes a disability is an intriguing one and has some merit. It is a handicap when you must eat out. The thing is though, if the courts deem it a handicap, what will that do to the eatery business...
  13. trents
    You have definitely made good progress and your follow-up test numbers are probably typical of someone having made a serious effort to eat gluten free for four months out. I mean that in the sense that it is common to still have some lower range positives in the antibody scores after four months for someone who has been compliant. It commonly takes around...
  14. trents
    Ros292, you are obviously making good progress but it would have been helpful if you had included the reference standards used by the lab to determine what is a negative and what is positive for each of those tests. As to your question, "should i improve my compliance with the gluten-free diet?" The question implies your are aware you are not being ...
  15. trents
    The Mayo Clinic guideline for the prescope/biopsy gluten challenge is the amount of gluten equivalent to two slices of wheat bread daily for two weeks.
  16. trents
    Then I would not consider 52 an equivocal score. But there are some things besides celiac disease that can cause elevated tTG-IGA. But other causes are fairly uncommon. You might google, "What can cause elevated tTG-IGA scores besides celiac disease?" and "What can cause villous atrophy besides celiac disease?" Some other diseases and some medications...
  17. trents
    If it is NCGS you may still need to be mindful of CC but it really depends on how sensitive you are. That answer would only come with experience. But at the front end of the experiment you would need to be diligent as a control and then explore the CC issue.
  18. trents
    What was the reference range used by the lab? Different labs use different reference ranges for negative/positive.
  19. trents
    It can be a challenge to eliminate gluten from one's diet. There is a real learning curve involved. Most people who claim to be eating gluten free are really eating lower gluten, especially if they are still eating out. Cross-contamination is perhaps the hardest thing to control. If gluten is the issue you should be feeling better within a few weeks.
  20. trents
    Your total IGA appears to be in normal range. Not sure why you were told otherwise. I would assume you have NCGS and not celiac disease. The next step would be to trial a gluten-free diet and see if your symptoms improve significantly. But if your physician wants a biopsy done you need to stay on gluten until that is complete. The symptoms you describe after...
  21. trents
    Sorry, but there is not. If you are already eating gluten-free let's ask the most important question. Did your symptoms improve significantly with eliminating gluten?
  22. trents
    What was your tTG-IGA score? But to answer your question, yes. We sometimes do get forum participants who have positive blood work but negative biopsy. Seems to happen more often with children but we do get some adults who report this. I would assume this phenomenon indicates the celiac disease was caught in a very early stage before damage is done to the...
  23. trents
    You do not tell us what the normal range is for your total IGA score or for the tTG-IGA. Different labs use different reference ranges. Your symptoms are classic for either celiac disease or NCGS (Non Celiac Gluten Sensitivity). There are no tests for NCGS so celiac disease first has to be ruled out.
  24. trents
    Doesn't sound like taking him off of gluten really changed the pattern. But it might be a good idea to have him tested for celiac disease. He would need to be back on regular amounts of gluten for 6-8 weeks before the test. It is a blood antibody test. Tell the doctor you want at least a tTG-IGA test, total IGA and a tTG test: https://celiac.org/about-celiac...
  25. trents
    Milk of magnesia to soften things and break the dam. I might be a good idea to take a magnesium supplement on a regular basis as well. There are various forms of mag supplements. Some assimilate better than others and so have less laxative potential which can be an issue if too much is taken. So research first.
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