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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Even apart from diagnosing vitamin and mineral deficiencies, just with regard to celiac disease itself and diagnosing it, most primary care docs just don't have it on their radar. Most of us that participate on this forum regularly will attest to the fact that it took years and years after the onset of the disease to finally get diagnosed. That is slowly...
  2. trents
    As you may know, the DNA test can only establish the potential for developing celiac disease. It cannot establish whether or not you do have celiac disease. It takes both the potential and some kind of triggering stress event (such as a viral infection) to turn potential into active. But you say when you get stressed you get DH. How do you know it's...
  3. trents
    cecicec0, Celiac disease is not an allergy. It is an autoimmune disorder.
  4. trents
    Be aware that most medical doctors are not attentive to or have much knowledge with regard to nutritional deficiencies. I would not feel confident you will get a good steer from the typical medical doctor in this matter.
  5. trents
    Poor appetite can be symptomatic of a thiamine (B1) deficiency: https://www.healthline.com/nutrition/thiamine-deficiency-symptoms Because celiac disease damages the villi that line the small bowel, the place where nutrient absorption happens, vitamin and mineral deficiencies are very common in this group. My suggestion would be to start your partner...
  6. trents
    A health store may or Amazon might be good places to find individual vitamin products.
  7. trents
    I would not put much trust in tested Thiamine levels since tested vitamin and mineral level blood test results are not necessarily indicative of what is going on in the cells, just what the blood levels are as compared to medical whatever standards have been established for low or high, which may not be optimum levels. And if you have been supplementing,...
  8. trents
    Is your athletic training outstripping your caloric intake, leaving the body malnourished?
  9. trents
    Yes, but the pic you posted in your first post did not mention the Marsh modified scale. The results were posted in terms of the original Marsh scale values. But from the word "patchy" I would guess about 3a.
  10. trents
    https://www.verywellhealth.com/marsh-stage-of-celiac-disease-562711 Stage 4 is the worse. You are one step above that. I don't see anything about a "modified scale."
  11. trents
    Lynn, you seem to be posting twice with each new entry, one of them being blank. If you want to quote someone else's post you an click on Quote & Reply or if you don't want to quote someone, just scroll down the page a little more until you see your picture and click below that and a little toward the center of the page. A text box will then appear allowing...
  12. trents
  13. trents
    Lynn G, welcome to the forum! Your story is not an uncommon one. You are what we call a "silent" celiac. That is, you lack noticeable GI distress. Essentially, that is also my story. Elevated liver enzymes was what led to my diagnosis. It took me 13 years to get a diagnosis and by that time I had developed osteopenia and kyphosis. Be aware that...
  14. trents
    The two IGA tests are positive and the two IGG tests are negative. The centerpiece of antibody testing is the tTG-IGA and your number is not extremely high but solidly positive. There are two kinds of tests that can be run for celiac disease (antibody and biopsy of the small bowel lining) and you have had both run. I would assume you have celiac disease and...
  15. trents
    DevJac, welcome to the forum! We cannot comment on the antibody test numbers you shared because you did not include the reference ranges for negative/positive. They are not the same for every laboratory. Could you post back and include those? Positive blood work and negative biopsy is not uncommon. And it can happen for several reasons: 1....
  16. trents
    TT0202, are the supplements your mother is providing you gluten free? Wheat starch is often used in pills as a filler. I would check on each one when and if you do decide to go gluten free. Little things like that can keep inflammation smoldering in your gut and inhibit healing. Please keep in mind that if you do schedule testing for celiac disease you...
  17. trents
    Both the antibody blood test and the endoscopy/biopsy are positive for celiac disease. "Scalloping and blunting of the villi" equates to a positive biopsy even if the word "positive" wasn't included in the consultant notes. You now have had both kinds of tests that can be run to diagnose celiac disease. There is no reason for you not to start the gluten-free...
  18. trents
    Welcome to the forum, TT0202! Many of your symptoms are classic for celiac disease and many others I'm guessing are related to vitamin and mineral deficiencies. Celiac disease damages the villi of the small bowel. Consumption of gluten triggers an autoimmune response that causes the body to attach the villi that line the small bowel. This constant inflammation...
  19. trents
    So, as a vegetarian and not a vegan I take it you still will eat eggs and dairy?
  20. trents
    I appreciate your sympathetic response. Years later our son and his wife had the same experience. So, it is something that needs to be heeded. Thank goodness we now know so much more about why these things happen that people did years ago.
  21. trents
    As long as its not malted wheat, barley or rye that should not be a concern for people with gluten intolerance. Malting is a process that any cereal grain can be subjected to.
  22. trents
    The effects of one accidental glutening experience should not last a month IMO. Are you sure you haven't continued to get some gluten since then? And, maybe something else is wrong that has nothing to do with gluten but is coincidental.
  23. trents
    Or could it be the Almonds? Tree nuts are problematic for a lot of celiacs and for many people in the general population. Read the ingredient labels for both the Hershey bar and the chocolate almond milk and see what ingredients are common to both. Chocolate candies often have emulsifiers and other additives that can give some people problems. And "milk chocolate...
  24. trents
    Welcome to the forum, Madison! "Pre made chocolate chip cookies"? Do you mean the dough is already made at the factory such that these cookies just need to be baked? Like canned Pillsberry Doughboy biscuits? If the cookie dough is being purchased pre made such there is no mixing of flour in your work area, just baking, I would think that would pose...
  25. trents
    I agree with Russ314 on taking folate to prevent neurological tube defects. My wife and I lost an anencephalic child years ago and found out later it likely could have been prevented by folic acid supplementation.
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