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trents

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Everything posted by trents

  1. trents
    First, we not infrequently get posters on this forum who have this same pattern of neagtive antibody testing and positive biopsy. One thing that can cause a negative tTG-IGA is low total IGA. Was the total IGA count included in the results? Did the doctor even order it? It's also too bad that a full celiac panel was not ordered instead of just the tTG-IGA...
  2. trents
    About 10 years ago I developed clots in both lungs which led to the discovery that I have a clotting disorder known as Factor 5 Leiden. It's genetic so not connected with my celiac disease, at least not directly. I have a paternal uncle who has Factor 5 as well and another uncle on that side who was diagnosed with celiac disease. Typically, clots in the lungs...
  3. trents
    Was the millet bread cross contaminated with wheat, barley or rye perhaps?
  4. trents
    Another cause for negative celiac antibodies can be low total IGA. Apparently, some people's immune systems just give atypical responses to inflammation.
  5. trents
    Eating out is absolutely the biggest risk for celiacs there is. You just have no control of how or where food is cooked and how it is handled by kitchen staff.
  6. trents
    It's also possible that you have developed an intolerance to the protein in coconuts. Celiacs typically develop intolerance over time to one or more non-gluten foods. Dairy, eggs, soy, corn are common ones but it can be anything. It's the sign of a dysfunctional immune system that is at the heart of celiac disease in the first place. I have some degree of...
  7. trents
    Is this fresh coconut or processed/shredded? If the latter, could it have been processed on equipment that also processes gluten-containing food stuffs such that there is cross-contamination happening?
  8. trents
    Bagpipes noises? That's a new one. Is that Scottish for farting?
  9. trents
    Sounds like you got glutened from some unknown source. Have you been eating out? Have you checked pills and supplements for gluten? Are you kissing someone who is not gluten-free?
  10. trents
    https://smile.amazon.com/s?k=gliadin+x&crid=247ID1NWWQO86&sprefix=glia%2Caps%2C239&ref=nb_sb_ss_ts-doa-p_1_4 I can't vouch for any of these products. Look for those who have the same active ingredient(s) as GliadinX and pay attention also to the concentrations of them.
  11. trents
    Sorry about my statement concerning vitamin D insufficiency. I didn't read your test results carefully enough. According to that, you are not in the insufficient range. Do you still eat out? That is a huge risk because of cross contamination in the restaurant kitchen. You know, things being cooked in the same pots, pans and on the same grills as wheat...
  12. trents
    PME, Your tTG-IGA is definitely positive and that is especially significant in light of the fact that you may have been eating gluten free at the time. So, you need to get serious about consistently eating gluten free. It's not good enough to eat lower gluten or to be gluten free off and on. Especially with osteoporosis you need to double down on eating...
  13. trents
    Do you have online access to that celiac blood test from 2021 or can you get them to mail you a hard copy? There is more than one test that can be run for celiac diseae and without reference ranges of what the lab uses to establish negative vs. positive results, even that one number is pretty useless. Official guidelines for the blood antibody test is...
  14. trents
    The Mayo Clinic recommendation for a pretest gluten challenge is the consumption of the amount of gluten found in two slices of wheat bread daily for 6-8 weeks.
  15. trents
    Here's a primer for the different blood tests that can be run for celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  16. trents
    Welcome to the forum, KKmom! You should start feeling better soon if you are truly avoiding gluten but complete healing of the small bowel villi often takes around 2 years. Studies show that most people who believe they are eating gluten free are really practicing a lower gluten diet. Chief among the risk scenarios seems to be eating out. Mostly, it...
  17. trents
    Silent celiac disease is actually not uncommon. If left undiagnosed and unattended long enough it will eventually begin to make "noise". I was pretty much a silent celiac myself, though looking back after diagnosis I did have an occasional loose stool that attributed to something else. It commonly takes about 2 years for the gut to completely heal...
  18. trents
    Welcome to the forum, Oceanchills9. How were you diagnosed? Antibody test only? Did you have the endoscopy/biopsy done as well? Did you have D3 and zinc levels checked? https://www.webmd.com/connect-to-care/hair-loss/vitamin-deficiencies-that-can-cause-hair-loss It wouldn't hurt to add in some D3 and zinc supplementation. Serum vitamin level...
  19. trents
    I believe you need to be off supplements for three weeks before getting vitamin levels checked.
  20. trents
    marcel g, leaky gut syndrome is inevitably found with celiac disease. If you have celiac disease you will have leaky gut.
  21. trents
    Looks like the doc only ordered the tTG-IGA.
  22. trents
    Young children's immune systems are immature and may not react antibody wise as that of adults. I agree with knitty kitty that you should trial the gluten free diet for your daughter but just beware that if she ever did go for more testing, either serologic or the endoscopy/biopsy, she would need to go back on gluten for at least 2 weeks (biopsy method...
  23. trents
    Link please.
  24. trents
    I have. For me, I'm not sure it has made any difference but in all honesty I'm not sure I have given it a fair chance. It can be hard to tell whether or not it is effective since in almost every potential cross contamination situation you can't be sure if cross contamination actually happened. Once when eating at an Asian restaurant I took it before taking...
  25. trents
    TSH is thyroid hormone levels. Serum refers to things that are in the blood. Folate is also known as folic acid. It works closely with the B-vitamin group. Maintaining adequate folate is especially important for women in their child bearing years. Low folate levels can result in birth defects, particularly those that have to do with brain and spinal...
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