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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    "Mostly cooperative" is going to regularly get you glutened and prevent full healing of the damaged villi in your small bowel. You must take it upon yourself to see that it doesn't happen. Do you have an area of the kitchen or in your bedroom where you could store stuff? As far as dishes and utensils, get in the habit of inspecting them before you use them...
  2. trents
    So where are you in the pecking order of the household group? Spouse? Parent? Child? fellow tenant? Dorm mate? How much authority do you have to structure your environment? Ideally, you should be storing your gluten-free food, pots and pans and cooking utensils in a separate place and use your own washing rags. But I understand what a pain that is. But...
  3. trents
    Welcome to the forum, Bethany1999! How sensitive to cross contamination are you? Do traces of gluten make you ill? Notice I'm not saying that there is no inflammation happening if you don't get ill but in the real world your reaction threshold my be a starting point.
  4. trents
    Yes, and unfortunately the gluten sensor devices that were developed some years ago seem not to be available anymore.
  5. trents
    Thanks for your comment about my profile pic. You have brief amount of time to add a pic or otherwise edit a post before having to create a new post to accommodate the change.
  6. trents
    Thanks for the update, StephD. There is a learning curve involved in eating gluten-free and mistakes will be made occasionally. But when that happens, keep in mind that overall you are still in a healing tragectory with your daughter. Most of the challenges will be in social settings involving food like birthday parties. I know you are relieved that she won...
  7. trents
    Yes, rice and tapioca flour tend to dominate gluten-free flours and processed ready-made mixes and snacks. One spinoff of that is you miss out on the nutritional additives of wheat flour so gluten-free flours are pretty barren from a nutritional standpoint. Look for gluten-free flours that have a nut base to them like almond flour.
  8. trents
    You make a lot of questionable connections IMO. Are you familiar with the story of Chicken Little? Histamine reactions occur which cause an acidic environment?
  9. trents
    Click on the three dots in the upper right corner of the post window. Click on edit from the menu. Then click on the paperclip at the bottom. After that you would need to create a new post.
  10. trents
    Christiana gives good advice. It shouldn't take two years for "gluten to leave" your body. What takes two years is the complete healing of the villi damaged by all those years of gluten consumption during your previous to diagnosis. Also, have you considered the possibility that your continuing problems are being caused by another food intolerance...
  11. trents
    I think the aging process can do that, at least to some extent. How much is converted may vary from aged cheese to age cheese. By the way, this happens with Buttermilk to some extent.
  12. trents
    I think all they do is break down the lactose in the milk buy adding lactase. The enzyme lactase, which breaks down lactose, is produced by the epithelial cells that line our gut. But some people don't make enough of it to break down lactose well. Lactose cannot be absorbed by the gut so it must be broken down into simpler sugars that can be. When it isn...
  13. trents
    Jackie, how do you know it's not the protein in dairy that bothers you instead of the sugar in milk (lactose)? Have you tried lactose free milk?
  14. trents
    That wouldn't be a bad idea in my opinion. And I agree with you suspicion that you have some problem not diet-driven.
  15. trents
    If you do go in to get it biopsied make sure you explain to the doctor you specifically want it checked for DH. Remember, a lot of physicians just don't have celiac disease on their radar. They are operating on very dated information from medical school. Those of us veterans in the celiac community have discovered we can't assume any doctors will automatically...
  16. trents
    Blistering is one of the characteristics of DH that sets it apart from other "rashes" though, DH is not considered a rash. I would recommend getting it biopsied for DH the next time you have an outbreak. Of course, it can be difficult to get a dermatologist appointment when you need one on short notice.
  17. trents
    Protein is an essential macro nutrient. If you have a problem with protein it would be a specific kind of protein or proteins. The only people who need to go on a low protein diet are those with kidney disease. Otherwise, with your diet as restricted as it is you need to keep your protein up but identify any particular proteins that may be causing you problems...
  18. trents
    Sunnysi1, celiac disease causes inflammation and damage to the villi that line the small bowel. This is the area of the intestinal track where all of the nutrients from the food we eat get absorbed. The damaged villi are no longer able to absorb nutrients efficiently so we typically develop vitamin and mineral deficiencies. In addition to the magnesium supplement...
  19. trents
    Laura Renee, do you mean it's only for the last 12 years you have been consistent with the gluten free diet? Do you speak of NCGS or celiac disease when you use the term allergy? Celiac disease is an autoimmune disorder, not an allergy. Don't mean to be picky but we are constantly battling that misconception in the public sector.
  20. trents
    I would guess your spasms are related to vitamin and mineral deficiencies which are normal for celiacs.
  21. trents
    First, can you be more specific about what blood tests were run that turned up positive for celiac? Do you have access to those records online or a hard copy. Can you post the results along with reference ranges? This might help you understand what I'm looking for: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. The tTG-IGA...
  22. trents
    The author of this article seems to overlook the obvious that she doesn't have celiac disease but NCGS.
  23. trents
    Lois, welcome to the forum! Can you provide a link to back up this claim? What you say runs contrary to everything else we have held to about diagnosing celiac disease. Yes, genetic testing is not affected by whether or not you have been recently ingesting gluten. That's not the point I want to make. However, genetic testing cannot be used to diagnose...
  24. trents
    Petition the FDA. In the meantime, celiacs need to eat in the real world which means being aware of how the FDA defines the term "gluten free". "Cured" of cancer in the medical world does not mean it will not come back. It means doctors believe you will have at least five years of being cancer free.
  25. trents
    As long as it contains no more than 20ppm it can legitimately be labeled "Gluten Free" according to FDA regulations. Theoretically, you can separate the gluten from the wheat and so meet the FDA standards. I wish all of you who fall into the extra sensitive element of the celiac community would quit using the term "Gluten Free" to mean the same thing as ...
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