Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,818

  • Joined

  • Last visited

  • Days Won

    548

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    The Mayo Clinic guidelines for the pre-biopsy gluten challenge is 2 weeks of eating at least two slices of wheat bread daily (or the equivalent). However, it's much longer for the antibody test, 6-8 weeks. I mention that because apparently the physical damage shows up more quickly than does the inflammatory response that is detected by the antibody tests...
  2. trents
    Well, I just hope the immunosuppressent you are taking doesn't sabotage your biopsy results. I have been gluten free for many years now and have lost all tolerance to it. If I were to eat a pizza now I would be experiencing intractable vomiting for several hours with excruciating gut cramps followed by several hours of diarrhea.
  3. trents
    I am not a physician but that I know of, there is no immunosuppressant drug that is so targeted that it does not have at least some systemic effect. I mean, think about all those TV commercials that advertise immunosupressants for psoriasis, crohns, and you name it and they all have disclaimers that they can increase your risk for cancer and various infections...
  4. trents
    We have had a few posters who claimed to have experienced a period of remission. But this does not seem to last. It seems more common with children whose immune systems are still under development.
  5. trents
    Welcome, Patrick! You may find this helpful: https://nationalceliac.org/celiac-disease-support-groups/
  6. trents
    Welcome to the forum, flyttfag31! We do know that if you have been gluten free for a significant amount of time you lose all tolerance such that when you accidentally get glutened your reaction is typically much more severe than when you were consuming gluten regularly. At least it works that way for those who do have celiac disease. I'm assuming it...
  7. trents
    samden, welcome to the forum! There are some other medical conditions that can cause elevated tTG counts but by far the most likely cause is celiac disease. The centerpiece of the celiac blood panel is the tTG-IgA which has both good specificity and good sensitivity. And yours is high. Do you have access to the reference ranges for negative vs. positive...
  8. trents
    Sarah, welcome to the forum! To achieve a truly gluten free lifestyle generally involves quite an education process as gluten is hidden in places and ways nobody ever expects. Recent research has shown that most people who claim to be eating gluten free are actually practicing a lower gluten diet but still getting "glutened" regularly. This particularly...
  9. trents
    Yes, but if GliadinX breaks down enough of the traces of gluten found in CC scenarios such that there is less than enough left to cause a celiac reaction, then it has accomplished the purpose, has it not? Seems to me you are setting up a straw man argument based on the premise that GliadinX is guilty of misleading people who use the product outside of the...
  10. trents
    There are only a few things that can cause villi blunting in the duodenum, celiac disease being the most common: Have you been tested for H. Pylori and for SIBO? These additional maladies are not uncommon among the celiac population. How are your liver enzymes (ALT, AST, Bilirubin)?
  11. trents
    I see nothing in the original statement from the article, which you quote, which contradicts your alteration. The author never states they don't contain gluten at all, therefore allowing for exactly what you stated. Please read these articles more carefully before you start calling people liars. If anything, your beef should not be with Jefferson Adams but...
  12. trents
    Welcome to the forum, Marina! It is possible you were misdiagnosed but it is also possible you have something else going on in addition to celiac disease. But first things first. Can you share more information about how you were diagnosed with celiac disease? What tests were run and do you have the test numbers? I am assuming you had blood antibody testing...
  13. trents
    The problem with your suggestion, Doug, is that not two people will agree on which are good and which are not. In my experience in recommending gluten-free sliced bread for people just starting on the gluten-free journey, what I think is the best, they hate. And what they find they like, I don't. It such an individual thing. But if you want my input...
  14. trents
    Do you know exactly what antibody tests were run on our son? Children's immune systems are immature and frequently don't respond the same way as an adult's would. We see a lot of this on the forum. Many physicians will only run the tTG-IGA instead of a full celiac panel. Do you have access to more information about what tests were run? https://celiac...
  15. trents
    Your argument is one based on logical extremes. That often is not valid.
  16. trents
    It should not be too difficult to compensate for the nutrition found in wheat products. Almost 95 percent of the white flour in the United States is enriched with iron and four of the B vitamins: thiamin, niacin, riboflavin and folic acid. By contrast, fortified flour may contain folic acid in amounts that exceed those present in whole-wheat flour. Calcium...
  17. trents
    Exactly! All these people reporting being "glutened" may be either super sensitive or reacting to some other ingredient besides gluten. But for them to say things like, "Don't eat this pizza unless you want to get poisoned" is way overdone.
  18. trents
    There are home test kits available from different companies to test for celiac IGA anitbodies: https://www.imaware.health/at-home-blood-test/celiac-disease-monitoring I believe there are other companies besides Imaware that offer these. But again for the tests to be valid you must be eating significant amounts of gluten daily for a couple of months before...
  19. trents
    Not actually true. The only gluten containing grains are wheat, barley and rye. Gluten is a very specific protein found only in those three grains. Informally, you will hear of "corn gluten" but it is a misnomer. Having said that, it is no secret that many celiacs have additional food intolerances not related to gluten that generate very similar reactions...
  20. trents
    Looks like you have celiac disease to me. Your results in the IGA antibody tests, which are the most important, are unequivocal. It is likely that your GI doc may want to order an endoscopy with biopsy so don't cut down on gluten yet or you will sabotage any additional testing. The endoscopy with biopsy is considered the gold standard diagnostic test...
  21. trents
    Are you on prenatal vitamins? Celiac disease typically creates vitamin and mineral deficiencies because of the damage done to the lining ("villi") of the small bowel where all nutrition is absorbed. I wold certainly make sure you are on a folate supplement to guard against neural tube defects in the womb as your baby develops. And as others have said, B vitamins...
  22. trents
    I think that is everything.
  23. trents
    Welcome to the forum, Sam! First, some who actually do have celiac disease don't produce tTG-IGA antibodies. We get this effect not infrequently from forum participants. That's the value of getting a "full celiac panel" done and not just the tTG-IGA. A full celiac panel would include a total IGA count. If total IGA is low then it will suppress the tTG...
  24. trents
    A little dated but nonetheless, a good find, Russ! I also note that four of the people in the test group who did have celiac disease did not have elevated tTG-IGA values. That agrees with the experience some of our forum participants of late and reinforces the value of getting a full celiac panel run rather than just the tTG-IGA.
  25. trents
    My reactions to getting glutened happen within 2-3 hours of consuming it. Hours of intense gut cramps, intractable vomiting followed by a few hours of diarrhea. I have celiac disease, not NCGS.
×
×
  • Create New...