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trents

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Everything posted by trents

  1. trents
    Most physicians will not order a full celiac panel to begin with because of the expense. Many physicians will order only the tTG-IGA to begin with and maybe a total IGA along with it. If the tTG-IGA is negative despite obvious symptoms being experienced by the patient and or the total IGA is low then they may order a full celiac panel and even a biopsy. ...
  2. trents
    One thing to keep in mind is that there is a lot of general ignorance about celiac disease in the medical community. Even among some GI docs if they are older and been out of med school for a long time. Those of us in the celiac community have come to realize we need to arm ourselves with knowledge and be assertive if needed testing is to get done. If docs...
  3. trents
    I do not have a clear recommendation for you with regard to the biopsy. If she is asymptomatic you might just wait another year and get antibody testing done again. If she has symptoms and is in distress I would either trial a gluten free diet or move forward with the biopsy.
  4. trents
    Her IGA is in the middle of the normal range: IgAYour Value124 mg/dLStandard Range35 - 250 mg/dL. It is not low. If total IGA is low it can create a downward skew of individual IGA values, i.e, can result in false negatives. That is one case scenario when doing IGG testing can be helpful. It can catch celiac in those cases. It is not uncommon for children...
  5. trents
    I'm not sure what he meant by a "celiac algorithm" but he did order some IGA testing. The centerpiece of the IGA testing is the tTG-IGA which is considered the best combination of sensitivity and specificity. That test was positive according to the what you posted in your original post. The value was 28 and the high end of normal was 15. There are some other...
  6. trents
    It has been said that for some people even an amount of gluten equivalent to a quarter of a grain of rice can produce a reaction.
  7. trents
    Do you get them when you get cross contamination?
  8. trents
    The biopsy is not fool proof. There are times when the disease is caught at an early stage or there is a different type of celiac response such as dermatitis herpetiformis. Sometime the damage to the small bowel villi is patchy and the biopsy misses an affected area. The latter can happen when the one doing the scoping is not experienced with celiac diagnosis...
  9. trents
    Welcome to the forum, Hannah! Seems like the focus should be on getting you feeling well consistently as not feeling well consistently has played a major role in the breakup of your recent relationship. You have identified some foods besides gluten which you seem to have developed intolerance to. As you know, the development of additional food intolerances...
  10. trents
    Oh, my coach! You have been through a lot of health-related trials. I certainly can understand how frustrating it would be to always have something going wrong like that and not have firm answers. Many on this forum will testify that it took many years to get their celiac disease diagnosed only to find that it was at the foundation of their medical problems...
  11. trents
    Prednisone is still a very popular immunosuppressant med because it is effective for many different kinds of inflammatory problems and because it is dirt cheap. It has been used for a long time and is relatively safe for short term occasional use. It is a known and trusted commodity in the medical world. Sometimes if you can arrest an inflammatory process...
  12. trents
    Welcome to the forum, NickG! First, recent studies show that most people claiming to eat gluten free are actually eating a lower gluten diet but not gluten free. These studies also show that this is particularly true for those who still eat out. When you eat out, even when you order items that are naturally gluten free, you don't have much control over...
  13. trents
    Coach, I know all this is very confusing to you as a noob. So, let's just keep it simple. When you talk to your doctor, just ask her two simple questions: 1. Do any of the blood antibody tests point to celiac disease. If so, which ones? 2. Did the biopsy taken from the endoscopy show the villous atrophy characteristic of celiac disease?
  14. trents
    The endoscopy with biopsy to check for villi blunting is considered the gold standard test for celiac disease. From the additional antibody blood work numbers you have shard it looks like maybe your IGA tests were normal but your IGG test was elevated. Since your total IGA was on the low end of normal, which could have repressed your tTG, your doctor...
  15. trents
    In an ideal world the answer would be "Yes" to all your questions. However, I would focus on porous cooking equipment such as cast iron skillets and wooden utensils and cutting boards. Also, don't use the same toaster and toaster oven/oven racks when toasting or baking. Clean counter surfaces thoroughly. The answer to your question depends in large part on...
  16. trents
    Coach, From the IGA numbers you gave it sounds like your total IGA is low, which can skew the specific IGA tests for celiac disease downward. One thing you don't want to do is to attempt gluten free eating before all testing specific for celiac disease is complete. If you go gluten free before testing is done, the inflammation in the small bowel lining...
  17. trents
    That second link dealing with D toxicity is a great read. Thanks, Wheatwacked!
  18. trents
    Coach, I feel you are not grasping that celiac disease is not an allergy. It is an autoimmune condition. It cannot be diagnosed by any kind of allergy testing. Celiac disease engages an entirely different immune system pathway than do allergies. So all this leads me to ask, how were you diagnosed with celiac disease? What kind of physician diagnosed...
  19. trents
    Coach, I hope you will apply a stricter standard than 80% as far as gluten goes. Other food allergies will not likely damage your body but for a celiac, gluten does damage the body. It creates inflammation of the small bowel lining which, in turn, blunts the "villi." The villous lining of the small bowel is where all nutrition is absorbed from what you eat...
  20. trents
    Coach, Can you elaborate more on your food allergy testing? What kind of test was it? Skin prick test? ALCAT? ELISA? Keep in mind that these tests can produce false positives and the results can vary significantly when the same blood sample is sent to different labs. Often there is the problem of food allergy testing turning up a list of reactions...
  21. trents
    It is the same here in the USA IMO. No dissent allowed. And I speak as one who has chosen for myself to get vaxed 3x.
  22. trents
    I have celiac disease, not NCGS. You may be correct in your thinking here but please be aware that there is some evidence that NCGS may be a precursor to celiac disease. And although gluten does not damage the SB villi in those with NCGS, it can damage other body systems, particularly from a nuerological stanpoint: https://www.foodsmatter.com/coeliac-disease...
  23. trents
    And my understanding is that many of that 1% are still undiagnosed, i.e., diagnosed cases are much less than 1%.
  24. trents
    JohnSue, welcome to the forum! I am sorry to hear your wife is still suffering so after being diagnosed with celiac disease. Studies show that most people who claim to be eating gluten-free really aren't. They are in fact eating a lower gluten diet than before. This is particularly true of those still eating out. Gluten can be found not only in food...
  25. trents
    It would probably be a good idea to check to make sure all your meds and supplements are gluten free. Wheat starch is sometimes used as a filler in pills. This might be helpful: Ones not in that list you may have to contact the manufacturer. Pharmacists can help with getting contact information. As you probably know, because celiac disease damages...
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