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trents

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Everything posted by trents

  1. trents
    The same way you did the whole text. Highlight the URL, which is the internet address of the article towards the top of your browser, then copy and paste it into the forum post window.
  2. trents
    "Autoimmune reaction: Autoimmune reaction to gluten proteins is found in celiac disease, non-celiac gluten sensitivity, wheat allergy, gluten ataxia, and dermatitis herpetiformis." I found this statement from the article you pasted, Jackie to answer one question I have had about NCGS. Now I know it, like celiac disease, is an autoimmune condition. But...
  3. trents
    Don't assume anything doesn't have gluten, except tap water maybe. Were you taking the benedryl tabs or liquid?
  4. trents
    There is a real learning curve when it comes to actually eating gluten free as opposed to just cutting out "most" gluten in the diet. There is the whole issue of cross contamination. Pills and supplements and oral hygiene products can be sources of "glutening". If you are still eating out then studies show that is the biggest risk for cross contamination...
  5. trents
    In adults, full healing of the villi can often take around two years. But there should be significant healing withing weeks or months that should result in your quite a bit better. You may have other food intolerances besides celiac disease. Have you been tested for SIBO or even fructose intolerance? Many fruits are high in fructose.
  6. trents
    Welcome to the forum, Ziata! May we ask your approximate age? Do you have other health issues such as circulation or neurological problems? As far as the reaction to the cottage cheese, it is not uncommon for celiacs to develop an intolerance to dairy. The protein in dairy, casein, is similar enough to gluten to cause a cross reaction in some people...
  7. trents
    Check for gluten in pills and supplements as well, oral hygiene products, etc.
  8. trents
    I've said this before but I'll say it again. There's this philosophy out there that every change humans make to nature is necessarily bad. And granted, there are plenty of examples of that being the case. But IMO, nature doesn't always get it right either. And there are many examples where human engineering has improved upon nature and corrected problems...
  9. trents
    Sounds like your are coping appropriately, Jvn7.
  10. trents
    Claire, you may have either celiac disease or NCGS (Non Celiac Gluten Sensitivity). Celiac Disease is not an allergy. It is an autoimmune response to the ingestion of gluten. This autoimmune response causes inflammation and damage to the small bowel lining. You need to request a blood antibody test for celiac disease from your physician: Open Original Shared...
  11. trents
    "I eat out a lot with family because everyone is a foodie in my family but it's so hard to avoid contamination." Sorry, I probably read too much into that. So, you're talking only about out at restaurants rather than eating at family members' homes? Yes, CC (cross contamination) is very difficult to avoid when eating out because you have little control...
  12. trents
    I agree with Scott. The proof is in the pudding. If removing gluten from your life makes you feel better that is what to focus on.
  13. trents
    Vilified or verified?
  14. trents
    Yes, that is usually how it works when you try to go back on gluten for testing after a significant time away from it.
  15. trents
    Scott is right. Your numbers are not high but solidly positive. I was wrong in saying "barely positive" but we not uncommonly get reports on this forum of people with numbers 10-15x normal.
  16. trents
    What about NCGS (Non Celiac Gluten Sesitivity) instead of celiac disease. They have common symptoms and the antidote is the same, total abstinence from gluten. No damage to the villi, though with NCGS like there is for celiac disease and there is no test for it. Celiac disease must first be ruled out. In addition to that, some people who do have celiac disease...
  17. trents
    Yes. There is no other know cause for DH other than celiac disease. But are you sure the skin issues were in fact DH and not some other kind of skin condition? My understanding is DH has a very distinctive appearance with blisters.
  18. trents
    Gliaden X might work for small amounts of gluten consumed such as in accidental cross contamination scenarios but it sounds like that at times the OP knowingly consumes larger amounts.
  19. trents
    Yes, typing on a cell phone makes it difficult to be clear sometimes. Since there is no test for NCGS I would presume the positive stool test means you have celiac disease, despite the negative biopsies. Sometimes we do get reports from posters of that happening. Perhaps the biopsies were taken at an early stage of the disease process before there was...
  20. trents
    Welcome to the forum, Jvn7! In answer to your question, one which has been asked many times on this forum, we know of nothing that really facilitates recovery from an episode of glutening. There is woeful ignorance in the medical community as a whole with regard to celiac disease. It's just not on the radar of most physicians, though there is a...
  21. trents
    It wasn't clear to me if you were saying your were diagnosed with celiac disease from the stool test or NCGS since you used the term "gluten intolerant" which can be used for either. And you also said the nurse practitioner opined that you had celiac disease, even though you had two negative biopsies. And the fact that you feel better after cutting out gluten...
  22. trents
    Had you been eating more gluten I expect your test numbers would have been higher.
  23. trents
    Belinda, your numbers are barely positive but they do suggest celiac disease. By chance, when the blood test was done, had you already started cutting back on gluten? Jill, there are two medical diseases that involve a reaction to gluten. One is known as celiac disease. There are two common tests that are used to diagnose celiac disease. One is a blood...
  24. trents
    The physician prescribed Budesonide for refractory celiac disease? That certainly is an atypical application since it is a cortico-steroid normally prescribed for asthma and COPD. Have you explored the idea with your doc of something common and inexpensive like prednisone? How diligent are you in eliminating gluten from your diet? Studies have shown...
  25. trents
    Yes, you were very careful. But the wording, "If this sounds like your friend," (whom she also identifies as her sister) seems to barely avoid a diagnosis. At least to me. Especially when you went into such detail about narcissistic personality disorder. I felt like I was reading a post from a psychology forum.
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