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trents

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Everything posted by trents

  1. trents
    Two things about Scott's recommendation here: 1. Millet is a type of wild rice. Not sure if it would cause the same allergy issues that regular rice does. The company Scott linked sells some bread products without millet. Just beware of the millet issue. 2. Spendy! And then add shipping unless you live close by their bakery.
  2. trents
    Not necessarily. Do you think you might have dermatitis herpetiformis (DH)? It is classic sign of having celiac disease. With some people, celiac disease manifests itself as DH instead of gut issues. And some have both, I think.
  3. trents
    DH has a characteristic appearance with little blisters I think. See if you can google it and get a good picture to compare it to the rash you have.
  4. trents
    Hi Charlie and welcome to the forum! Can you talk to your mother and ask her to start separating your food from your brother's food? Or maybe putting a mark on your food or putting it in special containers that look different? Do you think your mother takes your celiac disease seriously? Does she understand how important it is for you to avoid gluten...
  5. trents
    Coach, welcome to the forum! You will be hard pressed to find ready made gluten free bread without rice. I see some recipes for baking your own, however. You just might need to start doing that. Here's one made from buckwheat flour. Buckwheat, despite what it sounds like, is not related to wheat: https://www.thespruceeats.com/gluten-free-buckwheat-bread...
  6. trents
    It would be interesting to know if the increased rate of NAFLD is actually caused by the gluten free diet or simply coincidental; a condition preexisting at the time of the celiac diagnosis that progresses over time and independently of a gluten free diet. It's too bad there isn't a control group consisting of those with diagnosed celiac disease who did not...
  7. trents
    PammaDawn, are you still eating out?
  8. trents
    Wheatwhacked, why do you believe Elvis had celiac? Karen Carpenter I can see. But Elvis?
  9. trents
    Love your user name!
  10. trents
    Welcome to the forum, Alison11! What you describe has also been my experience but over the years as I have experienced more complete healing in my small bowel villi, the problem with raw veggies you describe has significantly lessened. I can now eat raw veggies in limited quantities without issue. Some raw veggies like broccoli and cauliflower have bothered...
  11. trents
    Welcome to the forum, PammaDawn! As you indicate, you are already aware that celiacs often develop other food sensitivities. Chief among them are dairy and oats. Soy and eggs are also common food sensitivity villains. Some medications such as NSAIDs can also damage the SB villi. And any med or supplement that contains wheat starch as a filler would be...
  12. trents
    Jill Sherman, did you mean DH rather than HD?
  13. trents
    Titulartee, welcome to the forum! A positive tTG-IGA makes it very likely you have celiac disease, especially if you have GI symptoms appropriate to celiac disease. Unless the damage to the small bowel villi is in an advanced state it would be difficult, I believe, to recognize it with the scope alone. That's why they send it out to a lab for microscopic...
  14. trents
    Gfsharon, Sorry, I misunderstood the intent of your post. I took your post to mean since Red Apple isn't on the gluten-free cosmetics list here at celiac.com, they must not be gluten free. It seems like they should be added as the list is always a work in progress.
  15. trents
    Agree.
  16. trents
    What medicines are you on? Some medications are actually counterproductive to healing of the villi. Are you on a PPI or an NSAID? Also, are you still eating oats or dairy? About 10% of people with celiac disease react to the protein avenin in oats like the do gluten in wheat, barley and rye. Also, studies show that some people experience villi blunting...
  17. trents
    What do you mean by "not enough support in place?" A colonoscopy is not the correct test for diagnosing celiac disease. A colonoscopy is used to scope the lower bowel. Celiac disease damages the lining of the upper (small) bowel so an endoscopy with biopsy is used to diagnose celiac disease. About 10% of celiacs react to the protein "avenin" in...
  18. trents
    Ideally, you should reschedule your endoscopy and go back on gluten until the new test date rolls around. I'm afraid you have been off gluten long enough now that the results of the endoscopy/biopsy will be compromised. It may be negative and this will just confuse the situation since you have one type of test that is positive and another that is negative...
  19. trents
    They are not testing you for gluten. They are testing you for the damage to your small bowel lining from the inflammation caused by eating gluten. So, you don't want the inflammation to subside by going gluten free. How long have you been gluten free?
  20. trents
    Many doctors don't know enough about celiac disease to know to advise them to keep eating regular amounts of gluten until testing is complete. If you go off gluten for a significant amount of time before testing then healing begins to happen and the testing is compromised. Testing is designed to measure the damage done by the inflammation gluten causes to...
  21. trents
    Welcome to the forum, PcParkman! There have been cases of celiac remission but it eventually comes back. These are fairly rare so for all intents and purposes we should say it does not go away. It usually gets dramatically better if you go on a totally gluten free diet for a life time but that is the only therapy so for all intents and purposes it is...
  22. trents
    No. "The EMA-IgA test is an important marker for celiac disease, portraying a 99% accuracy rate. This test is expensive and involves a high degree of technical precision. It is used as an accompanying test along with the routine tTG-IgA test to confirm the diagnosis of celiac disease. This test implies that anyone with a high titer of EMA is sure to...
  23. trents
    Thank you, RMJ. If I recall correctly, you are a medical lab professional or in biochemistry?
  24. trents
    Have you contacted the company who makes this product to ask them if it is gluten free? Or even if they can answer that question?
  25. trents
    I'm sorry. I stated incorrectly about the deamidated gliadin igg antibody. It is not high. It is within reference range. It does appear that the lab added on a total IGA to make sure that a possible low total IGA count was not causing a false negative for the ttg-IGA. Apparently, because of the symptoms and the family history they had expected to find...
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