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trents

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Everything posted by trents

  1. trents
    LaChoy makes a gluten free soy sauce (no wheat) and is found in our local Safeway store.
  2. trents
    Were you having this nausea before you started on the gluten-free diet?
  3. trents
    Welcome to the forum, BuzzB! Pretest gluten exposure guidelines given by the Mayo Clinic for the endoscopy/biopsy are the daily consumption of an amount of gluten equivalent to what would be found in two slices of wheat bread for at least two weeks. For the antibody blood test the same amount of gluten should be consumed for 6-8 weeks before the blood...
  4. trents
    Lack of symptoms is not a reliable indicator of whether or not low level inflammation in the small bowel lining is happening.
  5. trents
    Sharing a toaster is a big no no! Have you checked meds and supplements? Wheat starch can be used as filler. And I don't think the FDA requires allergens to be listed for meds. Often, you have to call the company who manufactures them to find that out. Are you still on dairy and oats? Some celiacs react to the proteins in those two foods like they...
  6. trents
    I am aware that in some celiacs dairy can cause villi blunting. That has been researched and documented by NIH. But broad scale gluten cross reactivity is a dubious concept for which there is not reliable data: https://www.cureceliacdisease.org/faq/whats-with-all-the-talk-about-certain-types-of-food-causing-cross-reactivity/ I would suggest you go back...
  7. trents
    You are probably still getting minor amounts of gluten from some source. Be aware that when you have been off gluen for a significant amount of time and then go back on it for testing purposes you may find your reactions much stronger than in the pre gluten free days. It may make you quite ill.
  8. trents
    I would suggest adding a gluten-free high potency B-complex to that mix.
  9. trents
    According to Gluten Watchdog, lentils are the number one dried food for cross contamination with wheat.
  10. trents
    What do you mean by "gluten cross reactors"?
  11. trents
    In the UK you would have likely been given a diagnosis of celiac disease because your tTG-IGA was greater than 10x normal. But I will tell you we sometimes see this pattern of positive antibody tests with negative biopsy. You might consider starting a gluten free diet to see if your symptoms improve. Your symptoms are classic for either celiac disease...
  12. trents
    This may be helpful: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Do you know what your son's total IGA was and the reference used? One option would be to start him on a gluten free diet and see if his symptoms improve. I think your take on the situation is probably correct. You may have caught it early. Judging...
  13. trents
    Read my last post again. I edited and added some.
  14. trents
    Usually just one if the biopsy is done correctly. You may want to have another one done 1-3 years down the road after going gluten free to check for healing progress in the small bowel lining which can take up to two years to be complete. It's okay to go gluten free up until a few weeks before the scope but then you will need to start consuming an amount...
  15. trents
    I've had several endoscopies done and where I live they use a short duration sedation of some kind. It was a piece of cake. The only thing I remember about them was the inserting the scope in my mouth but there is no memory of anything else until it was over. No pain or tenderness afterward. They will ask you to not eat anything after midnight so your stomach...
  16. trents
    I see. I was asking because people with CHF for instance are often on water restrictions.
  17. trents
    So, is there some medical condition that prevents you from drinking more water?
  18. trents
    I wish you well and that you get some things figured out.
  19. trents
    Welcome to the forum, Jeff! Yes, we do sometimes get negative antibody blood tests but positive biopsies. There is a celiac antibody panel that can be run to give a more complete picture of how the immune system is responding. Many physicians will only order the tTG-IGA test which is considered to be the centerpiece of the panel but there are some people...
  20. trents
    I would suggest focusing on fresh, simple and basic foods that you cook for yourself. Yes, seasonings can contain gluten. Wheat is sometimes used as a binding-texturing agent for seasonings and cross contamination in the manufacture of seasonings can also be an issue. Stick with salt and pepper for awhile. When you say you get an "awful celiac rash"...
  21. trents
    And the thing is, you may be fine with one production batch because the gluten content is quite low but another production batch may contain much more gluten and make you ill. When you have an open-ended label statement like that it is what you will get.
  22. trents
    Sounds like eating things labeled "may contain traces of wheat/gluten" is as risky as it is here in the USA. Russian roulette.
  23. trents
    Sometimes loss of appetite can be caused by vitamin deficiencies. I suggest you research this. Here are a couple of starter links: https://www.livestrong.com/article/293798-vitamins-to-increase-the-appetite/ https://www.livestrong.com/article/385701-vitamin-d-loss-of-appetite/ Are you taking any supplements? Have you had any follow-up antibody...
  24. trents
    I haven't seen "may contain traces of gluten" on gluten free products in the USA. To use the gluten-free label in the USA requires that foods contain no more than 20ppm of gluten. Now, while 20ppm can trigger a gluten reaction in some more sensitive celiacs, at least there is a standard of compliance. Is that true in Sweden and what is the standard? If foods...
  25. trents
    Not really. The traces of gluten may or may not be enough gluten to trigger inflammation. And whether or not you experience physical distress is not necessarily a reliable indicator of whether or not inflammation is taking place. The inflammation may not be intense enough to discern. And with the same food with that label, the amount of gluten in it may vary...
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