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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Have you tried taking antihistamines for the rash and the itch? I think that might be a smart diagnostic step. If the antihistamine helps then that would point to allergies. DH is not an allergy. It is an autoimmune disorder.
  2. trents
    DH has a very specific appearance. I think it produces tiny blisters. I'm sure there are pics on the internet for it. I'm wondering if you have an allergy to something in your diet or your environment instead of DH or celiac disease.
  3. trents
    Gael, welcome to the forum! Do you know what blood test you had done that came back negative? Realize that if start a gluten free diet before testing the testing may be invalidated, whether for DH or for gut manifested celiac disease.
  4. trents
    Then 1:40 would definitely be a positive result.
  5. trents
    I would guess that in addition to celiac disease, Emily, you have some significant food and/or environmental allergies going on.
  6. trents
    Yes, there is a significant correlation between celiac disease and reflux.
  7. trents
    I can see why you are confused. Your numbers for that test would seem to indicate a negative rather than a positive. Unless I misunderstood the explanation of the titer from my research and from RMJ's posgt, it would seem that a higher titer ratio indicates a higher concentration of antibodies since it takes more dilution to zero it out.
  8. trents
    You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.
  9. trents
    Just make sure you don't begin the gluten free diet before all testing is complete.
  10. trents
    Welcome to the forum, Emily. How were you diagnosed with celiac disease? The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you...
  11. trents
    No, not tTG-DGP but tTG-IGA. Actually, I don't believe the Deamidated Gliadin Abs, IgG can point to other things besides celiac disease. I misspoke about that. There are a variety of these tests because some are more specific or more sensitive than others and what one misses another can pick up on. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC376458...
  12. trents
    Have you actually been diagnosed with celiac disease? Maybe you just have a allergy to gluten and to nut proteins. I mean you can have both a celiac reaction to gluten and an allergic reaction to it as well. Again, the symptoms you describe in your first post don't seem like celiac reactions but rather allergic reations.
  13. trents
    titer = "the concentration of an antibody, as determined by finding the highest dilution at which it is still able to cause agglutination of the antigen." So I take it that the term refers to the lowest concentration which can be detected. I'm assuming that would correlate to "0" on the negative/positive scale. Other than that, I cannot help you out...
  14. trents
    Keep in mind that tree nuts are often handled by the same equipment that is used for processing gluten-containing grain products. So, cross contamination could be an issue.
  15. trents
    Your tTG-IGA is strongly positive and the symptoms you list are classic for celiac disease. Even the irregular menses I believe is not uncommon among pre menopausal women with celiac disease. There is no doubt in my mind that you have celiac disease. How long have you been experiencing these symptoms?
  16. trents
    Welcome to the forum, Msawyer! Perhaps this will help you understand the blood tests that were run and their results: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The tTG-IGA test is the centerpiece of the celiac panel. It combines good specificity with good sensitivity. Your numbers seem to be quite high but we cannot...
  17. trents
    39 might be a little early to be seeing this kind of thing. Does it run in your family? Is this accompanied by lower extremity edema? Do you notice any dusky or purple color in your feet or lower legs? I am not aware of bulging veins/spider veins being connected with celiac disease.
  18. trents
    One answer is that gluten is addictive: https://thefnc.com/research/gluten-and-dairy-are-like-addictive-drugs-to-the-brain/#:~:text=Gluten and dairy cause opioid,cold turkey off these foods. Some people struggle more than others with those kinds of things.
  19. trents
    You say you have no inflammation in your blood. Not sure what you mean by that. There are specific tests for celiac disease that measure antibodies produced by the disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Have you had any of these tests run. Particularly the tTG-IGA? Before you get too far into eating gluten free...
  20. trents
    Boymom96, Unfortunately, the antibody tests your physician ordered do not include the tTG-IGA which is the centerpiece and the most common antibody test that physicians typically order when checking for celiac disease. The tTG-IGA (tissue transglutaminase Immunoglobulin A) combines very good specificity with good sensitivity. You have a weak positive...
  21. trents
    Tree nuts are a common allergen and not just for celiacs. Walnuts give me a scratchy throat and sometimes as well their close cousin, pecans. But keep in mind that allergic reactions involve an entirely different pathway of the immune system than does celiac disease which is an autoimmune disease.
  22. trents
    Believe me, Sammie. I remember how overwhelming it was in the beginning. Okay, so she is in college and not high school and living in a dorm and not at home. Thanks for the clarification. Does she have a frig in her dorm room or is there one in the dorm? What about a microwave? I feel strongly she should not be eating dining hall food unless it...
  23. trents
    Welcome to the forum, lucas21! Are you still consuming dairy and/or oats? Dairy is known to cause inflammation/villi blunting very similar to celiac disease in some people. About 10% of celiacs react to the protein avelin in oats like they do to gluten. Are you taking NSAIDs frequently? They can also damage villi. Do you use a lot of "gluten...
  24. trents
    Elevated liver enzymes is one of recognized spinoffs of celiac disease. One expert has said it occurs in about 18% of the celiac population. It is what led to my celiac diagnosis about 20 years ago. There are different theories as to the mechanism. Some believe it is due to the "leaky gut" associated with celiac disease where larger than normal protein fractions...
  25. trents
    SammieH, I would certainly suggest your daughter not eat the food served in the school cafeteria. She can have no control over cross contamination as kitchen staff will likely use the same utensils to stir, serve and cut non gluten items as they do gluten things. She needs to take her own food from home. Same applies for eating out at fast food places or...
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