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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, Heal2Recove! The nature of celiac disease is it is an autoimmune disorder whereby whenever you consume gluten it triggers an inflammatory process in the small bowel that damages the lining (the "villi") of the small bowel. Your immune system is mistakenly identifying gluten as an invader. Over time the constant inflammation...
  2. trents
    Well, you're too young for onset of dementia so that is not a worry. You probably need to consider taking a gluten free high potency B-complex and zinc. B vitamins are important for neurological health. How much D are you on and what kind of D? D3 is the most assimilable. Make sure all your vitamins and minerals are gluten free.
  3. trents
    ollie, I would bring it up with your GI but what you describe is not unusual for those with celiac disease and still consuming gluten. Neurological problems and "brain fog" are common. How much longer do you need to doing the gluten challenge? When will your testing be complete? May we ask how old you are? Are you taking any vitamin and mineral supplements...
  4. trents
    Christ, did the doctor doing the endoscopy also do a biopsy of the small bowel and send the biopsy off for analysis or was this just a visual inspection?
  5. trents
    Welcome to the forum, bugg! What about buying your own cookware and utensils, cleaning paraphernalia, etc and keeping those sequestered in a footlocker or something? There is also a product called GliadinX which is designed to neutralize small amounts of gluten such as you get from cross contamination. GliadinX is one of our sponsors here. Some...
  6. trents
    If one meal of liver boosts your energy levels noticeably, I would think that points to some glaring vitamin deficiency being met temporarily. It often takes two years for the villi to heal completely once you go on a gluten free diet. But if you are truly eating gluten free, pains should subside rather quickly. I'm betting you are still getting gluten...
  7. trents
    It's good to get some answers, isn't it.
  8. trents
    Definitely. Your next step should be to ask your physician to order a full celiac panel which would include the tTG-IGA test plus the "other tests" described in this article: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Print it out and take it with you. Many physicians are pretty ignorant about celiac disease.
  9. trents
    NCGS should not produce positive antibodies, however, would it?
  10. trents
    Matt, I do not put much stock in food allergy/intolerance testing. There typically are many false negatives and positives which is to say the results often do not match up well with real life symptomology. It would likely be more helpful to just eliminate corn from your diet for a few weeks and see if you don't fare better. Then reintroduce it and see if...
  11. trents
    Sometimes there's more there than meets the eye. Unfortunately, there are times when GI docs doing scopes neglect to take a biopsy and tell patients, "The villi looked normal to me."
  12. trents
    We get it at Costco.
  13. trents
    Yes, it is possible. But one would have to give up all processed foods and focus on a diet of simple and fresh foods, things with peels or that can be washed.
  14. trents
    Even though the evidence that your daughter has celiac disease is not strong at this point, the real tipper would be if you put her on a gluten free diet and her symptoms dramatically improve.
  15. trents
    This video: https://www.glutenfreewatchdog.org/news/lessons-learned-from-16-years-of-testing-food-for-gluten/ provides some great information with regard to compliance within the gluten free product industry and what to focus on with regard to avoiding getting glutened by misleading and false advertising. One surprising takeaway is that you really stand a...
  16. trents
    "Could I have celiac and my daughter have it, but she is just now developing it and it isn’t showing on the scope yet?" I think you hit the nail on the head. Her numbers are not strongly positive so there is little or no damage yet. Now is the time to get on top of it with gluten free eating for her. Negative scopes with positive bloodwork is not that u...
  17. trents
    Yes, it would be interesting. You've got to wonder how much gluten actually winds up in the cheese from the culture. Might actually meet the 20 ppm standard for being gluten free. But, unless you test it you have no way of being sure. But when the manufacturer actually tells you it is not gluten free without any qualification, you really have to take it more...
  18. trents
    The official pretest guidelines are the daily consumption of an amount of gluten equivalent to at least two slices of wheat bread for 6-8 weeks leading up to the blood draw. Less than that will likely drive the antibody test numbers down towards the negative end.
  19. trents
    Let me start over as I see there are four options from your original post and not just three. If cost is not a limiting factor, definitely go with the Celiac Disease Panel. The extra tests in this one can serve to catch somebody who actually has celiac disease but whose immune system is not producing typical antibody responses. And, if you can afford...
  20. trents
    First of all, I'll address your question about how could the doctor diagnose you with celiac disease and then tell your mother you could go back to eating normal after your biopsy was clear as a 21/2 year old. That he told her this comes as no shock to any of us veteran celiacs. We are well aware of the blatant ignorance of the medical community as a whole...
  21. trents
    This might be helpful: Check meds and supplements as well. Wheat starch is often used as a filler. Avoid restaurants like the plague. Even when you order food that would not naturally contain gluten you have no control over howe kitchen staff handles the food with regard to cross contamination. Are those gluten free spaghetti noodles being boiled in...
  22. trents
    Do you have diagnosed celiac disease?
  23. trents
    I just contacted the company and found out it is not gluten free. Bummer! I just ate a big chunk of it. It is delicious but not safe for celiacs. I have been eating it for awhile without any strong reactions but decided to contact the company today anyway. They replied to my email right away. I'm guessing the cultures are grown on a wheat substrate.
  24. trents
    It can be very challenging to eat gluten free when others in the house are not. But, I can't emphasize enough how important it is for your health for you to find a way to truly eat gluten free. If you want to be present for your kids and not sickly then you will find a way to do this. The inflammation caused by celiac disease damages the lining of the small...
  25. trents
    200 IU will not make any impact. That is much too low. I would recommend a minimum of 2000 IU but there are those on this forum who would recommend much more that that daily. Recommendations for D3 supplementation by the medical/scientific are all over the place. Some years ago there was concern about over dosing on D3 since it is a fat soluble vitamin and...
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