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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, definitely all or nothing. But don't beat yourself up if you get accidentally glutened occasionally despite your best efforts. It happens to all of us occasionally. The biggest danger is eating out at restaurants where you have no control over food preparation with regard to cross contamination. Also, gatherings with family and friends is a challenge...
  2. trents
    I'm wondering if you have some form of atypical celiac disease or if you have NCGS. If you do not make an all out commitment to gluten free eating for a significant period of time, including guarding against cross contamination (CC), you cannot be sure you have ferreted out whether or not gluten is the problem or even part of it. We cannot possibly say how...
  3. trents
    Have you been checked for H. Pylori? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5924744/
  4. trents
    Have you had a CVC and CMP recently? Do they show anything out of whack besides the hemoglobin, hematocrit, ferritin levels? How are your total protein and albumin levels?
  5. trents
    Are you on NSAIDs by any chance? May we ask what medications you are on?
  6. trents
    From your first post: I recently had an endoscopy/colonoscopy to get an official diagnosis, and the doctor visually saw atrophy to my stomach and duodenum. Biopsies came back with mild stomach inflamation BUT normal duodenum and negative for Celiac! That seems contradictory. The gold standard for being diagnosed with celiac disease is villous atrophy...
  7. trents
    A common misconception about dairy is that lactose is necessarily the problem with dairy intolerance. It may very well be not the lactose (which is the sugar component) but the main protein, which is casein. Lactose intolerance happens in the lower end of the intestinal track. Research has shown that for some people, casein can cause inflammation and cause...
  8. trents
    Apart from the elevated antibodies, are you experiencing physical symptoms? Are you still consuming dairy or oats? Given the thoroughness of your stand mixer cleaning, I doubt if you are getting glutened from it. But having said that, may we assume you are cooking for others who are not eating gluten free?
  9. trents
    I would look for terms like "starch," "plant starch," "vegetable starch." Things like that which are general enough to include wheat.
  10. trents
    Rln12280, welcome to the forum! You ask some good questions. Somewhere on this forum I have seen a link to gluten free name brand medications. Perhaps Scott Adams can help out here. As you expressed, the more challenging issue is with generics and with the fact that pharmacies frequently switch suppliers such that it can be a moving target and many...
  11. trents
    Were you eating normal amounts of glute leading up to the celiac testing?
  12. trents
    Well, 10 days is the better part of the two week pretest gluten challenge given as the guideline. So, it could have impacted the test I'm thinking. And I would guess that there is a pretty rapid cell turnover rate in the intestinal trac just because of the mechanical wear and tear of stool constantly moving through it if nothing else. So you had both...
  13. trents
    Good input from Jen1975. You would need to have been eating regular amounts of gluten (defined as two slices of wheat bread daily or the equivalent amount of gluten) before testing for 6-8 weeks for the antibody tests and for at least 2 weeks before the endoscopy/biopsy.
  14. trents
    Andre, you might want to look at hot cereals. My favorite has become buckwheat groats. It's the seeds of a plant in the same family as Rhubarb and not related to wheat. Delicious! But it is a long cook cereal, about 10 minutes: https://smile.amazon.com/Organic-Hulled-Buckwheat-Groats-Anthonys/dp/B00QKXVAN2/ref=sxts_rp_s1_0?crid=2RE86Q2DTPK9Z&cv_ct_cx...
  15. trents
    Thanks for the correction, clarification and additional information. You can add pictures with any new post by clicking on the paperclip symbol in the lower left corner of the post text box before hitting the "Submit Reply" button. After a post is made you can add a picture later by clicking on the three horizontal dots in the upper right corner of the...
  16. trents
    You are correct. IGE is for allergies. An entirely different immune system pathway. Here is a description of tests that can be run for celiac disease and their strong and weak points: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ If you don't get any cooperation from your doctor soon, I advise getting another one. Also...
  17. trents
    " . . .but my celiacs gene wasn't active." Have you had genetic testing done and if so, did it turn up that you have either or both of the genes for celiac disease that have been identified with the disease so far? The only way to know if your celiac genes are currently actively expressing themselves is to get proper testing to rule out celiac disease as...
  18. trents
    That sounds like an allergic reaction rather than either a celiac or a gluten sensitivity reaction.
  19. trents
    Make sure the Gaviscon, Bentyl and any ofther meds/supplements you are taking are gluten free.
  20. trents
    What kind of reaction? Did your lips swell as described by the original poster in this thread or something else.
  21. trents
    IGga test? Do you mean IGG? Pilgrimgirl, You really need to get screened for celiac disease with tests that are specifically for celiac disease. You need to get several IGA tests run. Sounds like you got allergy/food sensitivity testing done but not celiac disease testing. Do you understand there is a difference between gluten sensitivity and celiac...
  22. trents
    Not specifically that I know of. Zonulin has been identified as the regulator of spacing between the cells that line the small bowel. So, therapies for leaky gut are being investigated that involve zonulin but no breakthroughs yet. There is just a lot that isn't yet known yet about how it works and how to manipulate it. Since there is a connection between...
  23. trents
    Yes. Tis true.
  24. trents
    Has an iron supplement been considered? Ferritin is low but what about hemoglobin and hematocrit? What vitamin and mineral deficiencies has he been tested for? Has he had an edoscopy with biopsy done yet to test for celiac disease. We get some people with damaged villi that show up in the biopsy but not in the antibody tests.
  25. trents
    Concerning dairy consumption via cheddar and yogurt to eliminate some of the lactose, a dairy intolerance can have nothing to do with lactose which is the sugar component in dairy. It can also be due to the protein component found in dairy called casein.
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