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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    It could be from dehydration but not necessarily. My chills come on well before I get to the dehydration point. I think chills can be a reaction to any number of things. When I get nausea I get sweaty and the chills could just be due to rapid surface temperature drop from evaporation. Or, some other physiological mechanism that is coming into play like infection...
  2. trents
    Yes, I forgot to mention that when this happens to me I also get chills.
  3. trents
    It is likely to happen once in a while no matter how scrupulous you are about avoiding gluten. One of the best ways to avoid accidental glutening is to have everyone in the family commit to eating gluten free and then purge the entire kitchen and pantry of everything that is not gluten free. Also, avoid eating out like the plague.
  4. trents
    What your gastro doc said makes sense. It is also possible that the biopsy samples he took were from areas not yet affected. Villi damage can be patchy and some docs don't reach into various areas when taking the samples.
  5. trents
    No. I don't see how I could keep anything on my stomach during such times to serve as a remedy. It would have to be something injectable or IV.
  6. trents
    I'm guessing you have NCGS (Non Celiac Gluten Sensitivity) and after four days you got "glutened" somehow. The symptoms of NCGS are largely the same as celiac disease but there is no damage to the villi, hence there would be no antibodies produced and the biopsy would also be negative. There is quite an education curve in learning to eat gluten free and typically...
  7. trents
    Your daughter's experience is exactly mine. If I get a gluten exposure when eating it takes about two hours for me to start vomiting and it lasts for 2-3 hours with severe gastritis and cramping. When this passes I then get diarrhea for about the same amount of time. Remember, with celiac disease, the body is interpreting gluten as a toxic invader and is...
  8. trents
    I'm glad I'm not raising teenagers anymore!
  9. trents
    Thank you for the additional information. I probably read too much into your comment about there being no way to avoid gluten when your daughter is at school and I did not realize until you explained this that she was so extremely gluten sensitive. Sounds to me like she may also be allergic to wheat. But I can't help but wonder if something else is going...
  10. trents
    Welcome to the forum, AlohaMaMa! First, many celiacs have issues with dairy products. Either the sugar in milk (lactose) or the main protein component (casein) can be a problem. In addition, research has shown that in some celiacs, casein blunts the villi of the small bowel very similar to what gluten does. Second, it is well-known by the celiac...
  11. trents
    Essentially all the symptoms you describe are consistent with celiac disease. Neurological manifestations are common in the celiac population and oily stools are a classic symptom of celiac disease. Please be aware that most physicians are woefully unknowledgeable about celiac disease and what knowledge they do have is often very dated. You should get blood...
  12. trents
    Well, your doctors did things backwards from how testing is usually done in the sense of doing the blood antibody tests after the endoscopy/biopsy but the outcome is what matters. Now comes the educational challenge of learning where and how gluten is hidden so as to be able to consistently avoid it.
  13. trents
    Sounds like you may not have celiac disease since the antibody tests so far don't indicate villi damage in the small bowel. But I would look at NCGS (Non Celiac Gluten Sensitivity) if I were you. The antidote is the same. Total abstinence from gluten for life. The next step would be to commit to a gluten free diet and see if your symptoms improve.
  14. trents
    NCGS (Non Celiac Gluten Sensitivity) should not elevate the tTG-IGA since it does not damage the villi as does celiac disease. It might be helpful to run a full celiac panel run rather than just the tGG-IGA. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But usually, when the tTG-IGA is even slightly elevated it indicates...
  15. trents
    Thyroid disease (Hashimoto) resulting in low thyroid hormones is not uncommonly found in association with celiac disease. Are you taking any gluten free vitamin and mineral supplements?
  16. trents
    Have you had your thyroid hormone levels checked?
  17. trents
    May we ask, are you male or female. An important fact when talking about hair loss. I'm 70 now and I lost most of mine some years ago. Now I shave my head every other day so I'm bald and don't have to fuss with the little that is left. I was diagnosed with celiac disease twenty years ago but realize now I had it for many years before it was diagnosed...
  18. trents
    That does help me understand what you were trying to say, cristiana. The article in the link (and reflected in your post) is distinguishing between concentration of gluten in food item and total gluten consumption over a day's time. That is a concept I don't think I have ever seen discussed anywhere else and certainly not on this forum. I think it is an important...
  19. trents
    Cristiana, I'm not sure what you are trying to say here. You seem to be contradicting yourself by saying in one place that 20ppm is deemed safe but then immediately lower it to 10ppm in order to be safe. Could you clarify your intent here?
  20. trents
    "Free from" is not one I have seen but judging from your spelling of "coeliac" it must be a UK thing.
  21. trents
    The proof is in the pudding, isn't it!
  22. trents
    Sometimes villi blunting can be very patchy and depending on where the samples for the biopsy were taken, the damaged areas could have been missed. The tTG-IGA is considered to be very specific for celiac disease. There are other antibody tests for celiac disease can be done that are less specific but more sensitive. So, when the tTG-IGA is clearly positive...
  23. trents
    Age is always against you except for wisdom and senior discounts.
  24. trents
    Ella, There are many "silent" celiacs out there who, like you have very minor or no GI symptoms. This is not that unusual and is a very big misconception, even within the medical community.
  25. trents
    With no instant replays, please!
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