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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    You probably also have vitamin and mineral deficiencies. I would suggest getting on a high potency multivitamin plus a high potency B-complex together with magnesium and D3. Damage the small bowel villi (the nutrient absorbing lining of the small bowel) causes this. Make sure all vitamins and supplements are gluten free. Costco's Nature Made line is a good...
  2. trents
    My wife grew up in a Mennonite Brethren family and church. Her parents would often buy things at the Mennonite Relief sale. She grew up in the Willamette valley of Oregon in a community where there was a concentration of Mennonites. Her maternal grandfather came over on the boat from Prussia when he was a small child. Before I was diagnosed with celiac disease...
  3. trents
    Could be a lot of things but I would certainly look at changing GI docs. Any GI doc that tells you you don't need to be eating gluten prior to being tested for celiac disease is not to be trusted as competent. Unfortunately, there is still a lot of ignorance in the medical community with regard to gluten-related illness.
  4. trents
    The social limitations of having to eat gluten free are, to me, the bigger issue than missing taste and texture of things made with wheat. My wife does a good job of making gluten-free substitutes that taste pretty good. Just from a culinary standpoint, the hardest moments are those when I'm smelling the baking of fresh wheat bread or French toast made with...
  5. trents
    So how did you feel physically after your binge? Was it worth it? If I were to eat a piece of wheat crust pizza or a wheat made blueberry muffin, within two or three hours I would be writhing on the bathroom floor with intractable vomiting and unbearably painful gut cramping followed by several hours of diarrhea. When I was diagnosed about 20 years ago...
  6. trents
    Pernicious anemia is a fairly common cause for iron deficiency anemia. It's caused by lack of something called "intrinsic factor" which results in the inability to absorb B12, a necessary vitamin in the chain of biochemical transactions necessary to assimilate iron. You might get that looked into.
  7. trents
    You might try going gluten free for a period of time and see if things improve. Don't cut out all carbs. Just eliminate all sources of wheat, barley and rye. Those are the gluten-containing grains.
  8. trents
    Welcome to the forum, chris96856! Have you been diagnosed with celiac disease or with non celiac gluten sensitivity? You don't mention that so just wondering why you are posting in a forum about gluten-related disorders. Do you suspect you have celiac disease or NCGS?
  9. trents
    I get that and respect your decision. IMO, you should consider yourself to have celiac disease and get serious about eating gluten free. There is a real learning curve involved.
  10. trents
    Good point, Scott, about the xanthan gum.
  11. trents
    Yes, I saw that in his post but he doesn't say they were looking for celiac disease evidence when they did the biopsy.
  12. trents
    Add this to the questions about oatmeal and what we already know about wheat, barley and rye. Looking more and more all the time that members of the grass family may not be good for people in general. I'm reminded of the book title, Dangerous Grains, that came out some years ago.
  13. trents
    Definitely! Get your own toaster. Watch out for gluten in condiments. Wheat is often used as cheap thickener or texturing agent. Welcome to the forum, Skoit! Be aware that if you ever go for celiac testing you will need to go back on eating a regular amount of gluten daily for 6-8 weeks beforehand or the testing will not be valid.
  14. trents
    Anytime you are in a situation where you don't have total control over what goes into the meal or how it was handled and prepared. Not routinely with every meal. Mostly eating out or eating at other people's homes.
  15. trents
    What you want is GliadinX or something equivalent. It supposedly breaks down minor amounts of gluten in the gut such as happens with cross contamination.
  16. trents
    If your mom had celiac disease there is a 44% chance you have it and your symptoms certainly suggest that. Have you been tested for celiac disease?
  17. trents
    But when your B12 is high, is it hurting anything?
  18. trents
    But just because it is stored in the liver, does that mean you can get an overload?
  19. trents
    isitgluten, welcome to the forum. Yes, it sounds like you probably have NCGS (Non Celiac Gluten Sensitivity). No, it is not necessarily true that you would not experience the symptoms you describe only when eating larger amounts of gluten. You might be sensitive enough that CC could produce those symptoms. But it is also true that you might have other...
  20. trents
    How can you you have an overload of B12? It is a water soluble vitamin and any excess will be peed out.
  21. trents
    kagey, What form does your psyllium intolerance take? How do you react to it? Are you wheelchair bound or otherwise rendered immobile? That's a lot of stuff to take to keep things moving.
  22. trents
    Welcome to the forum, Karlen! My guess would be that the "IGA-So" is a measure of total IGA. And yes, it does appear to be low which can skew other IGA antibody test values. Your physician only ran one of the several antibody tests that can be run for celiac disease diagnosis. He ran the TTG-IGA test which is the most commonly run celiac diagnosis...
  23. trents
    That seems like a wise course of action and I'm glad I could help. A couple of years ago I was having pain in my scapula. It turned out to be a "referred" pain from some nerve irritation in my C spine. The "facets" in my neck were rubbing on the nerves that run from the upper spinal cord to the shoulder blade area. And by the way, the relief you experience...
  24. trents
    No, I don't remember getting it grabbing me at night at all. But then, it was a long time ago. What I remember is just that it happened during the day. I went to the GI doc about it and he told me it was likely PF.
  25. trents
    In the past, I have suffered with PF. If I recall correctly, it was shortly before my celiac diagnosis and I haven't been bothered with it since. That was going on 20 years ago. For me, it was not an electrical shock kind of pain but a sharp muscle cramping sort of pain. And it was pretty unpredictable. I can't remember if it was associated with having a...
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