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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yeah, you need to be eating regular amounts of gluten (equivalent of 2 slices of wheat bread) daily before the blood antibody test for 6-8 weeks and for at least 2 weeks before an endoscopy/biopsy for the tests to be valid. Really does sound like you need to either go on a gluten challenge and get tested or assume your have either celiac disease or non celiac...
  2. trents
    Are they growing oats in the same fields as marijana these days? If that gets out, there will be a run on oatmeal.
  3. trents
    RMJ, I don't doubt what you say but do you have a link that explains how the testing methods have improved and become more sensitive? I would like some information on that. If this is so, then the FDA ought to consider lowering the threshold PPM for "gluten free" qualification.
  4. trents
    The really, the bone you are picking is not with Digiorno, or any other food company that is abiding by the 20ppm standard for marketing a product as "gluten free." It is with the FDA.
  5. trents
    Welcome to the forum, Layla! I doubt if three days off of gluten in proximity to your blood test will make much difference. Actually, the gluten challenge for the serum antibody test is approximately two months whereas the gluten challenge leading up to an endoscopy/biopsy is two weeks. So, the blood antibody test is less affected by short term variations...
  6. trents
    Wheatwacked, Do you have a link dealing with the exclusion of wheat by statue from all congressional discussion of GMO? Also, we already know that anything labeled gluten free contains <20 PPM and anything labeled as "Certified Gluten Free" contains <11 PPM. I'm not sure I see your suggestion really accomplishing anything. The FDA has established...
  7. trents
    May we assume you have already been eating gluten free? As with Cristiana, I am not an expert on genetics, celiac genetics or otherwise. So I won't attempt to analyze your genetic testing results or offer an opinion . . . except to say that my understanding is that not having either the DQ 2.5 or the DQ8 genetic markers does not rule out the possibility...
  8. trents
    QLisa, I think you need to give it more time. Your celiac diagnosis was less than three months ago. It takes years to rebuild bone density but at your age you should be able to do it. Don't over do it with calcium supplements as they will increase gut PH and reduce absorption of things like iron and calcium. Drink something acidic (OJ, tomato juice, cranberry...
  9. trents
    Have you checked to see if all your meds and supplements are gluten free?
  10. trents
    Welcome to the forum, Rebecca. What vitamins and supplements are you taking to address the likely deficiencies such a limited diet will cause?
  11. trents
    Okay, I see. By "insurance" I meant, in this case, government provided medical coverage, not private insurance.
  12. trents
    So does the prescription for gluten free ingredients allow your health insurance to pick up the tab, or part of it? I'm trying to understand what advantage the prescription gives.
  13. trents
    I wish some clarification here. Can people in the UK buy gluten free food ingredients without a prescription? Can you just go to a store and buy it like you would a loaf of wheat bread or must you have a script? Is the prescription for tax deduction purposes or does the script give you a discount? Or is this prescription something like food stamps here in...
  14. trents
    PattyWayne, I'm with you on the egg intolerance. I've just recently discovered I can't eat more than one whole egg at a meal and not get a belly ache. Not sure when this egg intolerance set on but up until the last few years I have been a big egg eater with no issue. But how many ppm of gluten would you consider to be the threshold of a trace and...
  15. trents
    I've was diagnosed as a celiac almost 20 years ago both by blood work and endoscopy. I do not think I am especially sensitive to minor amounts of gluten but I get violently ill with a major exposure, which has only happened a few times over the years. I do think I am more sensitive than I was at the beginning. But comparing gluten exposure in trace amounts...
  16. trents
    But how possible\practical is this? To have absolutely no gluten in prepared foods? I mean I'm sure if you had a sensitive enough instrument you could detect gluten in the air we breathe and if you lived in Kansas there might be more than a little a some times of the year.
  17. trents
    Welcome to the forum, TrailWalker! My, that's quite a tome! I have never heard that food sensitivities can be cured by herbs. That sounds "quackish" to me. Have you looked into histamine intolerance?
  18. trents
    Then wouldn't 20ppm or below be "safe" for some celiacs?
  19. trents
    PattyWayne, youj seem to contradict yourself here. Up to 20ppm is considered to be the standard for being able to advertise something gluten free but even that is too much gluten for some celiacs.
  20. trents
    Welcome, Richard! Yes, I agree with Cristiana. You need to have specific testing done for celiac disease. Celiac disease is not an allergy or an intolerance per se. It is an autoimmune disorder where inflammation in the small bowel lining is triggered by the ingestion of wheat. There are two kinds of testing for celiac disease. The first is a blood...
  21. trents
    "Naturally gluten free" does not necessarily equate to end product gluten free when you consider the possibility of cross contamination during transport, storage processing and packaging. This might particularly be an issue with grains and nuts (dry things) that are often handled on the same equipment used to harvest, transport and process gluten-containing...
  22. trents
    Pixy, the reason I was asking about the statin is that those drugs have an established connection with muscle weakness and wasting for some people.
  23. trents
    Yes. The symptoms are largely the same. And the antidote is the same.
  24. trents
    Sounds like your GERD is not really the silent type.
  25. trents
    Mister B, this skin reaction sounds like it could be dermatitis herpetiformis, one of the classic expressions of celiac disease.
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