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trents

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Everything posted by trents

  1. trents
    Add this to the questions about oatmeal and what we already know about wheat, barley and rye. Looking more and more all the time that members of the grass family may not be good for people in general. I'm reminded of the book title, Dangerous Grains, that came out some years ago.
  2. trents
    Definitely! Get your own toaster. Watch out for gluten in condiments. Wheat is often used as cheap thickener or texturing agent. Welcome to the forum, Skoit! Be aware that if you ever go for celiac testing you will need to go back on eating a regular amount of gluten daily for 6-8 weeks beforehand or the testing will not be valid.
  3. trents
    Anytime you are in a situation where you don't have total control over what goes into the meal or how it was handled and prepared. Not routinely with every meal. Mostly eating out or eating at other people's homes.
  4. trents
    What you want is GliadinX or something equivalent. It supposedly breaks down minor amounts of gluten in the gut such as happens with cross contamination.
  5. trents
    If your mom had celiac disease there is a 44% chance you have it and your symptoms certainly suggest that. Have you been tested for celiac disease?
  6. trents
    But when your B12 is high, is it hurting anything?
  7. trents
    But just because it is stored in the liver, does that mean you can get an overload?
  8. trents
    isitgluten, welcome to the forum. Yes, it sounds like you probably have NCGS (Non Celiac Gluten Sensitivity). No, it is not necessarily true that you would not experience the symptoms you describe only when eating larger amounts of gluten. You might be sensitive enough that CC could produce those symptoms. But it is also true that you might have other...
  9. trents
    How can you you have an overload of B12? It is a water soluble vitamin and any excess will be peed out.
  10. trents
    kagey, What form does your psyllium intolerance take? How do you react to it? Are you wheelchair bound or otherwise rendered immobile? That's a lot of stuff to take to keep things moving.
  11. trents
    Welcome to the forum, Karlen! My guess would be that the "IGA-So" is a measure of total IGA. And yes, it does appear to be low which can skew other IGA antibody test values. Your physician only ran one of the several antibody tests that can be run for celiac disease diagnosis. He ran the TTG-IGA test which is the most commonly run celiac diagnosis...
  12. trents
    That seems like a wise course of action and I'm glad I could help. A couple of years ago I was having pain in my scapula. It turned out to be a "referred" pain from some nerve irritation in my C spine. The "facets" in my neck were rubbing on the nerves that run from the upper spinal cord to the shoulder blade area. And by the way, the relief you experience...
  13. trents
    No, I don't remember getting it grabbing me at night at all. But then, it was a long time ago. What I remember is just that it happened during the day. I went to the GI doc about it and he told me it was likely PF.
  14. trents
    In the past, I have suffered with PF. If I recall correctly, it was shortly before my celiac diagnosis and I haven't been bothered with it since. That was going on 20 years ago. For me, it was not an electrical shock kind of pain but a sharp muscle cramping sort of pain. And it was pretty unpredictable. I can't remember if it was associated with having a...
  15. trents
    Well, I am not inclined to agree with the the GI doc's conclusion that you have celiac disease. I am not sure how he reached that conclusion, based on the testing evidence and the fact that you are not doing better on a gluten free diet does not support his diagnosis. Could you have a problem in the thoracic spine area which innervates the organs, viscera...
  16. trents
    If you have been on a gluten free diet for a matter of weeks or months and not feeling better and since your tests for celiac disease are negative, then I would go a different direction in your medical exploration. One possibility is that you have other food intolerances that have nothing to do with gluten. And the back pain does not fit with celiac symptomology...
  17. trents
    Prolonged use of NSAIDs can damage the villi in a similar way to Celiac disease. For any celiac disease testing to be valid, you need to have been eating normal amounts of gluten up to the time of testing, both for the serum antibody tests and the biopsy. Going gluten free before testing will likely invalidate the test results. For the serum antibody...
  18. trents
    The mucosal scalloping would be of concern with regard to celiac disease but everything else in the testing does not point to it. You could be suffering from NCGS (Non Celiac Gluten Sensitivity) which gives many of the same symptoms as celiac disease but does not damage the villi. In that regard, have the symptoms improved since you started on a gluten free...
  19. trents
    The prevalence of type 1 diabetes in the celiac population is 6% and in the general population, 1%. So there is a statistical correlation between the two. Celiac disease onset requires two elements: 1. having certain genes, and 2. a triggering stress event such as a viral illness. I would think COVID should qualify for the latter. Also realize that the...
  20. trents
    Were you consuming normal amounts of gluten up until the blood antibody test draw? Going gluten free before testing will likely invalidate the results. Give it time. If you have celiac disease there is damage to the small bowel lining, where the nutrients from our food is absorbed. Once you go gluten free there should be healing of the lining and a return...
  21. trents
    An A1C of 6.1 is prediabetic level. I would have you consider that you may have other food intolerances not related to gluten. Things that are commonly found in carby snack foods. I would also suggest you look into SIBO (Small Intestine Bacterial Overgrowth) and histamine intolerance.
  22. trents
    If your serum antibody tests were positive, even weakly positive, after being on a low gluten diet, I would assume you have celiac disease. If you have already had the biopsy and are just waiting on results, why are you still eating gluten? Were you already off gluten when the biopsy was done? You mentioned you were not eating much gluten when you had...
  23. trents
    Ah! So there's a difference between fat based vitamins and fat soluble vitamins. I didn't know that!
  24. trents
    I was thinking fat soluble vitamins carried the risk of toxicity with excessive dosages, for instance, D3. Water soluble vitamins are certainly cleared from the system via the kidneys and urine but my understanding is that is not true with fast soluble vitamins.
  25. trents
    I don't know about Allithiamine but Benfotiamine is not water soluble. What is a safe dosage?
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