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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Well you know, the other side of that question is "what is constipation." For some people, not having a good poop every day means they're constipated. Other people get along just fine without needing to have a BM every day. If you get less fiber in your diet it stands to reason that you aren't going to poop as much but is that necessarily bad? We've been...
  2. trents
    If it's got any gluten then I suppose they consider it bread.
  3. trents
    Earline, what do you do for fiber in your diet? Is constipation an issue?
  4. trents
    If you really want to fond out if you have celiac disease vs. gluten sensitivity, you need to have blood tests done such as described in this article: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The most important of those is the TTG-IGA. Some doctors will only order that one blood test when checking for celiac disease. If...
  5. trents
    Specifically, what blood work did he do? What were the names of the tests done from the blood work? Do you have a record of what were involved in the bloodwork? If so, could you post it? If he was looking at your scalp it sounds like Dr. Osborne may have been a naturopathic physician. I asked this above but you did not answer, how can we help you?
  6. trents
    I'm not Catholic but I'm guessing the Church's rational for insisting on gluten being in the host comes from the fact that when Jesus said, "I am the bread of life," (John 6) and “Take and eat; this is My body" (Matthew 26) he was referring to and using real (wheat) bread. Catholics believe that when consumed, the bread mystically turns into the body of C...
  7. trents
    Are you creating your posts from a cell phone? They are hard to understand. What kind of tests did Dr. Osborne run? Celiac disease (celiac syndrome?) is not an allergy. It is an autoimmune disease. It engages the immune system through an entirely different pathway than an allergy would. I'm not sure how they are classifying gluten sensitivity and...
  8. trents
    Welcome to the forum, Andrea! We need some clarification here. When you say you were told when you were born you had celiac syndrome, I assume you mean that sometime after your were born you were told that you have had celiac syndrome from birth. Otherwise, I would find it remarkable that you understood and remembered what you were told at the time...
  9. trents
    This is a great resource.
  10. trents
    Oats do not contain gluten but have a protein called avenalin which some believe causes a similar reaction in the gut to gluten. About 10% of celiacs react to oats like they do gluten. However, it's not entirely clear whether this is because of cross contamination of the oats with gluten containing grains. There is not yet definitive research available to...
  11. trents
    Yes, the forum community is discovering that not all that claims to be gluten free is actually gluten free, at least not for the more sensitive segment of our community. And it might not be the pizza itself that is the issue but the definite possibility that the staff a Dominos used the same utensils when cooking, handling and cutting your order that they...
  12. trents
    I concur with what cristiana said and would add that to attain a truly gluten free lifestyle generally involves quite a learning curve. It took me about a year and a half to get a good handle on how and where gluten is tucked away in the food supply, in meds and supplements and even in grooming and hygiene products. It is common for those just beginning the...
  13. trents
    Great suggestion!
  14. trents
    There is concern that biopsy may not be as effective using the transnasal endoscopy method: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3930889/ I hope you don't mean you aren't starting gluten free eating before the biopsy.
  15. trents
    By the way, the TTG-IGA test is currently considered to be the best blood test currently available to detect celiac disease. Although it's best to run a "full" celiac panel, many physicians will only order the TTG-IGA. It is considered to be the most specific for celiac disease but not the most sensitive. So, when it is positive, even weakly positive, it...
  16. trents
    Buy some GliadinX and take some before eating out. And do the best you can in ordering non gluten items from the menu. GliadinX can neutralize small amounts of gluten such as you get through cross-contamination. But it is not a license to disregard the need to avoid gluten altogether. Since your TTG-IGA is positive, albeit weakly positive, I would bet...
  17. trents
    Yes, the social aspect is the hardest dimension of having a gluten disorder. Friends and family can be hard to get onboard. It requires patient education and grace. It's a good idea to prepare ahead of time with some gracious responses to the skepticism of family and friends. By the way, if you have celiac disease, there is a 44% chance that your first...
  18. trents
    If you have celiac disease or gluten sensitivity, once you go off of gluten for any length of time you become more intolerant of it than you were when consuming it daily. Getting "glutened" after being off of it typically makes you sicker than a dog. What makes you think you have gluten sensitivity and not celiac disease? The symptoms are largely the...
  19. trents
    A lower GI does not examine the small intestine. That is done with an upper GI. The part of the small bowel affected by Celiac disease is just below the outlet of the stomach and that is part of an upper GI. There is a stool sample test for celiac disease that has been developed by a certain individual but it is not widely recognized as a valid diagnostic...
  20. trents
    Thanks, Scott. Very thorough and helpful.
  21. trents
    I believe food sensitivity tests measuring reactions that happen in a different immune system pathway than is engaged by celiac disease. Celiac disease is not an allergy. It is an autoimmune condition and is diagnosed by measuring IGA antibodies. I could be wrong, but I think food sensitivity tests are just allergy tests and measure IGE antibodies rather...
  22. trents
    No so, apart from damage to the villi which isn't a feature of gluten "intolerance." That's why I don't like the term "intolerance" as opposed to "gluten sensitivity." NCGS is not the same at all as say, "lactose intolerance." Lactose intolerance just gives you gas, bloating and diarrhea but poses no long term health risks. Non celiac gluten sensitivity,...
  23. trents
    Tissue trasnsglutaminase (TTG-IGA) would be the only one in that list that would be useful for celiac disease. And there are other celiac antibody tests that should have been run. What was the value for that test? And what is the lab's reference range? It would also be good to know what the value of the IGA is and it's reference range. Low total IGA can...
  24. trents
    Understood. But realize the antidote is the same for NCGS as it is for celiac disease, i.e., total elimination of gluten from the diet. And it seems to me you already demonstrated that gluten is the issue one way or another. Practically speaking, there's not much difference.
  25. trents
    "My blood test which was done on 21st May (5 days after being back on gluten) came back negative," The test could be negative because you were only back on gluten for 5 days. For the blood test, the recommended "gluten challenge" is 6-8 weeks of consuming gluten daily in the amount equivalent to two slices of wheat bread. For the endoscopy/biopsy the...
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