Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,489

  • Joined

  • Last visited

  • Days Won

    515

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    By current FDA standards, it is gluten free in that it contains no more than 20ppm of gluten. That is the current definition of gluten free in the USA and it works for most celiacs. But 20ppm is too much for some celiacs who suffer reactions to that amount.
  2. trents
    Epson salt is magnesium sulfate. It has many uses, external and internal. Did you have preeclampsia? It is used for that in drip form.
  3. trents
    "Elevated antibodies against DGP are often seen in patients who have celiac disease and are on a gluten-containing diet. This is a newer test that may give a positive result in some individuals with celiac disease who are anti-tTG negative, including children younger than two years." https://www.aafp.org/afp/2017/0601/p726.html The next logical step...
  4. trents
    Perhaps the food companies should be required to adopt the 10ppm limit for advertising their products as gluten free. This would motivate them to look into the more sensitive testing methods used by the gluten free certifying bodies.
  5. trents
    Hannah, welcome to the forum! Yes, you are up against a lot of barriers to better health right now. When you are indeed eating gluten free and have not experienced CC for a while, do many of your symptoms improve?
  6. trents
    If the serum antibody tests were strongly positive, I see no reason to have the endoscopy/biopsy done. IMO, the next step would be for you to put your son on a strict gluten free diet and some high potency vitamins to get a jump start on the vitamin and mineral deficiencies. In particular, a good multi vitamin together with high-potency B-complex and...
  7. trents
    Robsimonroberts, you and your wife have a decision to make. If she goes gluten free before testing it will invalidate the tests. However, if testing is unavailable in the near future because of the present state of the healthcare system in the UK, then it might be worth beginning the gluten free diet now to see if her symptoms improve. If they do then you...
  8. trents
    Yeah, you need to be eating regular amounts of gluten (equivalent of 2 slices of wheat bread) daily before the blood antibody test for 6-8 weeks and for at least 2 weeks before an endoscopy/biopsy for the tests to be valid. Really does sound like you need to either go on a gluten challenge and get tested or assume your have either celiac disease or non celiac...
  9. trents
    Are they growing oats in the same fields as marijana these days? If that gets out, there will be a run on oatmeal.
  10. trents
    RMJ, I don't doubt what you say but do you have a link that explains how the testing methods have improved and become more sensitive? I would like some information on that. If this is so, then the FDA ought to consider lowering the threshold PPM for "gluten free" qualification.
  11. trents
    The really, the bone you are picking is not with Digiorno, or any other food company that is abiding by the 20ppm standard for marketing a product as "gluten free." It is with the FDA.
  12. trents
    Welcome to the forum, Layla! I doubt if three days off of gluten in proximity to your blood test will make much difference. Actually, the gluten challenge for the serum antibody test is approximately two months whereas the gluten challenge leading up to an endoscopy/biopsy is two weeks. So, the blood antibody test is less affected by short term variations...
  13. trents
    Wheatwacked, Do you have a link dealing with the exclusion of wheat by statue from all congressional discussion of GMO? Also, we already know that anything labeled gluten free contains <20 PPM and anything labeled as "Certified Gluten Free" contains <11 PPM. I'm not sure I see your suggestion really accomplishing anything. The FDA has established...
  14. trents
    May we assume you have already been eating gluten free? As with Cristiana, I am not an expert on genetics, celiac genetics or otherwise. So I won't attempt to analyze your genetic testing results or offer an opinion . . . except to say that my understanding is that not having either the DQ 2.5 or the DQ8 genetic markers does not rule out the possibility...
  15. trents
    QLisa, I think you need to give it more time. Your celiac diagnosis was less than three months ago. It takes years to rebuild bone density but at your age you should be able to do it. Don't over do it with calcium supplements as they will increase gut PH and reduce absorption of things like iron and calcium. Drink something acidic (OJ, tomato juice, cranberry...
  16. trents
    Have you checked to see if all your meds and supplements are gluten free?
  17. trents
    Welcome to the forum, Rebecca. What vitamins and supplements are you taking to address the likely deficiencies such a limited diet will cause?
  18. trents
    Okay, I see. By "insurance" I meant, in this case, government provided medical coverage, not private insurance.
  19. trents
    So does the prescription for gluten free ingredients allow your health insurance to pick up the tab, or part of it? I'm trying to understand what advantage the prescription gives.
  20. trents
    I wish some clarification here. Can people in the UK buy gluten free food ingredients without a prescription? Can you just go to a store and buy it like you would a loaf of wheat bread or must you have a script? Is the prescription for tax deduction purposes or does the script give you a discount? Or is this prescription something like food stamps here in...
  21. trents
    PattyWayne, I'm with you on the egg intolerance. I've just recently discovered I can't eat more than one whole egg at a meal and not get a belly ache. Not sure when this egg intolerance set on but up until the last few years I have been a big egg eater with no issue. But how many ppm of gluten would you consider to be the threshold of a trace and...
  22. trents
    I've was diagnosed as a celiac almost 20 years ago both by blood work and endoscopy. I do not think I am especially sensitive to minor amounts of gluten but I get violently ill with a major exposure, which has only happened a few times over the years. I do think I am more sensitive than I was at the beginning. But comparing gluten exposure in trace amounts...
  23. trents
    But how possible\practical is this? To have absolutely no gluten in prepared foods? I mean I'm sure if you had a sensitive enough instrument you could detect gluten in the air we breathe and if you lived in Kansas there might be more than a little a some times of the year.
  24. trents
    Welcome to the forum, TrailWalker! My, that's quite a tome! I have never heard that food sensitivities can be cured by herbs. That sounds "quackish" to me. Have you looked into histamine intolerance?
  25. trents
    Then wouldn't 20ppm or below be "safe" for some celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.