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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    There you go. I'm glad you did the follow-up.
  2. trents
    Welcome to the forum, HeylmTyler! Yes, it is possible to develop celiac disease at any stage on life. Many of your symptoms are classic celiac disease symptoms, especially the GI disturbances, foul smelling stool, gas, bloating, brain fog, headaches. The muscle twitching and shakiness could be a neurological manifestation of celiac disease and...
  3. trents
    Obviously, that internist has little knowledge of celiac disease. Your symptoms are among the most common of celiac disease.
  4. trents
    The bisphophonate meds increase bone density by slowing down the removal of old, past their prime, osteocytes (bone cells). This is not the same as making the bones stronger, however, sense there ends up being a higher percentage of old, worn out bone cells in the bones.
  5. trents
    You are most welcome. And speaking of welcome, welcome to the forum. This forum is a great repository for information on gluten-related medical issues. Unfortunately, the medical community at large is fairly ignorant in this particular matter. You kind of have to take them by the hand and walk them through what needs to be done. Unfortunate also is the fact...
  6. trents
    I have no hesitation in recommending to you that you push the doctor to have a full celiac antibody panel done. If the physician will not cooperate, get another doctor. There are also home test antibody kits available for about $100 USD from Imaware: https://www.imaware.health/at-home-blood-test/celiac-disease-screening And please don't start a gluten...
  7. trents
    Those are only genetic test results. Many people have the genetic potential for celiac disease but never develop the disease. It takes some physiological stress event to switch the genes on in order to produce active celiac disease. There have been two genes strongly linked to celiac disease but that doesn't mean you have to have either of them to develop...
  8. trents
    Which "the test for celiac disease" came back negative? There are several blood antibody tests that should run to test for celiac disease but many doctors are pretty uninformed about gluten-related medical problems and only run the TTG-IGA test. Here is a link with more information: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening...
  9. trents
    You will not know for sure if you have celiac disease vs. gluten sensitivity unless you had an endoscopy with biopsy as I stated above. It is not uncommon for serum antibody tests to be negative but the biopsy of the small intestinal lining to show the characteristic damage of celiac disease. However, the antidote is the same for both and that is total avoidance...
  10. trents
    You may have gluten sensitivity rather than celiac disease. Currently, there is no test available to diagnose gluten sensitivity. It is a differential diagnosis. That is to say, if serum antibody testing and endoscopy/biopsy (to check for damage to the small bowel lining which is characteristic of celiac disease) are negative but symptomatically you still...
  11. trents
    Yes, not infrequently do we have forum participants report your same experience with positive bloodwork but negative biopsy. This usually happens for two reasons: 1. People begin the gluten free diet after before the biopsy is done and there is healing of the small bowel lining. 2. Spotty damage to the SB lining such that the biopsy misses the damaged...
  12. trents
    "Lately I’ve been having the usual constipation as well as terrible stomach cramping, bloating, and gas." That sounds miserable to me. Your symptoms scream either celiac disease or gluten sensitivity.
  13. trents
    The tests you had done were for celiac disease which, even though most of the bloodwork was negative, you could still have. But you could also have gluten sensitivity, which does not damage the intestinal villi like celiac disease does but comes with most of the same symptoms. There currently is no test for gluten sensitivity. The way it is differentiated...
  14. trents
    Thyroid issues came to mind as well.
  15. trents
    An experienced gastroenterologist can spot damaged small intestine villi if the damage is dramatic enough and if the scope has high resolution. Celiac disease creates inflammation in the small bowel when gluten is ingested. This inflammation damages the villi that line the small bowel. We refer to this as "villi blunting." The villous lining is the organ...
  16. trents
    Plant based gluten free milk? Do you refer to milk substitutes? Last I knew, milk is produced by animals. I don't agree with going to a vegetarian diet. For one thing, it's hard to get all the nutrition you need from plants. B12 is an example. Iron is another. For another, many people find meat easier to digest than many vegetables. A well-rounded diet...
  17. trents
    Your celiac blood antibody tests will likely be negative since you eliminated gluten from your diet previous to the testing. But I think you have the proof you need to conclude you are a celiac. If you have DH you are a celiac. DH and gut problems are the two classic manifestations of celiac disease. Sone have both. Some have one or the other. Those who don...
  18. trents
    It is normal to put on some weight after going gluten free if you are a celiac. Your body is now more efficiently absorbing the nutrition in the food you eat. Adjustments in what you eat (as opposed to how much) and activity levels are key to losing weight. Also, you might want to look into the keto diet. It does work.
  19. trents
    Celiac symptoms? Have you actually been diagnosed with celiac disease?
  20. trents
    Your total IGA is on the low side, though technically and clinically not considered out of spec. This might be helpful in understanding the antibody tests that can be run to check for celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Deamidated gliadin peptide (DGP IgA and IgG): This test can be used to further...
  21. trents
    Your doctor may want to prescribe Fosamax for the osteoporosis. You should be aware that Fosamax can be hard on the gut and as someone with celiac disease you may want to take a hard look at that. Whatever meds your doc prescribes, check them out for containing wheat starch as a filler.
  22. trents
    May we ask why you had this bloodwork done? We're you having symptoms that would suggest to you that you might have a gluten-related medical condition?
  23. trents
    Somebody else recently posted the same thing about being able to eat bread without celiac issues while visiting another country (and I think it was Finland). This needs some investigation IMO. But also keep in mind that it may not hold true for all celiacs.
  24. trents
    Actually, there was an NIH study someone posted on the forum in the past year that did show at the very finest microscopic level that villi may never be quite what they were pre celiac. But, we still seek the most complete healing possible and that's all we can do. It certainly is better than finding little or no healing. How much, how fast can not only depend...
  25. trents
    Kissing someone who has recently eaten gluten containing food can cause a celiac reaction.
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