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trents

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Everything posted by trents

  1. I still consume dairy and have no issues and I think many or most celiacs do still do consume dairy without issue. A significant number of celiacs cannot tolerate dairy. It is common but maybe not typical. That would be my take. What I thought might be dairy intolerance turned out to be egg intolerance, or a partial egg intolerance. I can still eat egg in...
  2. "Total mixed ration (TMR) is a method of feeding dairy cattle. The purpose of feeding a TMR diet is that each cow can consume the required level of nutrients in each bite. A cow's ration should include good quality forages, a balance of grains and proteins, vitamins and minerals." (from Wikapedia) Sorry, but I don't see why TMR feeding of dairy cows...
  3. Welcome to the forum, SmallTownCeliac! Some celiacs react to the protein in oats in the same way that they do gluten. So, you might try eliminating oats. Also, it is very common for celiacs to develop other food intolerances. Soy, dairy, eggs, corn, oats are common ones but it can be almost anything. You might do well to keep a food diary. Do you have...
  4. https://www.theglutenfreeblogger.com/what-is-gluten-free-wheat-starch-and-is-it-safe-for-coeliacs/ Just a caution here. 20ppm is proving to not be a strict enough standard for many celiacs. And with regard to the expectation that codex wheat starch will return the true wheat texture to gluten free baking? Remember, gluten is the protein responsible for...
  5. magan, any particular reason you don't eat much protein? Some people have a form of anemia called "pernicious" anemia in which their gut does not produce something called "intrinsic factor." Intrinsic factor is necessary for the assimilation of vitamin B12 which in turn is necessary for the assimilation of iron. If someone has pernicious anemia it doesn...
  6. I agree in this case. The OP's original post and request for help was largely ignored by several responders who got side-tracked on the vaccine issue. Obviously, those responders have strong opinions about the vaccine issue and their buttons were pushed. I would note that the OP has consulted with a physician about this issue and has followed the physician...
  7. The celiac "cascade" panel is not genetic testing. It is a comprehensive panel that looks at multiple antibodies that can be elevated with celiac disease, not just the tTG-IGA which is the single most common antibody test (and often the only one) ordered by physicians checking patients for celiac disease. https://www.mayocliniclabs.com/test-catalog/Overview...
  8. 3 days off gluten prior to the serum draw would probably not have much effect on the results. Having said that, if he has lost 50 lb. in two months with serious nausea, etc. I would be more concerned about low gluten consumption leading up the the three day hiatus. The recommendation for a gluten challenge leading up to the serum antibody test is a minimum...
  9. It does seem like you guys have all the bases covered when it comes to cross contamination. And since she is grain free that rules out Oat protein intolerance. What about the possibility of other food intolerances such as egg? Over the years of being a celiac I have developed a partial intolerance to chicken eggs. I can usually consume 1 poached egg without...
  10. Yes, that one. Thanks. I bookmarked it for future reference.
  11. https://onlinelibrary.wiley.com/doi/full/10.1111/j.1440-1746.2006.04556.x#:~:text=At duodenal endoscopy%2C dilated lacteals,inflammation and blunting of villi. I agree with Scott. My guess is she is getting glutened through cross contamination. All meds and supplements should be checked. At her stage of life it is so very difficult to totally avoid gluten...
  12. But is she checking for celiac disease antibodies? That is not included in a standard CBC or a CMP order.
  13. trents

    Ferritin level of 5

    I see no reason not to start the iron supplement as long as you can tolerate it. They tend to be hard on the gut so choose one that is buffered/slow release. Also, drink some acidic beverage with it like orange juice or tomato juice to aid assimilation. And make sure the supplement itself is gluten free. Wheat starch is used as a filler in some pills/suppelments...
  14. You might consider writing up a primer on celiac disease and what gluten is/where is it found to give to family and friends to help them understand it better. There are published resources on this forum to help. One is titled, "Getting started" or something like that. Scott, can you link that one?
  15. Jackie, is your problem with dairy due to histamines or lactose or both? Many foods can trigger high histamine levels. Have you tried cutting those out too?
  16. Trigeminal neuralgia?
  17. So, really what is the difference from a celiac perspective of the new product from the old? Just a different coating on one side?
  18. When I say "have no problem with milk/dairy" I mean they are asymptomatic, whereas by your own testimony "I just thought I was unlucky to have all these symptoms."
  19. I believe you can because inflammation will increase the thickness of membrane linings.
  20. If this turns out to be "a cure," it will be interesting to see how many celiacs who won't take the COVID vaccine because it uses monoclonal antibody technology do an about face and use the monoclonal celiac remedy.
  21. It's not uncommon for celiacs to not be dairy intolerant but far from universal. Many celiacs have no problem with milk/dairy.
  22. I agree with Jackie. I am not aware of any test.
  23. Lisa and Krista, please read the article again: "Well, like many things, the original fries contained no gluten ingredients, but were prepared in fryers that were shared with gluten-containing foods, like breaded chicken. But, according to Wendy's, those days are over, and a "new version of brand's No. 1 sales product is being rolled out now in...
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