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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Question.... Newly diagnosed celiac
trents replied to Aprilmon's topic in Coping with Celiac Disease
Aprilmon, are you on PPI therapy by any chance? Raw veggies can be difficult to digest, especially if you have low stomach acid and your gut biome is out of balance. Many who have celiac disease have GERD and have been put on Proton Pump Inhibitors which raise stomach PH and cause changes in the mix of microbes. You may be low on the microbes that break down... -
COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk
trents commented on Scott Adams's article in Latest Research
Yes, but getting COVID itself could also be a Celiac gene trigger and there is a greater chance that will happen with the unvaccinated.- 70 comments
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14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
No, my Christian heritage is not Mennonite. My wife's is, however. It just strikes me as wise not to say unnecessary things that have the potential to offend someone. -
14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
Back to the cult issue. I think someone took your original remark as you saying that the Mennonite movement as a whole is a cult. When I look at what you wrote I can see that you might have been meaning instead that the particular Mennonite community your great grandmother came out of was a cult. At least I hope that is what you meant. Cults can spring up... -
Question.... Newly diagnosed celiac
trents replied to Aprilmon's topic in Coping with Celiac Disease
I'm not so sure about the concept of "gluten withdrawal." I would guess what you are experiencing is actually due to accidental or unintentional gluten exposure. There is a real learning curve involved with consistently avoiding gluten. It shows up in processed foods that you would never expect to find it in. Examples: Campbells tomato soup, most soy sauces... -
Some people seem to need an official diagnosis to foster the resolve needed to keep from cheating on the diet. You know, "Maybe it's something else besides gluten." "Or maybe it's just coincidence that I get sick when eating wheat." Other than that, save the bucks. Your improvement when going off gluten is the proof in the pudding.
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Loosing weight after going gluten-free
trents replied to dani2323's topic in Related Issues & Disorders
dani, how many calories are you consuming daily? -
Celiac Labs
trents replied to trsalisbury's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Looks like you are well below the standard range so I would say you are not consistently being "glutened" by cross contamination. Having said that, it is always smart to have your own toasters, utensils and cookware, snacks, etc. and keep them in a separate place. -
Celiac Labs
trents replied to trsalisbury's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Tim, we cannot answer your question unless you give us not only your lab value results but the reference ranges used by the lab that did the analysis. Different labs use different reference ranges. -
Spelt bread for gluten challenge?
trents replied to Flamelily's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just to be clear, am I correct in concluding you are putting your son on a gluten challenge because you are having celiac testing done in 12 weeks? I can't say this with any certainty, but I believe spelt is an old world form of wheat that has not gone through so much hybridization as modern wheat. One of the theories out there trying to explain why... -
Gluten free fresh pasta recipes please
trents replied to Happy tummy's topic in Gluten-Free Recipes & Cooking Tips
Welcome to the forum, Alex! I appreciate your attitude of praise! Obviously, you are someone for whom life's glass is half full instead of half empty. With switching from meat to seafood for protein, do you have any concerns about heavy metal toxicity? -
Would getting tested and finding out you were positive for celiac disease strengthen your resolve to not eat gluten containing things? Since you are continuing to eat gluten, now would be the time to get tested rather than when you were on the gluten free bandwagon. Many people need the official diagnosis to prevent them from cheating on their gluten free...
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14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
GodsGal, I grew up in Virginia but haven't lived there since 1976. Moved out west when I was 25. I agree. You can adapt some dishes to gluten-free and they are a reasonable facsimile of the original version but others you just have to let go of. -
14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
When they hear "Mennonite," most people envision folks driving around in-horse drawn buggies with men wearing tall hats and women wearing long dresses and bonnets. But there are different Mennonite groups with some of them being more progressive and embracing modern technology. My wife's Mennonite heritage is the latter. -
14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
I believe only Scott Adams can change your screen name. I believe you would need first to create a new account with a different user name and then Scott can merge the old with the new. Send Scott a message using the forum's personal messaging tool (PM). -
You probably also have vitamin and mineral deficiencies. I would suggest getting on a high potency multivitamin plus a high potency B-complex together with magnesium and D3. Damage the small bowel villi (the nutrient absorbing lining of the small bowel) causes this. Make sure all vitamins and supplements are gluten free. Costco's Nature Made line is a good...
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14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
My wife grew up in a Mennonite Brethren family and church. Her parents would often buy things at the Mennonite Relief sale. She grew up in the Willamette valley of Oregon in a community where there was a concentration of Mennonites. Her maternal grandfather came over on the boat from Prussia when he was a small child. Before I was diagnosed with celiac disease... -
Imodium isn’t working…
trents replied to mkilohio's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Could be a lot of things but I would certainly look at changing GI docs. Any GI doc that tells you you don't need to be eating gluten prior to being tested for celiac disease is not to be trusted as competent. Unfortunately, there is still a lot of ignorance in the medical community with regard to gluten-related illness. -
14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
The social limitations of having to eat gluten free are, to me, the bigger issue than missing taste and texture of things made with wheat. My wife does a good job of making gluten-free substitutes that taste pretty good. Just from a culinary standpoint, the hardest moments are those when I'm smelling the baking of fresh wheat bread or French toast made with... -
14 years after diagnosis I’m cheating
trents replied to Gluten-Hater's topic in Coping with Celiac Disease
So how did you feel physically after your binge? Was it worth it? If I were to eat a piece of wheat crust pizza or a wheat made blueberry muffin, within two or three hours I would be writhing on the bathroom floor with intractable vomiting and unbearably painful gut cramping followed by several hours of diarrhea. When I was diagnosed about 20 years ago... -
Contradictory blood test results
trents replied to TheBay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Pernicious anemia is a fairly common cause for iron deficiency anemia. It's caused by lack of something called "intrinsic factor" which results in the inability to absorb B12, a necessary vitamin in the chain of biochemical transactions necessary to assimilate iron. You might get that looked into. -
You might try going gluten free for a period of time and see if things improve. Don't cut out all carbs. Just eliminate all sources of wheat, barley and rye. Those are the gluten-containing grains.
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Welcome to the forum, chris96856! Have you been diagnosed with celiac disease or with non celiac gluten sensitivity? You don't mention that so just wondering why you are posting in a forum about gluten-related disorders. Do you suspect you have celiac disease or NCGS?
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Does this sound like celiac?
trents replied to Skoit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good point, Scott, about the xanthan gum.