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trents

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Everything posted by trents

  1. trents
    Until we have reference ranges it is impossible to comment on her test scores. Different labs use different reference ranges. Do you have access to her medical chart and test results online? The official guidelines for a pretest gluten challenge is: 1. Blood antibody test: eating an amount of gluten the equivalent of two slices of wheat bread daily...
  2. trents
    Realize that what these tests are measuring is antibodies produced by inflammation in response to gluten consumption. If you cut back significantly or eliminate gluten intake beforehand you sabotage the purpose of the test. That applies to the blood tests and the endoscopy/biopsy. The official guidelines for a pretest gluten challenge is: For the...
  3. trents
    What are the large numbers in parentheses? Are they catalog numbers identifying the test or are they actual test values?
  4. trents
    The tTG-IGA is the most common test run for celiac disease diagnosis and since it has such a small value I assume it to be negative, though you give no reference range for what is normal. It supposedly combines good sensitivity with good specificity. The Immunoglobulin A I believe is just total IGA count and it is in the normal range. Low total IGA...
  5. trents
    The lab report is oddly presented. I can't make heads or tales of the format. The only thing I can say for sure is that "negative" is found twice on the same line at the end of the report while there seem to be three tests that were run. Not sure which of those the two negatives apply to. And I do not see "positive" at all. One thing I can state with...
  6. trents
    JO, I have not heard specifically that neutropenia is associated with celiac disease. But one of the potential causes of neutropenia is nutrient deficiencies according to this article: Open Original Shared Link And we do not that celiacs often have nutritional deficiencies.
  7. trents
    Magnesium is also ver important to bone health.
  8. trents
    One recent large study done by the Mayo Clinic determined that 44% of the first degree relatives of those with celiac disease also have celiac disease themselves. Other studies have placed the incidence at closer to 10%. And we also know that NCGS is approximately 10x more prevalent in he population than is celiac disease. Yes, certainly these things do run...
  9. trents
    I will send you a PM.
  10. trents
    I appreciate your openness. Our bodies/mind/spirit are not isolated from one another and when one is having problems the others often do as well. Traditional medicine tends to compartmentalize them and treat them individually. You asked my profession. I am retired from a long career in Christian ministry, first as a pastor and then for the last 20 or...
  11. trents
    Butter is not pure fat. It is actually a lipoprotein. An allergy to milk would not be caused by lactose (the sugar in milk) but by the protein component. Allergies are reactions to proteins. Some people who think they are lactose intolerant may actually be casein intolerant.
  12. trents
    It can take awhile to learn about the hidden sources of gluten in our food supply. Also, keep in mind that food companies can and do change their formulations from time to time without warning such that something that once did not contain gluten now does. You are relatively new at all this. Also, it typically takes around two years for the villi to heal completely...
  13. trents
    In view of the company's response, I would be more concerned about other causes for your heartburn than a potential issue with Pepcid complete such as a hiatal hernia or even (believe it or not) low stomach acid. Also things like SIBO should be looked at. Are you a coffee drinker? Certain medications, foods and beverages tend to cause the LES (Lower Esophageal...
  14. trents
    OP states in her original post that she is allergic to dairy products.
  15. trents
    You could have NCGS but I have a feeling you have other autoimmune problems going on that may be unrelated to gluten.
  16. trents
    Tapioca and peanut butter are both calorie dense and don't require much chewing. So, you do not have an official celiac disease dx yet since you say you have no auto-immune diagnosis. You may also have NCGS instead of celiac disease. May I ask your age? Are you getting regular exercise? Do you have good support from family and friends? Check...
  17. trents
    It seems like levsin would produce the opposite effect of what you want to happen if you are constipated. Are you still consuming dairy?
  18. trents
    Welcome to the forum, Amanda! You are not alone in this problem. We frequently have posters on this forum who report not being able to get the calories they need either because of many food intolerances/allergies or poor appetite. So, let me ask you some questions. 1. When you say you are allergic to potatoes, peppers and tomatoes, how does...
  19. trents
    Some of your symptoms certainly could be tied to celiac disease. But a word of caution here. If you decide to have an endoscopy/biopsy to check for villi damage of the small bowel (the gold standard for dx celiac disease) you would need to go back to eating regular amounts of gluten for at least 2 weeks. And I hope you did not start eating gluten free prior...
  20. trents
    If you were off gluten for only two days before testing I doubt that would have had a significant impact on the results. Not sure what you are trying to say here, "NCGS is your sensitive to certain gluten not all of it." Gluten is gluten. It is found in wheat, barley and rye. A person with NCGS may have a threshold of sensitivity with regard to the...
  21. trents
    A couple of meals with gluten in them is not enough to ensure a valid celiac antibody test result. The guidelines for the antibody test is the daily consumption of gluten in the amount equivalent to two slices of wheat bread for 6-8 weeks leading up to the test. So if you have been significantly cutting back on gluten in recent weeks the test results...
  22. trents
    Whatever doctor you see, make sure you clarify the pretest gluten challenge period. And keep in mind, even GI docs are not necessarily current on gluten related problems. Many of them, especially if they have been out of medical school for a number of years. What many on this forum have discovered is that you have to go armed with information, be assertive...
  23. trents
    I wanted to straighten that out because the pop media has created a lot of confusion about gluten related medical conditions by their indiscriminate misuse of the terminology. And we have a lot of new members who need to get that clarified in order to understand what's going on.
  24. trents
    An endoscopy with biopsy of the small bowel lining is the gold standard test for celiac disease. The pre test gluten challenge is only 2 weeks for this but would need to be eating significant amounts of gluten daily, the equivalent of two slices of wheat bread.
  25. trents
    I realize this is knit picking but I believe the term is not non celiac gluten intolerance but non celiac gluten sensitivity which is commonly abbreviated NCGS.
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