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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    You are probably aware of this statistic, as you say, but there is a 44% chance that your first degree relatives (which includes your offspring) will develop celiac disease. So, depending on how you look at it, there is better than an even chance your offspring will not develop celiac disease or there is a very good chance they will. But here are some offsetting...
  2. trents
    How did you get scheduled for a biopsy so quickly? Do you have friends in the right places on the medical community?
  3. trents
    Yeah, that sounds fishy.
  4. trents
    The pretest gluten challenge guidelines for obtaining a valid endoscopy/biopsy are the daily consumption of an amount of gluten equivalent to two pieces of wheat bread for at least two weeks. Quite frankly, with your serological numbers, I see no need for you to proceed with the torture just to ensure that the biopsy/endoscopy is valid. There is some merit...
  5. trents
    Posterboy, can you provide links please?
  6. trents
    arlene, that sounds like a wise course of action and one that I have adopted to some degree as well, at least for breakfast. I rotate between three different menus for breakfast. It can be challenging to do for celiacs, however, since our food choices are already narrowed down.
  7. trents
    If you want immediate relief pick up a spray that has real decongestant in it. Because addicts by them in quantities to distill the active ingredient from them for a high, you might not see them over the counter these days so you may have to ask for it. The steroid nasal sprays like Flonase take two to three days to take effect, I believe.
  8. trents
    I still consume dairy and have no issues and I think many or most celiacs do still do consume dairy without issue. A significant number of celiacs cannot tolerate dairy. It is common but maybe not typical. That would be my take. What I thought might be dairy intolerance turned out to be egg intolerance, or a partial egg intolerance. I can still eat egg in...
  9. trents
    "Total mixed ration (TMR) is a method of feeding dairy cattle. The purpose of feeding a TMR diet is that each cow can consume the required level of nutrients in each bite. A cow's ration should include good quality forages, a balance of grains and proteins, vitamins and minerals." (from Wikapedia) Sorry, but I don't see why TMR feeding of dairy cows...
  10. trents
    Welcome to the forum, SmallTownCeliac! Some celiacs react to the protein in oats in the same way that they do gluten. So, you might try eliminating oats. Also, it is very common for celiacs to develop other food intolerances. Soy, dairy, eggs, corn, oats are common ones but it can be almost anything. You might do well to keep a food diary. Do you have...
  11. trents
    https://www.theglutenfreeblogger.com/what-is-gluten-free-wheat-starch-and-is-it-safe-for-coeliacs/ Just a caution here. 20ppm is proving to not be a strict enough standard for many celiacs. And with regard to the expectation that codex wheat starch will return the true wheat texture to gluten free baking? Remember, gluten is the protein responsible for...
  12. trents
    magan, any particular reason you don't eat much protein? Some people have a form of anemia called "pernicious" anemia in which their gut does not produce something called "intrinsic factor." Intrinsic factor is necessary for the assimilation of vitamin B12 which in turn is necessary for the assimilation of iron. If someone has pernicious anemia it doesn...
  13. trents
    I agree in this case. The OP's original post and request for help was largely ignored by several responders who got side-tracked on the vaccine issue. Obviously, those responders have strong opinions about the vaccine issue and their buttons were pushed. I would note that the OP has consulted with a physician about this issue and has followed the physician...
  14. trents
    The celiac "cascade" panel is not genetic testing. It is a comprehensive panel that looks at multiple antibodies that can be elevated with celiac disease, not just the tTG-IGA which is the single most common antibody test (and often the only one) ordered by physicians checking patients for celiac disease. https://www.mayocliniclabs.com/test-catalog/Overview...
  15. trents
    3 days off gluten prior to the serum draw would probably not have much effect on the results. Having said that, if he has lost 50 lb. in two months with serious nausea, etc. I would be more concerned about low gluten consumption leading up the the three day hiatus. The recommendation for a gluten challenge leading up to the serum antibody test is a minimum...
  16. trents
    It does seem like you guys have all the bases covered when it comes to cross contamination. And since she is grain free that rules out Oat protein intolerance. What about the possibility of other food intolerances such as egg? Over the years of being a celiac I have developed a partial intolerance to chicken eggs. I can usually consume 1 poached egg without...
  17. trents
    Yes, that one. Thanks. I bookmarked it for future reference.
  18. trents
    https://onlinelibrary.wiley.com/doi/full/10.1111/j.1440-1746.2006.04556.x#:~:text=At duodenal endoscopy%2C dilated lacteals,inflammation and blunting of villi. I agree with Scott. My guess is she is getting glutened through cross contamination. All meds and supplements should be checked. At her stage of life it is so very difficult to totally avoid gluten...
  19. trents
    But is she checking for celiac disease antibodies? That is not included in a standard CBC or a CMP order.
  20. trents

    Ferritin level of 5

    trents commented on Smiller's blog entry in Smiller's Blog

    I see no reason not to start the iron supplement as long as you can tolerate it. They tend to be hard on the gut so choose one that is buffered/slow release. Also, drink some acidic beverage with it like orange juice or tomato juice to aid assimilation. And make sure the supplement itself is gluten free. Wheat starch is used as a filler in some pills/suppelments...
  21. trents
    You might consider writing up a primer on celiac disease and what gluten is/where is it found to give to family and friends to help them understand it better. There are published resources on this forum to help. One is titled, "Getting started" or something like that. Scott, can you link that one?
  22. trents
    Jackie, is your problem with dairy due to histamines or lactose or both? Many foods can trigger high histamine levels. Have you tried cutting those out too?
  23. trents
    Trigeminal neuralgia?
  24. trents
    Is she still consuming dairy?
  25. trents
    So, really what is the difference from a celiac perspective of the new product from the old? Just a different coating on one side?
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