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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Jackie, if you knew me well you would realize I like to play the "devil's advocate" as the old saying goes in order to make people think through the implications of their theories and also to gain clarity for myself on what they are saying. That is not to say I am not skeptical about your hypothesis but I just want you to know it is not a personal attack...
  2. trents
    You seem to be moving from the position that dairy causes celiac disease because of your claim that dairy is high in histamines to the position that gluten also causes high histamines. Such that, if you remove one or the other, the histamine level goes down and there is healing of the villi which allows some people to consume a certain amount of dairy without...
  3. trents
    As long as you don't intend to pursue additional testing, your next step would seem to be total elimination of gluten from your diet to see if the brain fog improves. But total elimination of gluten from the diet is not as easy as it sounds because wheat (particularly) is included in many, many prepared foods that you would neve suspect it to be in as well...
  4. trents
    Jackie Garrett, there is one factoid that contradicts your theory that dairy intolerance is the root cause of celiac disease rather than the other way around. And that is that some celiacs who are originally intolerant of dairy find that after their villi have healed they can go back to dairy without issue.
  5. trents
    So without the endoscopy/biopsy to confirm that there is or isn't damage to the villi, with what we have to go on being the limited antibody testing, I would look at NGCS as being the issue. You also have the option of asking for a more complete celiac panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. At any rate, whether...
  6. trents
    The Endoscopy/biopsy still is the gold standard, though in Europe more and more celiac diagnoses are being made with the blood tests alone.
  7. trents
    Those lab results do not indicate you have celiac disease. But there are instances where people who do have celiac disease test negatively on the labs, especially if they have already started eating gluten free previous to the blood draw. Is that true in your case? There is also the possibility that you have NCGS (Non Celiac Gluten Sensitivity) for which...
  8. trents
    There’s no way we can tell without reference ranges to know where negative ends and positive begins with that particular laboratory’s rating scheme. You need to give us more info.
  9. trents
    The tTG-IGA test is the most common one run by physicians. It is considered to be the most specific test for celiac disease but it suffers from being less sensitive than some others that can be run and hence, it misses some who actually do have celiac disease. The Immunoglobulin A is done to measure total IGA. If total IGA is low then you can get false negatives...
  10. trents
    The anemia, vitamin deficiencies and weight loss you describe are all common to celiac disease. What two tests did the GI doc order that came back negative? Do you have the numbers and the reference ranges. Do you have online access to your medical records?
  11. trents
    Grams of fiber is not the same as the weight. It will be much less. The fiber is only the part of the food item that is solid and indigestible. It does not involve the water or the assimilated portions of the food item. It is the "ash" to use an older term for fiber. You can google for the fiber amount of any unprocessed food item. Just type in, "How...
  12. trents
    We are regularly discovering new connections between celiac disease and other health problems so I wouldn't rule out a connection between the uterine tumor and celiac disease. Though, I would have to say I am not aware of any research in this area to substantiate your suspicion. Have you actually been diagnosed with celiac disease? So the diagnosis...
  13. trents
    Abolutely! You need to get tested for celiac disease. Ask the physician to run a full celiac panel and not just the tTG-IGA. The tTG-IGA is the most specific antibody test but not the most sensitive. It can miss those who truly have celiac disease. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ For the testing to be valid...
  14. trents
    Being consistent with your meals and other aspects of your lifestyle such as activity and sleep is key in avoiding constipation. That's why we call it being regular. It could be that with only two meals you were not getting enough fiber. The recommended daily intake of fiber for an adult is 25-30 grams per day. That's 8-10 grams per meal if you eat three...
  15. trents
    Are you referring to a celiac diagnosis here or the low pituitary hormone problem? The cold sweats, nausea, vomiting, gastritis, diarrhea after being glutened is also my experience and is a common reaction for celiacs when they get glutened.
  16. trents
    Yes, yes, yes! You won't necessarily get sick immediately when consuming gluten. Some people with celiac disease are largely asymptomatic in the early stages of small bowel villi damage. We call them "silent celiacs". Obviously your physician was ignorant of that fact.
  17. trents
    The only problem I see with it would be adequately cleaning the LG air fryer tray because of it's mesh design. However, you could get two of them and use one only for gluten-free food. I wouldn't be worried about fumes contaminating your gluten-free food.
  18. trents
    Sharonv, what specifically is your concern about this stove? Is your concern that is will be used to cook both gluten-containing food and gluten-free food? You are not giving us much to go on here.
  19. trents
    sunyuzhe, You mention you have had a gastroscopy. That would check for issues in the upper GI track. Have you had a colonoscopy to check for abnormalities in the lower part of the intestines? You might have a kink or a stricture that is preventing the normal passage of digested food from the upper bowel to the colon.
  20. trents
    Have you recently been avoiding gluten? The scope many be invalid if so.
  21. trents
    Gluten-free eating does not need to be expensive if you ditch the ready-made, processed gluten-free items you have been spending money on. Focus on buying fresh meats, fruits and veggies when in season and frozen when not. Avoid restaurants and eating out like the plague. When you are invited over by friends and family for a meal, bring your own food and...
  22. trents
    I agree. But the trouble seems to be you present as already having all the answers.
  23. trents
    wafflegirl, you need to get a new doctor.
  24. trents
    If your TTG-IGA was positive it's just about guaranteed you have celiac disease. There are other antibody tests that can be run but the TTG-IGA is the center piece. Not sure why your physician was so adamant that you did not have celiac disease but the fact is most physicians are woefully ignorant about celiac disease and their knowledge is seldom current...
  25. trents
    Welcome to the forum, sunyuzhe! I'm a little confused. You say you poop every morning and have a normal stool. So there is some improvement with your bowels but there is still a problem at night. Is this correct? What makes you believe your stool gets stuck in your colon and that your colon movement is weak? I ask because you say your stool in the morning...
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