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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Being off gluten for 10 days could have definitely skewed your test results toward the negative side. The only positive you have in that test battery is the tTG-IGG. The tTG-IGA is considered to be the best, most well-rounded test for celiac disease. Supposedly, it combines good sensitivity with good specificity. The other tests fall short in one or the other...
  2. trents
    deanna, didn't you say in your first post that after a certain point your daughter was eating gluten with no discomfort?
  3. trents
    Should be the equivalent of two slices of wheat bread daily for 2 weeks. That is the guideline. I would hate to see you put her through an endoscopy in vain. When is the appointment? If the doc wants to do an endoscopy/biopsy just have him schedule it out at least that far. Or, at least that is one option. Another thing to consider, especially since...
  4. trents
    Particularly in the UK, most physicians forego the endoscopy/biopsy when antibody scores are 10x normal. If you don't feel it is necessary to go through with the endoscopy/biopsy I would go armed with some information like that to justify your position.
  5. trents
    In your case, since your daughter seems to not be having dramatic symptoms anymore while consuming gluten, I would keep her on it until that appointment in case the doc wants to do a scope and biopsy. Having said that, no one, even most physicians I believe, would be unwilling to conclude that your daughter has celiac disease in view of her strong antibody...
  6. trents
    I would say that "there's a really good chance I actually have celiac disease" is a conservative, under-statement.
  7. trents
    Yes. It is typically overwhelming at first. We've all "been there, done that." Another big piece of this is educational. Learning where and how gluten shows up in the food supply. For instance, would you expect to find wheat/gluten in soy sauce or Campbell's tomato soup? Read their ingredient labels and you will discover it's there. Cutting down on gluten...
  8. trents
    I would also suggest that you and the child's father and her siblings get tested for celiac disease. While different research studies over the years have turned up different results, and significantly different, one large recent study done by the Mayo Clinic found that 44% of the first degree relatives of those with celiac disease also had celiac disease...
  9. trents
    Note that “L” and “H” symbols (High/Low). Her tGG-IGA is "H" and unequivocally positive (clearly a positive test result). Her DG-IgG is also high. The center piece of celiac disease antibody testing is the tTG-IGA. It is considered to combine the best of being specific for celiac disease with good sensitivity. I would say without hesitation that sh...
  10. trents
    deanna, Please re-read my post as I did some significant editing, apparently while you were typing a response. One of the things I suggested was getting genetic testing done to establish the potential for celiac disease. There are at this time two, maybe three, genes that have been linked to the potential for developing celiac disease. The other thing...
  11. trents
    Until we have reference ranges it is impossible to comment on her test scores. Different labs use different reference ranges. Do you have access to her medical chart and test results online? The official guidelines for a pretest gluten challenge is: 1. Blood antibody test: eating an amount of gluten the equivalent of two slices of wheat bread daily...
  12. trents
    Realize that what these tests are measuring is antibodies produced by inflammation in response to gluten consumption. If you cut back significantly or eliminate gluten intake beforehand you sabotage the purpose of the test. That applies to the blood tests and the endoscopy/biopsy. The official guidelines for a pretest gluten challenge is: For the...
  13. trents
    What are the large numbers in parentheses? Are they catalog numbers identifying the test or are they actual test values?
  14. trents
    The tTG-IGA is the most common test run for celiac disease diagnosis and since it has such a small value I assume it to be negative, though you give no reference range for what is normal. It supposedly combines good sensitivity with good specificity. The Immunoglobulin A I believe is just total IGA count and it is in the normal range. Low total IGA...
  15. trents
    The lab report is oddly presented. I can't make heads or tales of the format. The only thing I can say for sure is that "negative" is found twice on the same line at the end of the report while there seem to be three tests that were run. Not sure which of those the two negatives apply to. And I do not see "positive" at all. One thing I can state with...
  16. trents
    JO, I have not heard specifically that neutropenia is associated with celiac disease. But one of the potential causes of neutropenia is nutrient deficiencies according to this article: https://www.mayoclinic.org/symptoms/neutropenia/basics/causes/sym-20050854 And we do not that celiacs often have nutritional deficiencies.
  17. trents
    Magnesium is also ver important to bone health.
  18. trents
    One recent large study done by the Mayo Clinic determined that 44% of the first degree relatives of those with celiac disease also have celiac disease themselves. Other studies have placed the incidence at closer to 10%. And we also know that NCGS is approximately 10x more prevalent in he population than is celiac disease. Yes, certainly these things do run...
  19. trents
    I will send you a PM.
  20. trents
    I appreciate your openness. Our bodies/mind/spirit are not isolated from one another and when one is having problems the others often do as well. Traditional medicine tends to compartmentalize them and treat them individually. You asked my profession. I am retired from a long career in Christian ministry, first as a pastor and then for the last 20 or...
  21. trents
    Butter is not pure fat. It is actually a lipoprotein. An allergy to milk would not be caused by lactose (the sugar in milk) but by the protein component. Allergies are reactions to proteins. Some people who think they are lactose intolerant may actually be casein intolerant.
  22. trents
    It can take awhile to learn about the hidden sources of gluten in our food supply. Also, keep in mind that food companies can and do change their formulations from time to time without warning such that something that once did not contain gluten now does. You are relatively new at all this. Also, it typically takes around two years for the villi to heal completely...
  23. trents
    In view of the company's response, I would be more concerned about other causes for your heartburn than a potential issue with Pepcid complete such as a hiatal hernia or even (believe it or not) low stomach acid. Also things like SIBO should be looked at. Are you a coffee drinker? Certain medications, foods and beverages tend to cause the LES (Lower Esophageal...
  24. trents
    OP states in her original post that she is allergic to dairy products.
  25. trents
    You could have NCGS but I have a feeling you have other autoimmune problems going on that may be unrelated to gluten.
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