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trents

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Everything posted by trents

  1. trents
    Yes, I did. My bad.
  2. trents
    We have that information. The problem is with the generic that the OP actually uses.
  3. trents
    Best way to check for CC might be to call the manufacturer and ask if the med is produced on a dedicated line. You can get the manufacturer's phone number from the pharmacy vendor that handles it.
  4. trents
    Don't assume every ill you experience is gluten-related. Especially in the COVID era. I have not heard of gluten caused lymph node swelling. That sounds more like some infection response to me.
  5. trents
    If you go in for celiac disease testing, I encourage you to request the physician to order a complete celiac panel as described in the link above. Many physicians will only order the tTG-IGA test. The complete panel would include the tests under "Other Tests" in the article I linked above. Please be aware that there is a general lack of knowledge in the medical...
  6. trents
    Yes, many of your symptoms are common with both celiac disease and NCGS (Non Celiac Gluten Sensitivity). Your next step is to get tested for celiac disease via celiac antibody testing. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ You can also order a home celiac test from Imaware for about $100 if scheduling doctor...
  7. trents
    "Heinz, Organicville, Walden Farms, and Sir Kensington's specifically label their ketchup as gluten-free. That means it has been tested to under 20ppm gluten content." I do not think this is strictly true. I have recently read the FDA regulations for using labeling something "gluten free" and was surprised to discover that testing is not required unless...
  8. trents
    Great information from an insider! Thanks, Maureen. But it needs to be kept in mind that Mars, or any food company, can change their formulation at any time or change their production lines such that what was gluten free no longer is.
  9. trents
    Your tTG-IGA at 57.6 is strongly positive. This definitely suggests you have celiac disease. There is another diagnostic step that can be taken and that is an endoscopy with a biopsy of the small bowel lining to check for damage to the villi. This second diagnostic step is considered the gold standard of diagnosing celiac disease. If your physician wants...
  10. trents
    We can't tell you anything concerning your IGA test results with the information you have given us. IGA is not a test but a category including several different specific tests. Check this out: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Can you list the specific tests that were run and the resulting values? We would also need...
  11. trents
    How long have you been eating gluten free? Your symptoms do not necessarily indicate excess stomach acid. You are making an assumption there. Burping can actually be a healthy sign that you are producing sufficient quantities of hydrochloric acid again. Are these big burps or many tiny ones? It is possible you actually have low stomach acid. You can...
  12. trents
    Different studies over the years have reported vastly different numbers but one recent large study (300 people I think) done by the Mayo Clinic found that 44% of first degree relatives of those with celiac disease also had celiac disease. The child's father and her siblings also need to be tested. You probably have celiac disease. You have a positive...
  13. trents
    The tTG-IGA is the centerpiece of the celiac test panel. Many doctors will order only this one. It combines fairly good sensitivity with very good specificity. Your daughter's numbers on this one are not borderline. They are strongly positive. Her celiac screen is not borderline. There is no question in my mind that she has celiac disease. An endoscopy/biopsy...
  14. trents
    Yes, definitely all or nothing. But don't beat yourself up if you get accidentally glutened occasionally despite your best efforts. It happens to all of us occasionally. The biggest danger is eating out at restaurants where you have no control over food preparation with regard to cross contamination. Also, gatherings with family and friends is a challenge...
  15. trents
    I'm wondering if you have some form of atypical celiac disease or if you have NCGS. If you do not make an all out commitment to gluten free eating for a significant period of time, including guarding against cross contamination (CC), you cannot be sure you have ferreted out whether or not gluten is the problem or even part of it. We cannot possibly say how...
  16. trents
    Have you been checked for H. Pylori? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5924744/
  17. trents
    Have you had a CVC and CMP recently? Do they show anything out of whack besides the hemoglobin, hematocrit, ferritin levels? How are your total protein and albumin levels?
  18. trents
    Are you on NSAIDs by any chance? May we ask what medications you are on?
  19. trents
    From your first post: I recently had an endoscopy/colonoscopy to get an official diagnosis, and the doctor visually saw atrophy to my stomach and duodenum. Biopsies came back with mild stomach inflamation BUT normal duodenum and negative for Celiac! That seems contradictory. The gold standard for being diagnosed with celiac disease is villous atrophy...
  20. trents
    A common misconception about dairy is that lactose is necessarily the problem with dairy intolerance. It may very well be not the lactose (which is the sugar component) but the main protein, which is casein. Lactose intolerance happens in the lower end of the intestinal track. Research has shown that for some people, casein can cause inflammation and cause...
  21. trents
    Apart from the elevated antibodies, are you experiencing physical symptoms? Are you still consuming dairy or oats? Given the thoroughness of your stand mixer cleaning, I doubt if you are getting glutened from it. But having said that, may we assume you are cooking for others who are not eating gluten free?
  22. trents
    I would look for terms like "starch," "plant starch," "vegetable starch." Things like that which are general enough to include wheat.
  23. trents
    Rln12280, welcome to the forum! You ask some good questions. Somewhere on this forum I have seen a link to gluten free name brand medications. Perhaps Scott Adams can help out here. As you expressed, the more challenging issue is with generics and with the fact that pharmacies frequently switch suppliers such that it can be a moving target and many...
  24. trents
    Were you eating normal amounts of glute leading up to the celiac testing?
  25. trents
    Well, 10 days is the better part of the two week pretest gluten challenge given as the guideline. So, it could have impacted the test I'm thinking. And I would guess that there is a pretty rapid cell turnover rate in the intestinal trac just because of the mechanical wear and tear of stool constantly moving through it if nothing else. So you had both...
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