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trents

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Everything posted by trents

  1. trents
    What are you doing to get B12? There are no vegetable sources of B12 apart from some fermented soy bean products I believe.
  2. trents
    Wrong! Edit: First, you have lots of symptoms that are classic for celiac disease. Second, you have a positive antibody test for celiac disease. Or apparently so. You need to find out what that test was. Do you have online access to your medical records? Third, your liver enzymes are trending high, even though still within normal range. About 18% of...
  3. trents
    Correction here. Previous to the blood antibody test you should be daily eating an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks pretest. That is the guideline. Previous to the endoscopy/biopsy that same daily amount of gluten is prescribed for two weeks previous to the test.
  4. trents
    What do you mean when you say you don't handle B supplements well at all. What happens when you take them? Are you sure you have used gluten free B-complex?
  5. trents
    Eating truly gluten free is much harder than most think it will be at first. The social challenges are the hardest and for some, cravings for "the real thing." And education/becoming aware of how and where gluten is tucked away in the processed food supply is a process that takes some time. But every lapse sets the healing clock back some.
  6. trents
    Actually, it is possible that your insurance rates will go up if there is an official diagnosis since, statistically speaking, there are other health problems and higher morbidity rates associated with celiac disease. However, follow-up blood tests or endoscopies to check for healing progress once the gluten-free diet is begun might need an official diagnosis...
  7. trents
    Like who? Once it's in her medical chart it's official. And if her "celiac specialist" doc is willing to do that, I don't see the need for a biopsy given her strong antibody positives.
  8. trents
    There is nothing in your CBC/CMP blood work that suggests problems. The breast lump and swollen lymph nodes on the same side would be a cause for concern and does need exploration. An abdominal MRI would not likely show the kind of damage caused by celiac disease I'm thinking. It's not the correct tool for this but it could show gross inflammation...
  9. trents
    You might want to do some research on allergy testing between now and then. Results can be unreliable due to a number of variables. I've had a couple of different allergy tests done. One by skin prick and the other serological. People often find that the symptoms they experience in real life don't line up well with allergy testing results. And if you send...
  10. trents
    So have you already had allergy testing done or is this future?
  11. trents
    https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/candy/ Regular M&Ms have no gluten containing ingredients but that doesn't rule out cross contamination in processing and handling as they may be produced on machinery that processes other products with gluten. Also, there may be other ingredients in M&Ms that aggravate your tummy...
  12. trents
    I would consider asking your physician to order a course of prednisone for you. That drug is an immunosuppressant and anti-inflammatory agent so that would point to some kind of autoimmune issue if it helped the rash.
  13. trents
    Have you tried taking antihistamines for the rash and the itch? I think that might be a smart diagnostic step. If the antihistamine helps then that would point to allergies. DH is not an allergy. It is an autoimmune disorder.
  14. trents
    DH has a very specific appearance. I think it produces tiny blisters. I'm sure there are pics on the internet for it. I'm wondering if you have an allergy to something in your diet or your environment instead of DH or celiac disease.
  15. trents
    Gael, welcome to the forum! Do you know what blood test you had done that came back negative? Realize that if start a gluten free diet before testing the testing may be invalidated, whether for DH or for gut manifested celiac disease.
  16. trents
    Then 1:40 would definitely be a positive result.
  17. trents
    I would guess that in addition to celiac disease, Emily, you have some significant food and/or environmental allergies going on.
  18. trents
    Yes, there is a significant correlation between celiac disease and reflux.
  19. trents
    I can see why you are confused. Your numbers for that test would seem to indicate a negative rather than a positive. Unless I misunderstood the explanation of the titer from my research and from RMJ's posgt, it would seem that a higher titer ratio indicates a higher concentration of antibodies since it takes more dilution to zero it out.
  20. trents
    You might also consider making an appointment with an ENT to get those nasal passages and sinuses scoped out.
  21. trents
    Just make sure you don't begin the gluten free diet before all testing is complete.
  22. trents
    Welcome to the forum, Emily. How were you diagnosed with celiac disease? The problems you describe with you throat, mouth and sinuses sound like they could be related to acid reflux. Reflux can get all the way up into your sinuses and cause irritation/inflammation and also frequent sinus infections. This can happen particularly at night when you...
  23. trents
    No, not tTG-DGP but tTG-IGA. Actually, I don't believe the Deamidated Gliadin Abs, IgG can point to other things besides celiac disease. I misspoke about that. There are a variety of these tests because some are more specific or more sensitive than others and what one misses another can pick up on. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC376458...
  24. trents
    Have you actually been diagnosed with celiac disease? Maybe you just have a allergy to gluten and to nut proteins. I mean you can have both a celiac reaction to gluten and an allergic reaction to it as well. Again, the symptoms you describe in your first post don't seem like celiac reactions but rather allergic reations.
  25. trents
    titer = "the concentration of an antibody, as determined by finding the highest dilution at which it is still able to cause agglutination of the antigen." So I take it that the term refers to the lowest concentration which can be detected. I'm assuming that would correlate to "0" on the negative/positive scale. Other than that, I cannot help you out...
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