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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    You really have to be careful in any bulk food/health food setting where you scoop stuff out of a bin. The bins are generally next to each other and one gets spilled over into the other, as well as the same scoop may be used for gluten containing grains that is used for non gluten containing grains.
  2. trents
    I think that's pretty normal. That's my experience as well when I get glutened.
  3. trents
    1. If the tTG-IGA is positive then it almost certainly means you have celiac disease. If it is negative it does not rule out celiac disease. It is considered to be the most specific antibody test for celiac disease but not the most sensitive so sometimes it misses people who actually do have celiac disease. Here is a primer on various antibody tests that...
  4. trents
    That's good information, RMJ. So, my paraphrase of that would be that the food companies may use the "gluten free" label without proof that they meet the 20ppm standard unless the FDA chooses to test their product and finds otherwise. And this isn't likely to happen unless there are consumer complaints that suggest the standard isn't being met. And that,...
  5. trents
    It's all in the definition of "gluten free." The FDA allows food products to be labeled "gluten free" as long as they contain no more than 20ppm of gluten. Food companies that label their products "certified gluten free" have met a stricter standard of 10ppm. The history of the numbers is that at some point in the last 20-25 years the FDA determined that...
  6. trents
    For the time being I would avoid all processed foods and cook everything from scratch. Stick to simple things like fresh meat, vegetables and fruit. Also, dairy can cause the same reaction as wheat for some people and also oats. Avoid eating out like the plague. If you eat in restaurants you are practically guaranteed to get glutened as the kitchen staff...
  7. trents
    No. The mucous in the stool is not normal for celiacs who are truly eating gluten free. Its an indication of inflammation. I suspect you are still getting gluten and are actually eating lower gluten rather than gluten free. There is a real learning curve involved in truly eating gluten free since wheat/barley/rye are found in so many processed foods - in...
  8. trents
    Yes, it is well-known by now that celiac disease is associated with mood disorders. There is probably a strong link to vitamin and mineral deficiencies in this matter as people with celiac disease, because of the damage to the small bowel villi, do not absorb the nutrition from food efficiently. If I were you I would start taking a gluten free high potency...
  9. trents
    The watery yellow mucous with bubbles sounds like it could be undigested fat. That is one of the symptoms of celiac disease. Do you not have online access to your medical record test results to be able to get the numbers? What country are you in?
  10. trents
    What you describe is the common social experience of those with celiac disease. We have all been there done that! Realize that many or most people haven't a clue about celiac disease. Many people (including friends and family) will dismiss you as a hypochondriac or see celiac disease as the latest fad diet. And restaurants. Sheesh! Even those eateries that...
  11. trents
    It's borderline and deserves further investigation. My guess is it would have been more strongly positive had you been eating good amounts of gluten for a longer time leading up to the test.
  12. trents
    "Gluten intolerance" is an umbrella term that covers both celiac disease and gluten sensitivity. Gluten sensitivity is often called NCGS (Non Celiac Gluten Sensitivity). There currently is no test to diagnose NCGS so it is inferred when symptoms persist even though the tests for celiac disease are negative. The symptoms of NCGS are much the same as with celiac...
  13. trents
    The official guidelines for obtaining a valid blood antibody test are to consume an amount of gluten daily equivalent to two slices of wheat bread for 6-8 weeks prior to the test. Three days will not suffice. For the endoscopy/biopsy of the small bowel lining the gluten challenge time is shorter: that same amount of gluten daily for at least two weeks. If...
  14. trents
    To confirm what diagnosis? You do not say that the naturopath offered a diagnosis. Is she suspecting you have celiac disease even though the antibody test is negative? Or is she trying to confirm IBS? tTG-IGA is a celiac disease test. For any current method of testing for celiac disease you need to be eating regular amounts of gluten (the equivalent...
  15. trents
    Thanks for that resource, kk. Good read.
  16. trents
    "Benign," huh! Sounds like he was evaluating it for cancer rather than celiac disease.
  17. trents
    Yes, he is in denial it seems. But denial can be a way of saying, "I don't want to know more. It wouldn't change my mind. It's more important to me to enjoy life as I have known it." As far as what to expect. That is hard to say. No one dies directly from celiac disease but typically the malnourishment it produces leads to other health problems that...
  18. trents
    I understand. I hope you are not one of those who develop additional food intolerances or additional autoimmune diseases. I am sorry if I added to your anxiety by my choices of words. We still live one day at a time and need to deal with challenges one at a time as they come. I certainly agree that it is not good to worry about things that may not happen...
  19. trents
    Thank you for your input.
  20. trents
    Even if most celiacs are not on this forum, you must admit that this forum represents a very large statistical base. No research study can survey or test all people who have a given medical condition but the larger the test base the more weight it's findings carry.
  21. trents
    Perhaps "most celiacs" is an overstatement when applying it to development of other autoimmune diseases and food intolerances. But you don't have to hang around this forum very long to understand that these attendant conditions are very common to the celiac community. There is a statistical correlation between celiac disease and the development of other autoimmune...
  22. trents
    Welcome to the forum, Joel! I have an uncle that was diagnosed with celiac disease maybe 8-10 years ago. He is 89 years old now. He made a half-hearted attempt to eat gluten free for a bit but then abandoned all efforts. Being a celiac myself, I cajoled him to get on the gluten free bandwagon but it became clear to me he made a conscious decision to...
  23. trents
    Yes, I would get that test repeated so that you have a current assessment. And as Scott said, I would also be on the lookout for other food intolerances that might be causing gut inflammation. I would consider eliminating dairy to start with and see if the pain goes away. Many celiacs can't tolerate dairy. If dairy isn't the culprit, try eliminating chicken...
  24. trents
    Lynn, Did you mean "tTG-IGA"? If the reference range is <20, 31 would mean she is still getting inflammation in the small bowel.
  25. trents
    Which antibody level was 31 and what is the reference range for that? There is more than one antibody test that can be done for celiac disease. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Yes, the development of other food intolerances is very common in the celiac community. Dairy, egg and soy and corn are very common ones...
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