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trents

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Everything posted by trents

  1. trents
    No, not tTG-DGP but tTG-IGA. Actually, I don't believe the Deamidated Gliadin Abs, IgG can point to other things besides celiac disease. I misspoke about that. There are a variety of these tests because some are more specific or more sensitive than others and what one misses another can pick up on. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC376458...
  2. trents
    Have you actually been diagnosed with celiac disease? Maybe you just have a allergy to gluten and to nut proteins. I mean you can have both a celiac reaction to gluten and an allergic reaction to it as well. Again, the symptoms you describe in your first post don't seem like celiac reactions but rather allergic reations.
  3. trents
    titer = "the concentration of an antibody, as determined by finding the highest dilution at which it is still able to cause agglutination of the antigen." So I take it that the term refers to the lowest concentration which can be detected. I'm assuming that would correlate to "0" on the negative/positive scale. Other than that, I cannot help you out...
  4. trents
    Keep in mind that tree nuts are often handled by the same equipment that is used for processing gluten-containing grain products. So, cross contamination could be an issue.
  5. trents
    Your tTG-IGA is strongly positive and the symptoms you list are classic for celiac disease. Even the irregular menses I believe is not uncommon among pre menopausal women with celiac disease. There is no doubt in my mind that you have celiac disease. How long have you been experiencing these symptoms?
  6. trents
    Welcome to the forum, Msawyer! Perhaps this will help you understand the blood tests that were run and their results: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The tTG-IGA test is the centerpiece of the celiac panel. It combines good specificity with good sensitivity. Your numbers seem to be quite high but we cannot...
  7. trents
    39 might be a little early to be seeing this kind of thing. Does it run in your family? Is this accompanied by lower extremity edema? Do you notice any dusky or purple color in your feet or lower legs? I am not aware of bulging veins/spider veins being connected with celiac disease.
  8. trents
    One answer is that gluten is addictive: https://thefnc.com/research/gluten-and-dairy-are-like-addictive-drugs-to-the-brain/#:~:text=Gluten and dairy cause opioid,cold turkey off these foods. Some people struggle more than others with those kinds of things.
  9. trents
    You say you have no inflammation in your blood. Not sure what you mean by that. There are specific tests for celiac disease that measure antibodies produced by the disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Have you had any of these tests run. Particularly the tTG-IGA? Before you get too far into eating gluten free...
  10. trents
    Boymom96, Unfortunately, the antibody tests your physician ordered do not include the tTG-IGA which is the centerpiece and the most common antibody test that physicians typically order when checking for celiac disease. The tTG-IGA (tissue transglutaminase Immunoglobulin A) combines very good specificity with good sensitivity. You have a weak positive...
  11. trents
    Tree nuts are a common allergen and not just for celiacs. Walnuts give me a scratchy throat and sometimes as well their close cousin, pecans. But keep in mind that allergic reactions involve an entirely different pathway of the immune system than does celiac disease which is an autoimmune disease.
  12. trents
    Believe me, Sammie. I remember how overwhelming it was in the beginning. Okay, so she is in college and not high school and living in a dorm and not at home. Thanks for the clarification. Does she have a frig in her dorm room or is there one in the dorm? What about a microwave? I feel strongly she should not be eating dining hall food unless it...
  13. trents
    Welcome to the forum, lucas21! Are you still consuming dairy and/or oats? Dairy is known to cause inflammation/villi blunting very similar to celiac disease in some people. About 10% of celiacs react to the protein avelin in oats like they do to gluten. Are you taking NSAIDs frequently? They can also damage villi. Do you use a lot of "gluten...
  14. trents
    Elevated liver enzymes is one of recognized spinoffs of celiac disease. One expert has said it occurs in about 18% of the celiac population. It is what led to my celiac diagnosis about 20 years ago. There are different theories as to the mechanism. Some believe it is due to the "leaky gut" associated with celiac disease where larger than normal protein fractions...
  15. trents
    SammieH, I would certainly suggest your daughter not eat the food served in the school cafeteria. She can have no control over cross contamination as kitchen staff will likely use the same utensils to stir, serve and cut non gluten items as they do gluten things. She needs to take her own food from home. Same applies for eating out at fast food places or...
  16. trents
    Walter, I would definitely suggest you start on a good adult multivitamin and on top of that a high potency B-complex. Costco's Nature Made products are gluten free and of excellent quality. I would also add to that a gluten free vitamin D3 supplement of at least 2000 IU, a gluten free magnesium (stearate or glycinate form) and a gluten free zinc supplement...
  17. trents
    So, what are you doing to address your anemia?
  18. trents
    No, my bad! I was wrong about Katie being the OP. Sorry for the confusion.
  19. trents
    Ginger, my question was intended for the OP, Katie munos. Apparently, you and I were posting about the same time and you beat me to it by a smidgen.
  20. trents
    I'm no cardiologist or even a physician of any kind but I do know that a couple of the spinoffs of celiac disease can be: 1. anemia and 2. neurological problems. Have you been officially diagnosed with a gluten-related disorder?
  21. trents
    Lissa, welcome to the forum! The ingredients used in the medication formulation is not the only issue. Pills and caps can be manufactured on the same equipment used to make other meds that may contain gluten. So there potentially can be an issue with cross contamination.
  22. trents
    Yes, it is possible to also have an allergy to a gluten containing grain. Costco sells a delicious gluten free cauliflower crust pizza. My wife, who is not a celiac, actually likes it better than regular pizza.
  23. trents
    Barley is one of the three gluten containing grains to be avoided along with rye and wheat if you have celiac disease.
  24. trents
    No disrespect intended. Just trying to help. Sometimes we as celiacs can get a little tunnel vision.
  25. trents
    Anemia is one of the most common spinoffs of celiac disease. I was slightly anemic before I was diagnosed but not enough to really produce symptoms. Becoming easily fatigued is usually the first symptom of significant anemia. You may also experience rapid heart rate, shortness of breath, feeling chilly like the thermostat has been turned down and brittle...
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