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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Well, your doctors did things backwards from how testing is usually done in the sense of doing the blood antibody tests after the endoscopy/biopsy but the outcome is what matters. Now comes the educational challenge of learning where and how gluten is hidden so as to be able to consistently avoid it.
  2. trents
    Sounds like you may not have celiac disease since the antibody tests so far don't indicate villi damage in the small bowel. But I would look at NCGS (Non Celiac Gluten Sensitivity) if I were you. The antidote is the same. Total abstinence from gluten for life. The next step would be to commit to a gluten free diet and see if your symptoms improve.
  3. trents
    NCGS (Non Celiac Gluten Sensitivity) should not elevate the tTG-IGA since it does not damage the villi as does celiac disease. It might be helpful to run a full celiac panel run rather than just the tGG-IGA. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But usually, when the tTG-IGA is even slightly elevated it indicates...
  4. trents
    Thyroid disease (Hashimoto) resulting in low thyroid hormones is not uncommonly found in association with celiac disease. Are you taking any gluten free vitamin and mineral supplements?
  5. trents
    Have you had your thyroid hormone levels checked?
  6. trents
    May we ask, are you male or female. An important fact when talking about hair loss. I'm 70 now and I lost most of mine some years ago. Now I shave my head every other day so I'm bald and don't have to fuss with the little that is left. I was diagnosed with celiac disease twenty years ago but realize now I had it for many years before it was diagnosed...
  7. trents
    That does help me understand what you were trying to say, cristiana. The article in the link (and reflected in your post) is distinguishing between concentration of gluten in food item and total gluten consumption over a day's time. That is a concept I don't think I have ever seen discussed anywhere else and certainly not on this forum. I think it is an important...
  8. trents
    Cristiana, I'm not sure what you are trying to say here. You seem to be contradicting yourself by saying in one place that 20ppm is deemed safe but then immediately lower it to 10ppm in order to be safe. Could you clarify your intent here?
  9. trents
    "Free from" is not one I have seen but judging from your spelling of "coeliac" it must be a UK thing.
  10. trents
    The proof is in the pudding, isn't it!
  11. trents
    Sometimes villi blunting can be very patchy and depending on where the samples for the biopsy were taken, the damaged areas could have been missed. The tTG-IGA is considered to be very specific for celiac disease. There are other antibody tests for celiac disease can be done that are less specific but more sensitive. So, when the tTG-IGA is clearly positive...
  12. trents
    Age is always against you except for wisdom and senior discounts.
  13. trents
    Ella, There are many "silent" celiacs out there who, like you have very minor or no GI symptoms. This is not that unusual and is a very big misconception, even within the medical community.
  14. trents
    With no instant replays, please!
  15. trents
    All your symptoms are common to celiac disease except maybe the elevated platelet count. I haven't heard that one before.
  16. trents
    I think that is the highest tTG-IGA value I have seen reported on this forum. Are you sure the laboratory doing the analysis didn't mistype when entering the report data? If that is a valid number, there is no wonder you are not assimilating the vitamin and mineral supplements you are taking. My guess would be your villi are badly damaged. Do you mind me...
  17. trents
    Welcome to the forum, Ace! Can you be more specific about the particular antibody test or tests that were done? There are a number of antibody tests that can done for celiac disease. The most commonly ordered test is the tTG_IGA. It is the most specific for celiac disease but not the most sensitive. Maybe this will help you to get a flavor for what I...
  18. trents
    Yes, there is a chance he could still have celiac disease. A full celiac antibody panel was not run and that should have been done since children often do not develop antibody responses in the same pattern as adults. Really, only one celiac antibody test was done and that was the tTG-IGA. The other one is just a total antibody count to make sure the total...
  19. trents
    Make sure the doc doing the scope not only looks for celiac but actually takes biopsy samples and sends them to a lab for microscopic analysis. Depending on the experience of the one doing the scoping, the resolution of the scope being used, and the extent of the damage it may not be visible to the naked eye.
  20. trents
    Living in a large metro area you will likely have resources to help you cope such as celiac support groups. There may even be gluten free eateries available where your family can dine without fear of cross contamination. The hardest part can be getting family and friends onboard in the sense of taking it seriously. Many people take the attitude that gluten...
  21. trents
    It is a very good thing that this was discovered at such a young age and it might prove to be a blessing for other family members in the since of being on the lookout for celiac disease. But this will have a major impact socially on all your lives it if is confirmed that your son does have celiac disease.
  22. trents
    Oh yes. If your son goes for further testing such as the edoscopy/biopsy he should still be consuming regular amounts of gluten. Many people sabotage the testing by starting a gluten free diet prior to testing. And many physicians don't know enough to tell them not to do that.
  23. trents
    Studies that show the chances of first degree relatives of someone with celiac disease having celiac disease themselves are all over the map. One large recent study done by the Mayo Clinic determined that is is 44% but the most common figure I have seen over the years is 10%. First degree relatives would be siblings and parents. Celiac disease can develop...
  24. trents
    Yes, it certainly looks like celiac disease. The gold standard for confirmation is an endoscopy with biopsy of the small bowel to check for damage to the villi. But docs are more reluctant to do something invasive like that on children than on adults.
  25. trents
    Cari, it definitely looks like he could have celiac disease. Do you have the reference range for each of those tests? They say "high" but the actual values aren't particularly large. Do you have the reference range for what is normal? Different laboratories use different standards. In the meantime, you might find this helpful: https://celiac.org/about-celiac...
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