Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,394

  • Joined

  • Last visited

  • Days Won

    506

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    "Heinz, Organicville, Walden Farms, and Sir Kensington's specifically label their ketchup as gluten-free. That means it has been tested to under 20ppm gluten content." I do not think this is strictly true. I have recently read the FDA regulations for using labeling something "gluten free" and was surprised to discover that testing is not required unless...
  2. trents
    Great information from an insider! Thanks, Maureen. But it needs to be kept in mind that Mars, or any food company, can change their formulation at any time or change their production lines such that what was gluten free no longer is.
  3. trents
    Your tTG-IGA at 57.6 is strongly positive. This definitely suggests you have celiac disease. There is another diagnostic step that can be taken and that is an endoscopy with a biopsy of the small bowel lining to check for damage to the villi. This second diagnostic step is considered the gold standard of diagnosing celiac disease. If your physician wants...
  4. trents
    We can't tell you anything concerning your IGA test results with the information you have given us. IGA is not a test but a category including several different specific tests. Check this out: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Can you list the specific tests that were run and the resulting values? We would also need...
  5. trents
    How long have you been eating gluten free? Your symptoms do not necessarily indicate excess stomach acid. You are making an assumption there. Burping can actually be a healthy sign that you are producing sufficient quantities of hydrochloric acid again. Are these big burps or many tiny ones? It is possible you actually have low stomach acid. You can...
  6. trents
    Different studies over the years have reported vastly different numbers but one recent large study (300 people I think) done by the Mayo Clinic found that 44% of first degree relatives of those with celiac disease also had celiac disease. The child's father and her siblings also need to be tested. You probably have celiac disease. You have a positive...
  7. trents
    The tTG-IGA is the centerpiece of the celiac test panel. Many doctors will order only this one. It combines fairly good sensitivity with very good specificity. Your daughter's numbers on this one are not borderline. They are strongly positive. Her celiac screen is not borderline. There is no question in my mind that she has celiac disease. An endoscopy/biopsy...
  8. trents
    Yes, definitely all or nothing. But don't beat yourself up if you get accidentally glutened occasionally despite your best efforts. It happens to all of us occasionally. The biggest danger is eating out at restaurants where you have no control over food preparation with regard to cross contamination. Also, gatherings with family and friends is a challenge...
  9. trents
    I'm wondering if you have some form of atypical celiac disease or if you have NCGS. If you do not make an all out commitment to gluten free eating for a significant period of time, including guarding against cross contamination (CC), you cannot be sure you have ferreted out whether or not gluten is the problem or even part of it. We cannot possibly say how...
  10. trents
    Have you been checked for H. Pylori? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5924744/
  11. trents
    Have you had a CVC and CMP recently? Do they show anything out of whack besides the hemoglobin, hematocrit, ferritin levels? How are your total protein and albumin levels?
  12. trents
    Are you on NSAIDs by any chance? May we ask what medications you are on?
  13. trents
    From your first post: I recently had an endoscopy/colonoscopy to get an official diagnosis, and the doctor visually saw atrophy to my stomach and duodenum. Biopsies came back with mild stomach inflamation BUT normal duodenum and negative for Celiac! That seems contradictory. The gold standard for being diagnosed with celiac disease is villous atrophy...
  14. trents
    A common misconception about dairy is that lactose is necessarily the problem with dairy intolerance. It may very well be not the lactose (which is the sugar component) but the main protein, which is casein. Lactose intolerance happens in the lower end of the intestinal track. Research has shown that for some people, casein can cause inflammation and cause...
  15. trents
    Apart from the elevated antibodies, are you experiencing physical symptoms? Are you still consuming dairy or oats? Given the thoroughness of your stand mixer cleaning, I doubt if you are getting glutened from it. But having said that, may we assume you are cooking for others who are not eating gluten free?
  16. trents
    I would look for terms like "starch," "plant starch," "vegetable starch." Things like that which are general enough to include wheat.
  17. trents
    Rln12280, welcome to the forum! You ask some good questions. Somewhere on this forum I have seen a link to gluten free name brand medications. Perhaps Scott Adams can help out here. As you expressed, the more challenging issue is with generics and with the fact that pharmacies frequently switch suppliers such that it can be a moving target and many...
  18. trents
    Were you eating normal amounts of glute leading up to the celiac testing?
  19. trents
    Well, 10 days is the better part of the two week pretest gluten challenge given as the guideline. So, it could have impacted the test I'm thinking. And I would guess that there is a pretty rapid cell turnover rate in the intestinal trac just because of the mechanical wear and tear of stool constantly moving through it if nothing else. So you had both...
  20. trents
    Good input from Jen1975. You would need to have been eating regular amounts of gluten (defined as two slices of wheat bread daily or the equivalent amount of gluten) before testing for 6-8 weeks for the antibody tests and for at least 2 weeks before the endoscopy/biopsy.
  21. trents
    Andre, you might want to look at hot cereals. My favorite has become buckwheat groats. It's the seeds of a plant in the same family as Rhubarb and not related to wheat. Delicious! But it is a long cook cereal, about 10 minutes: https://smile.amazon.com/Organic-Hulled-Buckwheat-Groats-Anthonys/dp/B00QKXVAN2/ref=sxts_rp_s1_0?crid=2RE86Q2DTPK9Z&cv_ct_cx...
  22. trents
    Thanks for the correction, clarification and additional information. You can add pictures with any new post by clicking on the paperclip symbol in the lower left corner of the post text box before hitting the "Submit Reply" button. After a post is made you can add a picture later by clicking on the three horizontal dots in the upper right corner of the...
  23. trents
    You are correct. IGE is for allergies. An entirely different immune system pathway. Here is a description of tests that can be run for celiac disease and their strong and weak points: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ If you don't get any cooperation from your doctor soon, I advise getting another one. Also...
  24. trents
    " . . .but my celiacs gene wasn't active." Have you had genetic testing done and if so, did it turn up that you have either or both of the genes for celiac disease that have been identified with the disease so far? The only way to know if your celiac genes are currently actively expressing themselves is to get proper testing to rule out celiac disease as...
  25. trents
    That sounds like an allergic reaction rather than either a celiac or a gluten sensitivity reaction.
×
×
  • Create New...