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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    This occurred to me as well when HectorConvector stated he only ate white, low fat meat and when the list of foods that followed that did not include fats or oils. Made me wonder if there was a deficiency of some fat soluble vitamin or vitamins. We have been sold a false narrative for many years by dietary science by being urged to eat a low fat high carb...
  2. trents
    Have you had a follow-up endoscopy/biopsy to check for healing of the villi? Have you heard of refractory celiac disease?
  3. trents
    Humans don't have the ability to digest cellulose. This is not the result of changes in the gut biome caused by antibiotics.
  4. trents
    How quickly could you get an appointment scheduled with your PCP? If you could see him the first part of next week and he was willing to do a blood draw and order a celiac panel it would expedite things by about 1 week. Then the GI doc you are seeing on Dec. 1 might decide to move ahead with the endoscopy/biopsy for confirmation. Hang in there and don't let...
  5. trents
    Jacky Bender, welcome to the forum! Currently, there are no tests to diagnose celiac disease that will give valid results if someone has already begun the gluten free lifestyle. Having said that, a positive diagnosis of DH is definite proof that you have celiac disease. There are no other medical conditions that cause DH besides celiac disease...
  6. trents
    The first thing to realize is that neither celiac disease or NCGS (Non Celiac Gluten Sensitivity) are allergic reactions. Celiac Disease is an autoimmune condition. It engages an entirely different immune system pathway than do allergies. So, allergy testing will not be helpful. Likewise, NCGS is not an allergy. Currently, there are no tests to directly diagnose...
  7. trents
    I think thyroid hormones work like blood pressure. Depending on the day and the time of day and probably a number of other factors, there can be considerable variance in results from different samples. It would probably be more helpful to get thyroid hormones tested several times over time at the same time of day. I know that this is not very practical. Given...
  8. trents
    Welcome to the forum GarbrielReita! We do know that celiac disease has neurological manifestations for some people. This is not at all uncommon. The fact that when you began to eliminate gluten from your diet there was some improvement does point to a problem with gluten. Your next step needs to be to get tested for celiac disease. The first...
  9. trents
    That is an area of the body prone to arthritis where the clavicles attach to the sternum. There is kind of a pseudo joint there. Does the pain coincide with getting glutened?
  10. trents
    Are you asking about this in relation to celiac disease?
  11. trents
    Sammie, the 50 score is not very meaningful unless we have reference ranges (what is normal and what is high) to gauge it by. Different labs use different reference ranges.
  12. trents
    I often takes two weeks to recover from a glutening espisode.
  13. trents
    Your doctor failed to order the most important antibody test for celiac disease, the tTG-IGA which is the centerpiece of the celiac antibody panel: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ You should be on regular amounts of gluten (defined as daily consumption of gluten in the equivalent of two slices of wheat bread...
  14. trents
    ^What Ravenwoodglass said.^ Years ago researchers identified two genes that are associated with celiac disease. Recently, they identified a possible third one. And who knows if there are still more than that? The human genome contains many interrelated parts and to assign one or two genes as responsible for this or that may be too reductionistic sometimes...
  15. trents
    D3 can be toxic at high doses since it is a fat soluble vitamin. Magnesium has a laxative effect for me at fairly moderate doses, like "milk of magnesia." Zinc can also be toxic at high doses and even at lower doses can impair iron and copper assimilation. I take very modest amounts of both every other day.
  16. trents
    The expense of supplements is certainly a valid concern for some. But when this is not an issue, I would rather spend a little extra to make certain I was getting good coverage. In the past year there was an NIH research article that showed there may never be complete healing of the small bowel lining even on a strict gluten free diet. When they examined...
  17. trents
    Welcome to the forum Anxiety4lyfe! It is not all that uncommon for the antibody bloodwork to be negative while the biopsy is positive. The biopsy is the diagnostic gold standard for celiac disease. So, I'm baffled that your doctor would declare that you do not have celiac disease. There are a few fairly rare non celiac explanations for blunted villi...
  18. trents
    Elizabeth Butler, what's wrong with taking mega doses of B-vitamins like you would find in the typical caplet B-complex supplement? They are water soluble. You pee out the excess.
  19. trents
    Welcome to the forum, Sammie! It typically takes many years to arrive at a celiac diagnosis. There is an appalling amount of ignorance in the medical community about celiac disease, though there are signs that there is more awareness of this health issue, especially among more recent medical school graduates. One word of caution is in order. Don...
  20. trents
    That's exactly what I said. Please go back and read my post again.
  21. trents
    They contain emulsifiers and food coloring as well and who knows what else.
  22. trents
    But the yeast is fortified with B vitamins. What's the difference between that and taking a B12 supplement via tablet?
  23. trents
    You have already had both kinds of diagnostic procedures done (antibody and scoping/biopsy) and there are no more diagnostic tools left to check for celiac disease. Everything points to the fact that you are a celiac. Any more holding out would amount to denial. Start the gluten-free diet.
  24. trents
    It seems clear to me, both from the antibody blood test and from the endoscopy, that you have celiac disease and you may also have colitis. There is a statistically higher incidence of IBS and colitis among the celiac population than is found outside the celiac population.
  25. trents
    If you have access to a Costco, try Simple Mills Almond four crackers. Gluten free, much better nutrition than regular saltines and delicious!
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