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trents

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Everything posted by trents

  1. trents
    My wife gets her curry in capsule form. Must be an asian meal in a pill.
  2. trents
    Move over to gluten free hot cereals. It's a little more trouble but readily available and more nutritious because there is less processing. I use gluten-free oatmeal, gluten-free buckwheat and something else that is gluten-free from Bob's Red Mill called Mighty Tasty Hot Cereal. I rotate among those during the week.
  3. trents
    I had added more to my post after you responded. Please read again. Pretesting recommendations from Mayo are the consumption of the equivalent amount of gluten found in two slices of wheat bread daily at least two weeks before an endoscopy/biopsy and 6-8 weeks before the serum antibody test. The endoscopy/biopsy is considered the gold standard of celiac...
  4. trents
    Has you already begun a gluten free diet between the time of the endoscopy/biopsy and the serological antibody testing? The immune system of some celacs responds atypically such that the antibody tests are negative while the biopsy is positive. You might seek out a more complete or "full" celiac panel which includes the "Other" tests discussed in this...
  5. trents
    Nausea and vomiting are common with celiac disease when gluten is ingested. But it could also be unrelated and caused by many other things. Untreated celiac disease (treated by going gluten free) can lead to neurological problems. The dizziness could be tied to that but could also be an unrelated problem. If you will be going for further testing then you...
  6. trents
    It is possible you are not a celiac but not likely. The positive tTG Ab is usually telltale for celiac disease. Your next diagnostic step would logically be an endoscopy with a biopsy of the lining of the small bowel to check for damage to the "villi". What symptoms do your family and friends see you having? Many celiacs have few noticeable digestive...
  7. trents
    Celiac disease is not a gluten allergy. It is an autoimmune response that is triggered by the ingestion of gluten. This involves a completely different pathway in the immune system than would an allergy. It is also possible that someone could have an allergy to gluten. Problems with dairy can be caused by the inability to digest lactose (milk sugar)...
  8. trents
    Diamonds, Eating gluten free doesn't have to be expensive unless you insist on buying a lot of already made gluten free food products such as pizzas, frozen dinners and snacks. If you will focus on consuming things that are fresh, simple and naturally gluten free it is not much more expensive at all. Focus on fresh meats, fruits, vegetables and eggs...
  9. trents
    A curry what? Curry is a spice.
  10. trents
    It can take two weeks to recover from good episode of glutening. Also, don't rule out other causes such as COVID or food poisoning. Sometimes we make assumptions about illness causes based on experience or timing and something else coincidentally is actually the culprit.
  11. trents
    I wouldn't count on it because typically, oats get cross-contaminated with wheat/barley/rye during the growing, harvesting, storage as well as transport and processing phases before it gets in the final product. Now, whether or not there is enough gluten to cause a reaction in that cereal batch is another question. Celiacs vary tremendously in their sensitivity...
  12. trents
    Sparechange, welcome to the forum! You say that you were diagnosed (with celiac disease? Non Celiac Gluten Sensitivity, aka, NCGS?) around 2009. You do not say if you have been gluten free sense then. Have you been compliant with the gluten free diet during the time after your diagnosis?
  13. trents
    gluten-free processed foods are largely empty calories. Wheat flour in the USA is fortified with vitamins to offset this and this is mandated. Not so with gluten-free flours. I encourage you to read the labels on processed gluten-free food items and note the ingredients that you are not familiar with or haven't heard of before. These days food manufacturers...
  14. trents
    1. Your body is still adjusting 2. You may have added some gluten free food item to your diet that is not agreeing with you. Are you using gluten-free processed foods? They contain ingredients that are not normally found in the diet of those not on gluten-free diets such as xantham gum and other weird stuff. I would suggest restricting yourself to simple...
  15. trents
    LaChoy makes a gluten free soy sauce (no wheat) and is found in our local Safeway store.
  16. trents
    Were you having this nausea before you started on the gluten-free diet?
  17. trents
    Welcome to the forum, BuzzB! Pretest gluten exposure guidelines given by the Mayo Clinic for the endoscopy/biopsy are the daily consumption of an amount of gluten equivalent to what would be found in two slices of wheat bread for at least two weeks. For the antibody blood test the same amount of gluten should be consumed for 6-8 weeks before the blood...
  18. trents
    Lack of symptoms is not a reliable indicator of whether or not low level inflammation in the small bowel lining is happening.
  19. trents
    Sharing a toaster is a big no no! Have you checked meds and supplements? Wheat starch can be used as filler. And I don't think the FDA requires allergens to be listed for meds. Often, you have to call the company who manufactures them to find that out. Are you still on dairy and oats? Some celiacs react to the proteins in those two foods like they...
  20. trents
    I am aware that in some celiacs dairy can cause villi blunting. That has been researched and documented by NIH. But broad scale gluten cross reactivity is a dubious concept for which there is not reliable data: https://www.cureceliacdisease.org/faq/whats-with-all-the-talk-about-certain-types-of-food-causing-cross-reactivity/ I would suggest you go back...
  21. trents
    You are probably still getting minor amounts of gluten from some source. Be aware that when you have been off gluen for a significant amount of time and then go back on it for testing purposes you may find your reactions much stronger than in the pre gluten free days. It may make you quite ill.
  22. trents
    I would suggest adding a gluten-free high potency B-complex to that mix.
  23. trents
    According to Gluten Watchdog, lentils are the number one dried food for cross contamination with wheat.
  24. trents
    What do you mean by "gluten cross reactors"?
  25. trents
    In the UK you would have likely been given a diagnosis of celiac disease because your tTG-IGA was greater than 10x normal. But I will tell you we sometimes see this pattern of positive antibody tests with negative biopsy. You might consider starting a gluten free diet to see if your symptoms improve. Your symptoms are classic for either celiac disease...
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