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trents

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Everything posted by trents

  1. trents
    This one: IgA w/reflex to TT IgG Ab - 154 (ref 10-140mg/dl) The tTG-IGA is considered to be the centerpiece of serum testing for celiac disease. Supposedly, it combines good sensitivity with excellent specificity. The sensitivity of the test has been called into question of late, however, so the doctor ordered the deamidated gliadin igg antibody test...
  2. trents
    "A reflex test is a laboratory test performed (and charged for) subsequent to an initially ordered and resulted test. Reflex testing occurs when an initial test result meets pre-determined criteria (e.g., positive or outside normal parameters), and the primary test result is inconclusive without the reflex or follow-up test. It is performed automatically...
  3. trents
    My take is your daughter has celiac disease and your doctor is full of bologna. With those symptoms, high tTG-IGA and genetic risk factors I don't know how the doctor reached the conclusion she did. No need to torture her. And negative biopsies after positive antibody tests is certainly not unheard of. It can be due to a number of factors. Transient...
  4. trents
    Many people who have the genetic potential for celiac disease never develop the active form. I do not believe that is a given. I don't have any hard data on that but that is what I have seen stated many times on this forum and in other places.
  5. trents
    Ditto to what Scott said.
  6. trents
    Welcome to the forum Eileen2! You say": I have two teenagers and a husband who don’t at this time eat gluten free. I was told that if I make a pbj sandwich and after touching the bread with the knife I can’t dip it back into the pb jar because it will contaminate the whole thing and I can’t eat it. I need to have my own cooking pots/ utensils. I sho...
  7. trents
    I enjoy Glutino's crackers. They remind me of matza.
  8. trents
    Did you mean "Canyon House?" You typed "Cannon House." Or, maybe there is a Cannon House?
  9. trents
    The problem with that is that gluten-free bread doesn't hold together well enough to permit thin slicing. But try Canyon House Bakery's gluten-free bread products. They are smaller and thinner than most.
  10. trents
    Brett, this is not uncommon with young children. Their body systems are much more resilient in some ways than those of adults and it is possible that if your child has celiac disease there just hasn't been enough time for the small bowel villi to show damage. The serum antibody tests can still detect the inflammation, however. It is also possible that the...
  11. trents
    COX-2 inhibitors have reduced GI impact but there are still plenty of people who develop peptic ulcers who take them daily over extended periods of time. There mechanism of action is they suppress only COX-2 instead of COX-1 and COX-2 like aspirin or Advil or Aleve do.
  12. trents
    Lidocaine is a numbing medication that can be applied topically or injected. It is not an NSAID.
  13. trents
    Thank you for the additional information. Did you begin gluten free eating prior to the endoscopy? If so, that would likely invalidate the results. As far as the recurrence of some of the symptoms, I would guess some gluten has found its way into your diet that you are not aware of or you have developed other food intolerances that do not involve...
  14. trents
    Welcome to the forum, Golem! Your post is a bit confusing. It is not clear to me whether you have been specifically tested for celiac disease. You cannot arrive at a diagnosis of NCGS unless celiac disease has been conclusively ruled out since the two conditions have a lot of symptoms in common. A colonoscopy, which scopes only the large bowel and...
  15. trents
    NSAID Patches can have the same problem with stomach irritation as pills if used often for extended periods since they will also suppress the inflammatory process needed to rebuild the stomach lining. The COX inhibitors will still get into the blood stream to some extent. But they are great for short term, intermittent use. NSAID inflammatory creams and gels...
  16. trents
    You can also have NCGA (Non Celiac Gluten Sensitivity) as opposed to celiac disease. Being actually tested for celiac disease would be the only sure way to differentiate between the two. But either way, life long avoidance of gluten is the only antidote.
  17. trents
    Yes, thanks for catching that, Scott. That one is positive. The formatting sometimes makes it difficult to spot those.
  18. trents
    I don't see that you have any positives at all in the data you listed. The key one is the tTG-IGA and your value is 2 whereas the reference range goes all the way up to 19.
  19. trents
    I'm not aware that genetic testing can establish that you have an allergy. Celiac disease is not an allergy but an autoimmune disorder and the potential for it can be established by genetic testing. But having the genes doesn't necessarily mean you have celiac disease. Many or most who have the genes do not develop celiac disease. There must be a stress triger...
  20. trents
    Genetic testing cannot establish that you have celiac disease. It can only establish that you have the potential for celiac disease, which you do, having the FDQ8 gene. There is one other gene that has been associated with celiac disease so far and there may be others. Many or most people that have the genetic potential for celiac disease don't actually develop...
  21. trents
    You should be feeling better within a few weeks but double down on your efforts to eat gluten free. Read all labels carefully, not just food but supplements and meds as well. Wheat starch is sometimes used as a filler in pills. As Cristiana also mentioned, it is very common for celiacs to have developed other food intolerances because of "leaky gut" syndrome...
  22. trents
    Seven or eight mile walk? That's way beyond what is needed to remain mobile. You must be like me. If a little bit is good a whole lot must be much better! Seriously, I would see if the pain starts to subside on it's own and then begin some limited, gentle exercise. A physical therapy consult could be helpful in giving you some targeted exercises for the sacrum...
  23. trents
    Are the hip and leg not getting any better over time? How long has this been going on? One option might be just to give it some time without taking the meds. What about cortizone injections to the affected parts?
  24. trents
    Rita, have you actually been tested for celiac disease? I mean there are blood antibody tests specifically designed for celiac disease. But you would need to have been eating regular amounts of gluten (equivalent of two slices of wheat bread daily) for 6-8 weeks before getting tested for the tests to be valid. https://celiac.org/about-celiac-disease/screening...
  25. trents
    Welcome to the forum, joyce! I think your question is one that most new celiacs ask as they are trying to gauge the impact that celiac disease will have on their lives. It certainly is an inconvenient disease to have, isn't it! First of all, celiacs do vary somewhat in their sensitivity to gluten. Some can ingest very small amounts of gluten seemingly...
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