Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,412

  • Joined

  • Last visited

  • Days Won

    507

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    With a tTG-IGA of 50 the odds are definitely in favor of you having celiac disease. We have had many forum posters with much lower scores than that get diagnosed with celiac disease. That particular test is pretty specific for celiac disease. About 18% of celiacs have elevated liver enzymes. I was one of them and it was what eventually led to my celiac...
  2. trents
    Though your sister's symptoms are minimal when she eats gluten, that doesn't mean she isn't experiencing damage to the villi of her small bowel. Someone needs to point that out to her because she is risking serious health problems down the road.
  3. trents
    You may have NCGS (Non Celiac Gluten Sensitivity). Many of the symptoms are the same as with celiac disease but no damage is done to the lining of the small intestine. That's why the antibody tests for celiac disease will be negative. Even so, a word of caution is in order. Some experts believe that NCGS is a precursor to celiac disease so in time it might...
  4. trents
    Lauren, welcome to the forum! Before you do anything more, can you be more specific about the "2 celiac markers." Do you have access online to your autoimmune indicator test results. Before we can advise you we need to know the specific tests that the physician is referring to with elevated celiac markers. Can you post them for us? Headaches and diarrhea...
  5. trents
    In the UK many doctors will wave the endoscopy/biopsy with tTG-IGA numbers 10x in excess of normal. Not necessarily so in the states. I would continue normal amounts of gluten consumption until you can discuss this with your physician.
  6. trents
    Welcome to the forum, Heal2Recove! The nature of celiac disease is it is an autoimmune disorder whereby whenever you consume gluten it triggers an inflammatory process in the small bowel that damages the lining (the "villi") of the small bowel. Your immune system is mistakenly identifying gluten as an invader. Over time the constant inflammation...
  7. trents
    Well, you're too young for onset of dementia so that is not a worry. You probably need to consider taking a gluten free high potency B-complex and zinc. B vitamins are important for neurological health. How much D are you on and what kind of D? D3 is the most assimilable. Make sure all your vitamins and minerals are gluten free.
  8. trents
    ollie, I would bring it up with your GI but what you describe is not unusual for those with celiac disease and still consuming gluten. Neurological problems and "brain fog" are common. How much longer do you need to doing the gluten challenge? When will your testing be complete? May we ask how old you are? Are you taking any vitamin and mineral supplements...
  9. trents
    Christ, did the doctor doing the endoscopy also do a biopsy of the small bowel and send the biopsy off for analysis or was this just a visual inspection?
  10. trents
    Welcome to the forum, bugg! What about buying your own cookware and utensils, cleaning paraphernalia, etc and keeping those sequestered in a footlocker or something? There is also a product called GliadinX which is designed to neutralize small amounts of gluten such as you get from cross contamination. GliadinX is one of our sponsors here. Some...
  11. trents
    If one meal of liver boosts your energy levels noticeably, I would think that points to some glaring vitamin deficiency being met temporarily. It often takes two years for the villi to heal completely once you go on a gluten free diet. But if you are truly eating gluten free, pains should subside rather quickly. I'm betting you are still getting gluten...
  12. trents
    It's good to get some answers, isn't it.
  13. trents
    Definitely. Your next step should be to ask your physician to order a full celiac panel which would include the tTG-IGA test plus the "other tests" described in this article: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Print it out and take it with you. Many physicians are pretty ignorant about celiac disease.
  14. trents
    NCGS should not produce positive antibodies, however, would it?
  15. trents
    Matt, I do not put much stock in food allergy/intolerance testing. There typically are many false negatives and positives which is to say the results often do not match up well with real life symptomology. It would likely be more helpful to just eliminate corn from your diet for a few weeks and see if you don't fare better. Then reintroduce it and see if...
  16. trents
    Sometimes there's more there than meets the eye. Unfortunately, there are times when GI docs doing scopes neglect to take a biopsy and tell patients, "The villi looked normal to me."
  17. trents
    We get it at Costco.
  18. trents
    Yes, it is possible. But one would have to give up all processed foods and focus on a diet of simple and fresh foods, things with peels or that can be washed.
  19. trents
    Even though the evidence that your daughter has celiac disease is not strong at this point, the real tipper would be if you put her on a gluten free diet and her symptoms dramatically improve.
  20. trents
    This video: https://www.glutenfreewatchdog.org/news/lessons-learned-from-16-years-of-testing-food-for-gluten/ provides some great information with regard to compliance within the gluten free product industry and what to focus on with regard to avoiding getting glutened by misleading and false advertising. One surprising takeaway is that you really stand a...
  21. trents
    "Could I have celiac and my daughter have it, but she is just now developing it and it isn’t showing on the scope yet?" I think you hit the nail on the head. Her numbers are not strongly positive so there is little or no damage yet. Now is the time to get on top of it with gluten free eating for her. Negative scopes with positive bloodwork is not that u...
  22. trents
    Yes, it would be interesting. You've got to wonder how much gluten actually winds up in the cheese from the culture. Might actually meet the 20 ppm standard for being gluten free. But, unless you test it you have no way of being sure. But when the manufacturer actually tells you it is not gluten free without any qualification, you really have to take it more...
  23. trents
    The official pretest guidelines are the daily consumption of an amount of gluten equivalent to at least two slices of wheat bread for 6-8 weeks leading up to the blood draw. Less than that will likely drive the antibody test numbers down towards the negative end.
  24. trents
    Let me start over as I see there are four options from your original post and not just three. If cost is not a limiting factor, definitely go with the Celiac Disease Panel. The extra tests in this one can serve to catch somebody who actually has celiac disease but whose immune system is not producing typical antibody responses. And, if you can afford...
  25. trents
    First of all, I'll address your question about how could the doctor diagnose you with celiac disease and then tell your mother you could go back to eating normal after your biopsy was clear as a 21/2 year old. That he told her this comes as no shock to any of us veteran celiacs. We are well aware of the blatant ignorance of the medical community as a whole...
×
×
  • Create New...