Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron levels


penguin11

Recommended Posts

penguin11 Explorer

Prior to going gluten-free I had episodes where I had trouble breathing, got very hungry, dizziness, and was barely able to stand up straight. I think this could be related to anemia, since it is gone after going gluten-free. However, last week I ate vegan food every meal, and at the end of the week, the anemia feeling came back. Could this be related to low iron, and is it possible that my iron levels came back to where it was before I went gluten-free in only one week with low iron food?

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
44 minutes ago, penguin11 said:

Prior to going gluten-free I had episodes where I had trouble breathing, got very hungry, dizziness, and was barely able to stand up straight. I think this could be related to anemia, since it is gone after going gluten-free. However, last week I ate vegan food every meal, and at the end of the week, the anemia feeling came back. Could this be related to low iron, and is it possible that my iron levels came back to where it was before I went gluten-free in only one week with low iron food?

 

I wouldn't think one week of vegan eating would bring on anemia unless your iron levels were already borderline. But do keep in mind that there are no vegetable sources of B12 except some fermented cabbage products and B12 is vital to iron absorption. 

penguin11 Explorer

I still can feel somewhat exhausted after/in stressful situations, but not so much as before. This is also the only symptom that still remain after going gluten-free.  Maybe I am borderline anemic as you menioned. Thanks for the tip on B12. I don`t eat dairy, so I may have to eat more meat.

trents Grand Master
(edited)

Have you had any blood work done lately to check for anemia, vitamin and mineral deficiencies? Read meat is absolutely the best natural source of iron and of the most easily assimilated kind of iron (heme iron). There is a form of anemia called "pernicious" anemia related to being unable to assimilate B12 because of lack of something called "intrinsic factor," an enzyme needed to absorb B12. With pernicious anemia, B12 supplementation has no affect. B12 injections must be used.

Edited by trents
penguin11 Explorer
1 hour ago, trents said:

Have you had any blood work done lately to check for anemia, vitamin and mineral deficiencies? Read meat is absolutely the best natural source of iron and of the most easily assimilated kind of iron (heme iron). There is a form of anemia called "pernicious" anemia related to being unable to assimilate B12 because of lack of something called "intrinsic factor," an enzyme needed to absorb B12. With pernicious anemia, B12 supplementation has no affect. B12 injections must be used.

I have not had any blood work done in years. I went gluten-free one year ago because my body was shutting down, and I was feeling worse and worse the last half part of my life. I did not get any diagnosis before I went gluten-free, which in hindsight I wish I would have tried to get. Now I live as if I have celiac disease, since 90% of my problems went away. Would you recommend going for a diagnosis? Maybe first check for vitamin and iron deficiencies, to get an indication?

knitty kitty Grand Master

@penguin11,

Most vegetables are not good sources of B vitamins except for leafy green vegetables like kale, turnip greens, collard greens, beet greens and even broccoli.

The best food sources of B vitamins are liver, red meat, pork and fish like salmon.  Red meat and liver are excellent sources of iron.  

Remember, you need all eight B vitamins (and various minerals like iron, calcium, magnesium and zinc).  Meats are the best sources for these.  Liver is the most nutrient dense with both vitamins and minerals.  

 

penguin11 Explorer
15 minutes ago, knitty kitty said:

@penguin11,

Most vegetables are not good sources of B vitamins except for leafy green vegetables like kale, turnip greens, collard greens, beet greens and even broccoli.

The best food sources of B vitamins are liver, red meat, pork and fish like salmon.  Red meat and liver are excellent sources of iron.  

Remember, you need all eight B vitamins (and various minerals like iron, calcium, magnesium and zinc).  Meats are the best sources for these.  Liver is the most nutrient dense with both vitamins and minerals.  

 

Thanks, will definitely eat more liver after hearing this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

I would suggest you get some bloodwork done to get a better idea of what might be causing this. Not every medical problem is related to having celiac disease. How's your insurance?

penguin11 Explorer
2 hours ago, trents said:

I would suggest you get some bloodwork done to get a better idea of what might be causing this. Not every medical problem is related to having celiac disease. How's your insurance?

Insurance is not so big issue where I live. I will go and draw some blood, and try to find some indications of what is going on.

Wheatwacked Veteran
On 10/23/2021 at 12:57 PM, penguin11 said:

since 90% of my problems went away. Would you recommend going for a diagnosis?

When you fill out the patient history form be sure to indicate the symptoms that got better with GFD.  Hopefully you'll find a doctor that will support or at least accept your self diagnosis and listen to what you say.  Let the doctor guide you as far as becoming labeled.

soybeanskidney Newbie

I had the same symptoms and I have a diagnosis of insulin resistance.  https://en.wikipedia.org/wiki/Insulin_resistance

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    2. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    3. - Scott Adams replied to Sicilygirl's topic in Coping with Celiac Disease
      2

      fed up italian

    4. - trents replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    5. - trents replied to Art Maltman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      My 5 months of Struggle


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,504
    • Most Online (within 30 mins)
      7,748

    Madlyn47
    Newest Member
    Madlyn47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results.  When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests.  Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and a false negative biopsy may result.  As uncomfortable as it is, finish all testing before going gluten free.  
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant label-reading and vigilance required. But please know that you are not alone, and many others have walked this path and come out stronger on the other side. Healing takes time, and while the brain fog, fatigue, and bowel symptoms can be discouraging, they often improve as your body begins to recover. It’s great that you’ve hired a dietitian—that’s a big step in supporting your healing journey and ensuring you’re getting the nutrients your body needs to rebuild. Remember, each small step you take is progress, even if it doesn’t feel like it right now. It’s okay to feel sad and angry, but also try to give yourself credit for your strength in facing this. The fact that you pushed for answers shows how resilient you are. While the road ahead may have challenges, many people find that over time, they feel better than they ever imagined possible once their gut begins to heal. You’ve got this, and the celiac community is here to support you every step of the way. If you have time, this book was published on Celiac.com's and you might find it helpful: Also, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • trents
      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
    • trents
      Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds like it might be a good idea to seek out another physician who knows what they are doing in this area of disease diagnosis. At any rate, you have the link I shared above outlining the various tests that can be run so that might be a resource you could share with a physician.
×
×
  • Create New...