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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    The gold standard for celiac disease diagnosis is the endoscopy with biopsy of the small bowel to check for damaged villi. The GI specialist may recommend that. By the way, so do you or other family members have diagnosed celiac disease? If so, realize that there is a 44% chance that someone will develop active celiac disease if a first degree relative...
  2. trents
    I must correct myself from what I said in the first post. the high Deaminated IgG can be an indication of celiac disease. The TtG-IGA is considered the most reliable indicator of celiac disease in adults, being the test that combines great specificity for celiac disease with good but not great sensitivity. And that was not positive in your daughter's case...
  3. trents
    Iron supplements can be hard on the gut and cause constipation. Has she been checked for pernicious anemia? That is caused by the inability to assimilate B12 due to a lack of something known as "intrinsic factor."
  4. trents
    Nothing that stands out there with regard to celiac disease but testing for children often gives different results than for adults and is more nuanced. Is she having symptoms that would suggest celiac disease? She has some values for her blood cells that are a little out of whack but borderline. And then there is the platelet clumping which can be caused...
  5. trents
    Did you leave out something in your post? There has got to be something more to the report than what you posted unless we are to take that as saying you do have the celiac genes. DQ2/DQ8 are the primary genetic markers for celiac disease. However, just having the genes doesn't mean you have or even will have celiac disease. It takes some kind of stress event...
  6. trents
    If you can access those celiac blood values it's important to include the lab reference values as the numbers from the tests are meaningless otherwise. Please include the total IGA value. Yeah, it sounds like when they did the endoscopy they stopped when they found the ulcer, especially since the celiac blood tests were negative. Too bad.
  7. trents
    While they were doing the endoscopy they didn't take a biopsy of the small intestine to check for the blunted villi characteristic of celiac disease? Do you have access to the blood work so that you can post the actual tests done and numbers online and the baseline reference values? It is not all that unusual for people who do have celiac disease to...
  8. trents
    Sorry, my bad. My eyes skipped over the word "free."
  9. trents
    I take it you left out "not"?
  10. trents
    Welcome to the forum, Dd89! Why haven't you been tested for celiac disease? Several medical professionals seem to have guessed that you have it but you do not mention every having actually been tested for it. The first stage of testing is simple blood draw sent to a lab to test for antibodies associated with celiac disease. If this blood test is strongly...
  11. trents
    Thanks for the update. Please keep us posted. We are learning that celiac disease/gluten sensitivity symptoms and health related expressions continually defy the neat box we used to put them in. It is becoming increasingly obvious that these gluten-caused diseases manifest themselves with much greater variability than we imagined even just a few years ago...
  12. trents
    This could be connected with celiac disease but could also be due to other digestive maladies. Constipation or diarrhea or an alternating combination of both is common among celiacs. In other words, the consistency of the stool is often not what it should be and motility is often impaired. With bowel impactions or blockages, liquid stool can sometimes...
  13. trents
    We're getting more and more folks on the forum who have developed egg intolerance. Egg is part of your recipe so just thought I should mention that.
  14. trents
    Well, I think that is an exaggeration. Mg is the active ingredient in some laxative products but lots of laxatives use other things, either to soften the stool by drawing water into the colon or by providing some kind of irritation that stimulates evacuation.
  15. trents
    Did you ever have an endoscopy with a biopsy of the small bowel lining? That is the gold standard for diagnosing celiac disease and for distinguishing it from gluten sensitivity. Celiac disease damages the villi that line the small intestine which in turn inhibits nutrient absorption. The villi are tiny finger-like projections that create an enormous surface...
  16. trents
    You might want to take a magnifying glass with you.
  17. trents
    Welcome to the forum, Chrissy. How were you diagnosed with Celiac at age 7? Do you remember if they actually ran any tests or were they going on symptoms alone? How old are you now if you don't mind me asking. Just trying to get a handle on what kind of testing might have been available when you were 7. Have you been tested since then? Have you...
  18. trents
    The Taco Bell items listed in this article as not purposely having gluten but subject to cross contamination is the kind of situation where a product like GliadinX comes in handy.
  19. trents
    I have not heard of this specific symptom connected with celiac disease but it doesn't sound too far fetched as the spleen filters out old and damaged red blood cells. One of the common offshoots of celiac disease is anemia. I'm thinking that severe anemia can result in red blood cells not forming correctly or dying too early. At any rate, please get this...
  20. trents
    Yes, it is typically overwhelming at first. The hardest part is the limitations it typically places on your social life with regard to eating out and eating at other people's houses. There are still many people who simply cannot accept that celiac disease is a real thing and just consider it to be the latest medical paranoia or fad diet. Over time you develop...
  21. trents
    Welcome to the forum, Linny H. The difference between how the various apps rate the safety of various processed foods with regard to gluten likely is due to whether or not the food item may have used ingredients, though naturally gluten free, could have come in contact with gluten containing grains in the growing, transport, storage or manufacturing...
  22. trents
    I think your hubby should consider going gluten free for your sake at least. It is very difficult to avoid being glutened when others in the household are still using wheat products. Has he been tested for celiac disease? I mean essential tremors are a neurological phenomenon of, according to the medical community, unknown cause. And you both have tremors...
  23. trents
    So what do you feel was the mechanism of glutening in this situation? Breathing the fumes? Transdermal from contact with any batter that might have been on the spatula handle? Could it have been coincidence?
  24. trents
    Unfortunately, any test done at this point may not be accurate. The guidelines are daily consumption of gluten equivalent to two slices of wheat bread for 6-8 weeks before the sero antibody test and at least 2 weeks for the endoscopy/biopsy. So your options would seem to be go back on gluten and gut it out (excuse the pun) until you can be retested or have...
  25. trents
    Welcome, Dorothy! Have you been checked for SIBO?
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