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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, ollieotters! Have you been tested for and officially diagnosed with celiac disease? I'm not clear on whether you are eating gluten free because you have been diagnosed with celiac disease or just have been just trying out gluten free eating in order to address your GI distress. Some people have "refractory" celiac disease and don...
  2. trents
    Welcome to the forum, Ricky B! The immune systems of young children are not yet fully developed and will often respond differently to threats than the immune systems of adults. If you are medically unable to undergo an endoscopy/biopsy then your next step would be to begin the gluten free diet and see if your symptoms improve.
  3. trents
    My experience exactly after years of gluten free eating. Two to three hr. of emesis and severe abdominal cramping followed by several hours of diarrhea if I get a significant exposure to gluten now. No tolerance for it anymore.
  4. trents
    Have you checked to see if there are any celiac disease support forums in your area? If so, that might be one option for safe socialization. Also, I believe I read on this forum that some of the online matchmaking services have a filter for people with celiac disease.
  5. trents
    "The problem of course is that if I truly am celiac and have to go on to a diet containing gluten for six to eight weeks...Then that is likely to be a long and very uncomfortable time." We see this scenario play out in the experience of new forum members all the time. The medical community at large is still pretty ignorant about celiac disease...
  6. trents
    Welcome to the forum, Holly1917! That's a curious question. What is your thinking there? It sounds like there is a hypotheses behind the question.
  7. trents
    Wise courses of action. This may also help prevent your husband's latent celiac disease from becoming the active form.
  8. trents
    Since you have had no testing done for celiac disease it is possible there is some other food intolerance that is causing your problems. You really need to get tested for celiac disease but if you decide to do that you will need to go back to eating gluten daily in the equivalent amount of 2 slices of wheat bread for at least 6-8 weeks. If you are on a gluten...
  9. trents
    This is why many celiacs just don't eat out any more. You have no control over the ignorance of the kitchen staff with regard to celiac disease and even if the food they offer is naturally gluten free, the kitchen staff is typically not careful with regard to cross contamination issues when preparing or serving the "gluten free" menu items.
  10. trents
    Marry a celiac. That would solve part of the problem.
  11. trents
    Been there done that!
  12. trents
    And if milk is the problem, it may not be the lactose component of milk but the protein component called casein.
  13. trents
    Welcome to the forum, Khudaija! Yes, it sounds like you are in a very difficult situation. Any parent would suffer in the place of their children if they could trade places.
  14. trents
    You stated that you experienced some improvement in your symptoms when you began to remove gluten from your diet so that in itself strongly suggests you have either celiac disease or gluten sensitivity. If you were to get serious about eliminating gluten from your diet you would likely experience even more improvement. Some people need the official diagnosis...
  15. trents
    Most definitely! Your doctor should have advised you to go back on gluten for about two months before testing. The guidelines are daily consumption of gluten equivalent to two slices of wheat bread for 6-8 weeks before serum antibody testing and at least 2 weeks before the endoscopy/biopsy. On this forum we frequently have people post with your same experience...
  16. trents
    Are your bowel movements regular? You mention nausea but is there also constipation or diarrhea? Is there any blood in the stool or color change? I'm wondering about either a partial blockage or an ulcer.
  17. trents
    Welcome to the forum, cristinab! You will likely receive different answer from different forum members with regard to your question. The reason being that there is a wide rage of sensitivity among the celiac population as to how much gluten it takes to trigger a reaction. I would say the key here is how thoroughly you wash non stick cookware and how...
  18. trents
    An ounce of prevention is worth a pound of cure. This article also highlights the fact that people can have positive antibodies but negative biopsies, a common question we receive on the forum.
  19. trents
    Have you been checked for a type of anemia called "pernicious anemia" in which the gut lacks something called "intrinsic factor" and cannot absorb B12? B12 is necessary in the chain of biochemical operations that have to do with iron uptake. Has the doc tested you for B12 deficiency? And, welcome to the forum community!
  20. trents
    I'm not sure that the "sewing of two kinds of seed" in Deuteronomy 22:9 refers to hybridization. That might be a stretch. The Hebrew word kilayim, here translated as "to sew two kinds of seed" is a very rare word not found outside of Deuteronomy 22:9 and Leviticus19:19. In the Deuteronomy passage, the word "field" appears instead of "vineyard" in connection...
  21. trents
    How does it happen that up to 2% of the time you eat gluten? Are these usually accidental exposures or a breakdown in resolve? Not meaning to sound judgmental but when I read that the first thought I had was, how serious is this poster taking her celiac disease? Maybe that 2% is enough to keep the disease active. Switching gears here but did you know...
  22. trents
    Ditto to what Christiana said about small amounts of gluten can be damaging. It could be causing low level damage to your intestinal villi that is asymptomatic.
  23. trents
    Okay, but just be aware that if you decide to go in for testing at some point you would need to go back on gluten. The guidelines are eating the amount of gluten found in two slices of wheat bread daily for 6-8 weeks before serum testing and at least 2 weeks before an endoscopy/biopsy of the small bowel lining. Also, it's really hard for some people to stick...
  24. trents
    There you go. I'm glad you did the follow-up.
  25. trents
    Welcome to the forum, HeylmTyler! Yes, it is possible to develop celiac disease at any stage on life. Many of your symptoms are classic celiac disease symptoms, especially the GI disturbances, foul smelling stool, gas, bloating, brain fog, headaches. The muscle twitching and shakiness could be a neurological manifestation of celiac disease and...
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