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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Oats do not contain gluten but have a protein called avenalin which some believe causes a similar reaction in the gut to gluten. About 10% of celiacs react to oats like they do gluten. However, it's not entirely clear whether this is because of cross contamination of the oats with gluten containing grains. There is not yet definitive research available to...
  2. trents
    Yes, the forum community is discovering that not all that claims to be gluten free is actually gluten free, at least not for the more sensitive segment of our community. And it might not be the pizza itself that is the issue but the definite possibility that the staff a Dominos used the same utensils when cooking, handling and cutting your order that they...
  3. trents
    I concur with what cristiana said and would add that to attain a truly gluten free lifestyle generally involves quite a learning curve. It took me about a year and a half to get a good handle on how and where gluten is tucked away in the food supply, in meds and supplements and even in grooming and hygiene products. It is common for those just beginning the...
  4. trents
    Great suggestion!
  5. trents
    There is concern that biopsy may not be as effective using the transnasal endoscopy method: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3930889/ I hope you don't mean you aren't starting gluten free eating before the biopsy.
  6. trents
    By the way, the TTG-IGA test is currently considered to be the best blood test currently available to detect celiac disease. Although it's best to run a "full" celiac panel, many physicians will only order the TTG-IGA. It is considered to be the most specific for celiac disease but not the most sensitive. So, when it is positive, even weakly positive, it...
  7. trents
    Buy some GliadinX and take some before eating out. And do the best you can in ordering non gluten items from the menu. GliadinX can neutralize small amounts of gluten such as you get through cross-contamination. But it is not a license to disregard the need to avoid gluten altogether. Since your TTG-IGA is positive, albeit weakly positive, I would bet...
  8. trents
    Yes, the social aspect is the hardest dimension of having a gluten disorder. Friends and family can be hard to get onboard. It requires patient education and grace. It's a good idea to prepare ahead of time with some gracious responses to the skepticism of family and friends. By the way, if you have celiac disease, there is a 44% chance that your first...
  9. trents
    If you have celiac disease or gluten sensitivity, once you go off of gluten for any length of time you become more intolerant of it than you were when consuming it daily. Getting "glutened" after being off of it typically makes you sicker than a dog. What makes you think you have gluten sensitivity and not celiac disease? The symptoms are largely the...
  10. trents
    A lower GI does not examine the small intestine. That is done with an upper GI. The part of the small bowel affected by Celiac disease is just below the outlet of the stomach and that is part of an upper GI. There is a stool sample test for celiac disease that has been developed by a certain individual but it is not widely recognized as a valid diagnostic...
  11. trents
    Thanks, Scott. Very thorough and helpful.
  12. trents
    I believe food sensitivity tests measuring reactions that happen in a different immune system pathway than is engaged by celiac disease. Celiac disease is not an allergy. It is an autoimmune condition and is diagnosed by measuring IGA antibodies. I could be wrong, but I think food sensitivity tests are just allergy tests and measure IGE antibodies rather...
  13. trents
    No so, apart from damage to the villi which isn't a feature of gluten "intolerance." That's why I don't like the term "intolerance" as opposed to "gluten sensitivity." NCGS is not the same at all as say, "lactose intolerance." Lactose intolerance just gives you gas, bloating and diarrhea but poses no long term health risks. Non celiac gluten sensitivity,...
  14. trents
    Tissue trasnsglutaminase (TTG-IGA) would be the only one in that list that would be useful for celiac disease. And there are other celiac antibody tests that should have been run. What was the value for that test? And what is the lab's reference range? It would also be good to know what the value of the IGA is and it's reference range. Low total IGA can...
  15. trents
    Understood. But realize the antidote is the same for NCGS as it is for celiac disease, i.e., total elimination of gluten from the diet. And it seems to me you already demonstrated that gluten is the issue one way or another. Practically speaking, there's not much difference.
  16. trents
    "My blood test which was done on 21st May (5 days after being back on gluten) came back negative," The test could be negative because you were only back on gluten for 5 days. For the blood test, the recommended "gluten challenge" is 6-8 weeks of consuming gluten daily in the amount equivalent to two slices of wheat bread. For the endoscopy/biopsy the...
  17. trents
    It is possible that you have NCGS (Non Celiac Gluten Sensitivity) which has most of the same symptoms as celiac disease and most of the same health risks but for which there is currently no diagnostic test. It is diagnosed based on symptoms and if symptoms improve when eating gluten free.
  18. trents
    Holly, welcome to the forum! Once you have been off gluten for a significant period of time and then go back on, say before testing, symptoms are typically much worse than they originally were. You may have NCGS (Non Celiac Gluten Sensitivity) which gives most of the same symptoms and most of the same health risks but for which there is currently...
  19. trents
    In the USA, if "starch," "modified food starch," ect. is listed in the ingredients, if it made from wheat, it must be so stated. Otherwise, it will be made from some other plant source, usually corn. You may be reacting to the casein (primary protein in dairy) or some added ingredient. Dairy products do not naturally contain gluten.
  20. trents
    Alkaline Phosphatase is an enzyme that helps break down proteins and is one measure of liver and gallbladder function as well as bone health.
  21. trents
    Zoey, welcome to the forum! Your story is heartbreaking but not an uncommon one unfortunately. Have you looked into celiac support groups in your area?
  22. trents
    Pam, The best way to protect yourself from accidental gluten exposure and cross contamination in the home is for the rest of your family to commit to gluten free eating, at least when not dining out. The second best option would be to keep gluten free food items sequestered in a separate part of the kitchen or the house and make them off limits to others...
  23. trents
    Okay, I think I see where the misunderstanding is. By "you" were you were referring not to me but to yourself or anyone else as the original poster? You can edit a post or delete it's content entirely but there is a time window for doing so. I am not sure you can entirely delete the post altogether as opposed to leaving it blank. I'm not sure how that works...
  24. trents
    Sorry, I see a typo in my previous post. I meant to type, I'm "just" a moderator and I don't have the ability to delete posts or blogs. That requires full administrator privileges. You need to send a personal message to Scott Adams who is the forum administrator in order to get that done. Scroll to the top of the page and look in the upper right corner. There...
  25. trents
    Send Scott Adams this request using the built-in personal messaging tool ("PM" we call it). I'm must a moderator and to delete things requires full administrator privileges.
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